Functional Neurological Disorder/Conversion Disorder

Join the Conversation on
Functional Neurological Disorder/Conversion Disorder
8.8K people
0 stories
1.2K posts
About Functional Neurological Disorder/Conversion Disorder
Explore Our Newsletters
What's New in Functional Neurological Disorder/Conversion Disorder
All
Stories
Posts
Videos
Latest
Trending
Post

I'm new here!

Hi,

I'm here becaause my daughter has been suffering FND symptoms for 2 years. Initially numbness and tingling, but symtoms soon moved on to blurred vision, double vision and then blindness, hearing loss, mutism and paralysis of limbs.

FnnD bouts have lasted seconds, minutes, hours, days and even upto 7 months before recovery

One thing that is most common is that smy daughter will recover and go to bed symptom free, but if a new symptom or bout of symptoms occurs it does so when she wakes in the morning.

We are told FND occurs when her stress bucket overfills, because of too much stimulus, but this seems to mostly happen when she's asleep, so is able to cope consciously, but it all seems to fall apart in her subconscious.

Has anyone experienced this?

Looking to widen our awareness of FND, as we currently feel very isolated and even with the help of a pretty good Paediatric Neurology Psychologist, we still feel overwhelming underinformed about the world of FND.

#MightyTogether

2 reactions
Post
See full photo

2024...you're kinda kicking my butt here lol. Anyone else on their 2nd or 3rd antibiotic already? Attempting to 'push through'?

We're in the 2nd month of 2024 and I'm on my 2nd antibiotic 🙃

(there was a high chance it would've actually been be my 3rd lol. Thankfully my asthma fixed up)

Anyone else feel...almost punished by the universe lol?

I barely go out (part fault of chronic conditions, part agoraphobia tendencies) and yet I still get sick, sick 🤔

I'm told by so many to 'push through', but I am pushing.

Everytime I get to the toilet in time. The times I make it to work. Remembering key dates. Having a bath. Drinking enough liquids. Replying to that text...

To all those pushing already by just existing: I see you and I am one of you. It isn't easy, but we're really trying our best💜

#ChronicPain #AgoraphobiaWithoutHistoryOfPanicDisorder #Agoraphobia #MentalHealth #ChronicFatigue #Fibromyalgia #BackPain #Asthma #Anxiety #Depression #FunctionalNeurologicalDisorder #IrritableBowelSyndromeIBS #Jointpain #AuditoryProcessingDisorder

12 reactions 4 comments
Post
See full photo

“Listen to Your Body”

When you live with a chronic health condition there’s a good chance that you’ll have heard the phrase “Listen to your body” more than once. Which does sound a lot easier than it actually is because it’s not as easy to get your brain & body to agree!

#ChronicIllness #ChronicIllness #ChronicPain #FND #FunctionalNeurologicalDisorder #Arthritis #BackPain #ChronicFatigue #ChronicDailyHeadache #ChronicLungDisease #EhlersDanlosSyndrome #JointHypermobilitySyndrome #HypermobilitySyndrome #Fibromyalgia

38 reactions 13 comments
Post
See full photo

“Listen to Your Body”

When you live with a chronic health condition there’s a good chance that you’ll have heard the phrase “Listen to your body” more than once. Which does sound a lot easier than it actually is because it’s not as easy to get your brain & body to agree!

#ChronicIllness #ChronicIllness #ChronicPain #FND #FunctionalNeurologicalDisorder #Arthritis #BackPain #ChronicFatigue #ChronicDailyHeadache #ChronicLungDisease #EhlersDanlosSyndrome #JointHypermobilitySyndrome #HypermobilitySyndrome #Fibromyalgia

38 reactions 13 comments
Post

Odd cause of dystonic posture

#BrainInjury #Dystonia #Stroke #DegenerativeDiscDisease Hello. How is everyone doing on this fine feburary morning?

I've got a story that up until recently hasn't gotten any kind of spotlight until now. To start, from June 2022 to October of 2023 I saw physical therapy for an issue involving my left arm posture. The pt diagnosed fnd however the way the posture came about would suggest a different cause alltogether. When I would go to sleep my left arm would involuntarily move under my body & when I would wake up I would find it numb. I sleep flat on my back with my head on a few pillows. This arm sliding under my body would happen constantly. One day last march I woke to my forearm in an L position. No matter what the pt did we couldn't get it back down. I've now got a cushion inbetween the arm & chest however I will still find it in the L position despite this. Is there any reason why this would be happening?

Unrelated to this I got an emg done that showed muscle fatigue in a few muscles on the left arm but besides that it was normal. Could whats going on with my sleep be related to whats going on with my muscles & if so what could it mean?

1 comment
Post

I'm new here!

Hi, my name is Breathe02081. I'm here because I somehow ended up on this page and figured I would see what it was. Oh wait I remember was reading article about service dog must haves.

#MightyTogether #PTSD #Anxiety #Depression #BipolarDisorder #Migraine #RheumatoidArthritis #FunctionalNeurologicalDisorder #DiabetesType2 #CognitiveDisorders

4 reactions 4 comments