Functional Neurological Disorder/Conversion Disorder

Explaining FND can be difficult. Many people will be familiar with both the ‘Computer Analogy’ & the ‘Smartphone Analogy’ as most people have some understanding of technology. But what if you are not so familiar with technology? How do you explain FND then? Well, there is another analogy that might help – the ‘Piano Analogy’! A person with FND is like an out of tune piano – the piano is completely intact but it doesn’t sound right when you play it because the keys are out of tune.
#FunctionalNeurologicalDisorder #FND @sassyfndlife @fndhope

Explaining FND can be difficult. Many people will be familiar with both the ‘Computer Analogy’ & the ‘Smartphone Analogy’ as most people have some understanding of technology. But what if you are not so familiar with technology? How do you explain FND then? Well, there is another analogy that might help – the ‘Piano Analogy’! A person with FND is like an out of tune piano – the piano is completely intact but it doesn’t sound right when you play it because the keys are out of tune.
#FunctionalNeurologicalDisorder #FND @sassyfndlife @fndhope

As some of my fellow Mighties may have noticed, I have been absent from The Mighty for a past few months. The reason for this, and also the reason that I may be continuing to have some short breaks, is that, after years of surviving in a home that was entirely unsuitable and unsafe for me because of my disability and mobility needs, I was finally able to move into a fully adapted, wheelchair accessible, home.

This time last year I was surviving in a flat/apartment that had become entirely unsuitable and unsafe for me for so many reasons that it would take far too long so I created this list of the top 5 issues. Now I live in a home that is beyond anything I could have ever imagined living in and has, and continues to, improve my self-confidence, my self-worth and my life.

#Disability #ChronicIllness #ChronicPain #FunctionalNeurologicalDisorder #EhlersDanlosSyndrome #MentalHealth #Anxiety #Depression #BackPain #MightyTogether #CheerMeOn #52SmallThings

One distinct part of living with a health condition—especially a rare disease (diagnosed or otherwise)—is having to explain, and re-explain, what it’s like to manage it. Fluctuating, changing, unpredictable, and under-researched symptoms can make it difficult for others to fully understand how to support you or empathize with your experience.

What’s something that’s often misunderstood about living with your rare disease?

💌 Feel free to share with us below.

#RareDisease #ChronicPain #ChronicIllness #GeneticDisorders #MentalHealth #Disability #Migraine #SUNCTHeadache #StiffPersonSyndrome #MedicalZebra #EhlersDanlosSyndrome #Spoonie #MarfanSyndrome #EmptyNoseSyndrome #Syringomyelia #Neurosarcoidosis #BehcetsDisease #FunctionalNeurologicalDisorder