Moving left to right.
Wotan my angel son, Javi my late husband, me, & ? Nicaragua was where we were. A stunningly beautiful country with matching very warm people. It was God who got us there we had trouble scratching 2 pennies together in our marriage. I can't afford the 2 penny deal anymore. He died from Covid. My angel son has blessed me, with two beautiful grand-blessing daughters. I am rich with love.
Our story is in my autobiography that I am still cleaning up. He's why I love Vets more now, even though he drove me nuts. 07/16/56- 10/14/21. Wait for me at the gates of Heaven when I am coming home.
This is my first post on this forum and pleased to be part of it. I contracted COVID early March 2020. I wasn’t impacted from a respiratory point of view - more cognition, mental and physical fatigue, aches, loss of appetite…
Now more than 4.5 years on, the majority of my symptoms remain and I’m really interested to hear what others are doing to ‘accommodate’ this into their lives.
Whilst I’ve had countless medical consultations, I’m still pushing for more support/help:- I’ve a forthcoming Psychiatric and Nuerology appt and also hoping to go back to a long haul clinic to learn and share.
It’s only recently that I’ve recognised how much I’ve changed over those 4.5 years - weight, confidence, not going to any social occasions, avoiding crowds, tinnitus, memory loss, still no appetite….im finding it tough currently to be honest and I’m really aware of the impact on my wife - who has been amazing- however, I do feel for her.
I know I’m luckier than many, however, I’m really struggling to find a glimmer of hope that might signal a return to me - although I know I need to live with it.
Apologies for the outpouring - but glad to be with you all.
Hi, my name is Karenhorses. I'm here because I'm feeling so lonely even when I'm around others. I was forced into disability retirement, covid hit, my husband has a career and narcolepsy. my best times are mornings till 3. When I'm totally alone. I have zero heat tolerance and live in Arkansas.... so Summer has been hades,literally! do to MS and retirement, covid, I've lost touch with even acquaintances. Is there anyone out there?
I awoke this morning after yet another night on the sofa with Binks, my wee dog. I have chronic insomnia and so much pain I can’t climb the stairs. I was in luck last night, the start of a meteor shower, so many shooting stars, who needs fireworks? A brief glimpse the Northern Lights and a cup of tea at 3 o clock.
I’ve just kissed my husband, Paul before he goes to work. Every morning I make his sandwich, yes he could do it himself and happily would, but, it’s my little way of paying all his kindness back.
Ever since I had my Covid vaccine 3 years ago I have a shingles type rash in my genital area. It’s so, so painful, it’s like having pants full of fire ants.
It’s been a very, very rough 4 month’s, I’ve fallen down the stairs 4 times, bruised myself very badly, I’ve had Covid, 2 very dear, very fit friends died, far too soon. One a super fit, marathon running woman, days from her pension, had a back ache, went to the doctor and was told she had stage 4 pancreatic cancer, she lived just 11 days after diagnosis. The other a lovely, gentle bear of a man died from heart failure. One 65, the other just 60. It made me reflect that despite this godawful disease of mixed connective tissue disease, fibro, Behçet’s and rheumatoid arthritis, I’m still here. I’m so in tune with my body and its numerous creaks and groans I’d notice change. I miss them and will plant them roses in my rose garden. I’ve planted too many over 3 years.
Today I’m taking Binks my puppy out to the forest, it’s literally just our my door. I use my wheelchair, she runs ahead. I hope to sew butterfly wings for my granddaughter Emma and make a unicorn hobby horse.
I’m grateful for every moment of every day, could it be better? Of course, but, it’s still pretty wonderful.
I have been struggling so much for so long. Today, I just feel like it is all too much. My whole life I’ve had one illness after another. Examples: frequent strep throat and tonsillitis as a kid; heavy periods and anemia as a teen; migraines began with menstruation but never diagnosed until my 20s; procrastination & disorganization with school/work (likely adhd); a rare kidney problem & kidney stones; hysterectomy (after 3 children) because of endometriosis & a painful adhesion; recurrence of a kidney problem that was undiagnosed for years; worsening of migraine; covid with long covid resulting in joint pain, brain fog, extreme fatigue, headaches, insomnia, hot flashes; a child with extreme anxiety/SI/SH with school avoidance; my husband is resentful because he feels I have not given energy to him for years & he no longer has energy to give toward me. I feel like a complete burden. I physically and emotionally cannot do what I need to or should be doing on a daily basis. I quit working 3 years ago because of the complied list (with my husband’s support at the time). When I think about it all, I feel like I have not been emotionally or physically supported by my partner. I don’t even know how to ask or communicate. If I’m direct or short, obviously it doesn’t go over well. It seems everyone under my roof responds best to my husband because I am too soft. I don’t have anyone to talk about this with unless it is a paid service/therapy. And it feels like emotional cheating voicing vulnerability here. I really am lot looking for sympathy. I would love solutions or advice or a hug.
Living with long COVID can feel like an uphill battle, both physically and emotionally. One thing that makes a difference is having the right emotional support. 💬
What emotional support do you find most helpful in dealing with long COVID? Whether it’s talking to friends, therapy, mindfulness practices, or something else entirely—let’s share what’s been working. Your tips could help someone else feel a little less alone. 🤝💚
#longcovid #COVID19 #CheckInWithMe #Spoonie #ChronicIllness #PosturalOrthostaticTachycardiaSyndrome #ChronicFatigue #Fibromyalgia #MentalHealth
Hi, my name is AnneD. I'm here because I have Long Covid, ME/CFS. Basically, I’m just sick and at home all the time. I’m an artist who doesn’t have much energy to make art, but I still love it, and I love art history. I have empathy for all of us who are dealing with grief, loneliness, and isolation