gastroparesisawareness

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    Community Voices

    I'm a Warrior

    <p>I'm a Warrior</p>
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    Still in the Midst of Gastroparesis Awareness Month

    <p>Still in the Midst of <a href="https://themighty.com/topic/gastroparesis/?label=Gastroparesis" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce8200553f33fe99328c" data-name="Gastroparesis" title="Gastroparesis" target="_blank">Gastroparesis</a> Awareness Month</p>
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    An Accomplishment

    <p>An Accomplishment</p>
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    A Little About Me

    My name is Tonya. I am a chronic illness warrior and am passionate about advocacy. I love to share my story with anyone who will listen.
    I have been featured on my local news station and interviewer for our newspaper.
    I have numerous conditions such as Gastroparesis (g tube, port, gastric stimulator and on TPN) . I have Primary Immunodeficiency and infuse Hizentra. I have Ehlers Danlos, Autonomic Dysfunction and Mast Cell Activation Syndrome. I have Chronic EBV and had an Acquired Hemaphagocytosis due to being immunocompromised and catching Covid-19 earlier this year. I deal with migraines, hypotension and hypoglycemia as well.
    I'm currently writing for a migraine site and volunteer as an Oley Ambassador.
    My goal is to bring awareness of little known things about my conditions. I am always bringing new information to my doctors. They appreciate it.
    I hope to learn from you all and hopefully, you'll gain insights from me.

    #PatientAdvocacy #chronicillnesswarrior #gastroparesisawareness #GulfWarSyndrome

    3 people are talking about this