Coronavirus Disease 2019 (COVID-19)

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Coronavirus Disease 2019 (COVID-19)
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I'm new here!

Hi, my name is tmoore. I'm here because

#MightyTogether #Anxiety #Depression #Migraine #PTSD #ADHD #RheumatoidArthritis #OCD I have struggled with the majority since elementary and aware of my challenges with others occasionally noticing through my life if they became close. I have not really minded being alone except for the last 6-5 years and after 2 not at fault auto accidents i suffered head traumas with onset seizures and pain from back and neck injuries. I a pretty good ability to set goals and achieve. Covid was difficult as i had not thought of a pandemic affecting my life or cause me to look at my life. I was forced to file SSDI. I can never return to work in any of the 3 areas previously. I still am working through accepting my limitations.. However the most difficult aspect is I have had my "next chapter" developing since I was 14and i have believed so much in that when time had come to slow things down I would move into that chapter of a less congested, slower pace, safer, peaceful lifw where i could still care for my self and enjoy all that i have found enjoyable and fulfilling. Some have claimed therapeutic.
That is on a homestead, working towards helping my community by supplementing in food source, making medicinal remedies for under privileged, and hellping individuals who may want to learn or help in protecting occasionally for transitioning (as a resource Not as running a program) and a i thought to maybe a alternative provider for youth for community service but not like programs of sitting in a room, or cleaning city site but to come and put energy to use in hand tools, bee keeping, or at their own pace throwing mud on a wheel.. I am aware there aee negative to all but...I have not felt any other direction to more valuable, rewarding and worthwhile to do for me.
i never knew how hard it would be, just to survive and your dream the source to sustain. And now iI see if this my challenge, I cant be alone. It's difficult using your voice when you have not been heard and less significant. There needs to be change is many things and Idont have the resources but im willing to use my voice for others. So im here to attain resources, tips, ideas of managing my diagnosis and tips and ideas that will better my days

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I’m new here!

Hi, my name is LoreasaurusRex. I've been diagnosed with Long Covid, idiopathic tachycardia, idiopathic radiculopathy, hypertension, hypothyroid, PCOS… I’m anxious about starting a new prescription for gabapentin.

#MightyTogether

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Crimson Red by Melanie R.

Crimson Red by Melanie R.

Crimson red-
against the snow.
My heartache bleeds, and nearly froze!
I turn to you
and say a prayer,
release me Lord,
from pain and spare
my heart from this deep suffering.
The ache.
The hurt.
My mind wandering.

Crimson red.
Down and blue.
White of snow.
Thoughts of you.

Buffalo blizzard.
A frozen cry.
Of time felt lost, and days gone by.
Your memory will never fade.
Swirls like wind, still falls like rain.
Our hearts hold onto memories,
Days up,
then down…like swaying trees.
Crimson red.
Hearts of truth.
Cold of snow.
Thoughts of you.

Red cardinal singing
love’s forever song of faith.
Holy water springing;
by pearl of heaven’s gate.
A timely whispered love song,
her music sung deep blue.
Sets free-
releases sadness,
as spirit’s called to you.
Consecrated!
Soul guided!
As He has heard our cries!

He knows of all the suffering,
every groaning,
every sigh.

Crimson red-
the blood was poured;
robes washed white-Calvary brought forth.

A poem/song about the untimely loss of my mother in the winter of 2021.🌹

#Grief #COVID19 #MitochondrialDisease #AutoimmuneImmunodeficiency #Dysautonomia #ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain #PrimaryImmunodeficiency

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I'm new here!

Hi, my name is Michellelw. I'm here because I was diagnosed with EDS, Fibromyalgia and chronic migraine after 5 scary months of dizziness and heart issues which left me unable to care for myself. This is all new to me so I’m just looking for people who have some knowledge and helpful information. I’m exhausted and in pain, feel like my body fights me every day and I’m just getting over Covid which is just another wrench thrown into everything else.

#MightyTogether #Fibromyalgia #Migraine

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I am done todaying

I got picked up around 1015am for my 11am appointment... that is 8 minutes from my apartment. So I got there almost 45 minutes early. Luckily my nurse took me early. It was like everyone is going so very slow. I had to go to the on-site pharmacy to get my flu shot and COVID booster. The office rewards healthy habits. For instance today for getting my booster I got a $25 gift card for groceries. Then I got another gift card for having done my labs at some point in 3 months.
*****************,**********small nap***************
Oh hey, I didn't finish my post. Ummm...hi?

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Friends

I miss my church family.
I really miss them.
Last time I felt like this was around covid time. Then I managed to meet them.
I stopped going because I got offended by something someone said.
Im currently on the psych ward.
Ive had four days in a row of having 4 good days. Then today. A bit blaaaahhhh lazy. And bored. I need to keep staying strong. Make strong decisions. While being kind to myself. Some of the staff are more caring than others.
I feel so tired and lethargic from the meds. Also the patients are noisey.
One day at a time. Hope all mighties understand. These are the things I need right talk to the staff about more.
I seemed to close up when I am approached by the psychiatric nurse.
I need to just keep being honest and open. Not to be overwhelmed by staff who are there to help and support me.
So I gt better and know and tell them that I need. Im really struggling with just telling them how things are.
That Im scared of eviction. Due to rent arrears. The landlord issue Is very heavy now. Whenever I call to pay the payment doesn't go through.
I feel so lonely and worried.
#Depression #Anxiety

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With flu hitting hard this winter, how would protecting ourselves with vaccinations affect MS and autoimmune conditions?

This Ask an MS Expert segment with Dr. Lisa Doggett looks at the different shots (flu, COVID, RSV, pneumonia, etc.) and autoimmune concerns. Doggett herself is living with multiple sclerosis.

#Vaccinations #MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

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Getting worse

Hi my name is Heimo and I'm new here. Just wondered if anyone has had the same experience as me and what's helped. I was diagnosed with fibromyalgia and chronic fatigue syndrome/me 30 years ago when I was about 14. At that time there really wasn't any help offered besides, you need to rest. Throughout the years I've had times where I've felt better and been able to do more, sometimes for years, and times where I've been on bed rest for several months. The last few years I feel like my symptoms are getting worse. I have headaches almost constantly, pain in my joints and in all my typical fibro spots, back of arms around my bra line, upper back etc....is all getting worse and I feel like I'm constantly getting infections or feel like I'm trying to fight something off, I've had shingles twice this year also covid. Dr's of course have done all kinds of blood work and find nothing new but I feel like something is being missed. Any suggestions?

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