Gastroparesis

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Gastroparesis
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    anyone with #Gastroparesis vomit or almost vomit if they hold their breath? I do and I don't know how I'm supposed to take my asthma inhaler with this.

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    Need Support & Community Please?

    Hi, my name is Rebecca, I'm 48 years old and have struggled with many health issues for 15 years. Bad back surgery 3 years ago in which I now have a vertebrae slipping and its bone on bone when I walk. Last year I was diagnosed with Ischemic Colitis after 3 years of suffering with my stomach and the last year my intestines. I've had been diagnosed before with IBS, IBS-C and given medications in which none worked or made it worse. In total In the last 6 months I have lost 55 lbs and kept telling them it felt like my food was rotting in my stomach for the entire time. I had another upper scope a few weeks ago and the stomach emptying test this past Friday. The DR called yesterday with my results and I have, 3 years later... Gastroparesis!!! My Vagus nerve is barely working! 😭😭🙏 I'm relieved to finally have a diagnosis but very upset it took this long! DR's don't listen to us anymore! We know our bodies! I haven't been able to fully process this yet or what's to come, I just need support, friendship , community. Thank you all 💞 #Fibromyalgia #ischemiccolitis , #Gastroparesis #Anxiety #Depression #help

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    What's something you wish you could tell others about your experience with gastroparesis?

    <p>What's something you wish you could tell others about your experience with gastroparesis?</p>
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    Community Voices

    A Little About Me

    My name is Tonya. I am a chronic illness warrior and am passionate about advocacy. I love to share my story with anyone who will listen.
    I have been featured on my local news station and interviewer for our newspaper.
    I have numerous conditions such as Gastroparesis (g tube, port, gastric stimulator and on TPN) . I have Primary Immunodeficiency and infuse Hizentra. I have Ehlers Danlos, Autonomic Dysfunction and Mast Cell Activation Syndrome. I have Chronic EBV and had an Acquired Hemaphagocytosis due to being immunocompromised and catching Covid-19 earlier this year. I deal with migraines, hypotension and hypoglycemia as well.
    I'm currently writing for a migraine site and volunteer as an Oley Ambassador.
    My goal is to bring awareness of little known things about my conditions. I am always bringing new information to my doctors. They appreciate it.
    I hope to learn from you all and hopefully, you'll gain insights from me.

    #PatientAdvocacy #chronicillnesswarrior #gastroparesisawareness #GulfWarSyndrome

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    18 months later as a tubie

    I know it has been a while since I last updated y'all on my progress with living with a GJ tube. It has been an experience! I've had to 9 tube replacements due to my tube moving, twisting and countless clogs. After so many issues, my gastrointestinal surgeon felt that I needed better assistance from the Internal Radiation team or IR for short. With the IR team, instead of the GJ tube being replaced through endoscopy and replace while I am awake but giving something for pain. The first time I had it done, I was very nervous because of knowing I would be awake for it. I was able to watch the team set up the room with the monitors and the x-ray machine over me so they can see where to go. I have a completely different tube than I had from 11 months ago post. The photo above is me now. I can say I have had only 2 clogs with this new tube and it was so easy to unclog with a can of Coke. I'm still adjusting to live with having this GJ tube forever but I'm being patient with myself during the process.
    #EhlersDanlosSyndrome #Gastroparesis #GJtube #FeedingTube #LifeasanEDSerwomanofcolor #MastCellActivationDisorder #posturalothostatictachycardiasyndrome

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    Selfcare Saturday

    Good morning everyone! what are your plans for this weekend? or self care ideas? just saw this and thought it would be a great reminder for everyone to remember that you and your health are your biggest concerns.I definitely struggle with Saturday plans and feeling required to participate regardless of my spoons sometimes. The main thing is that, any plans, weekend or not never should mean more than your physical and mental health. Happy Saturday warriors!

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    #EhlersDanlosSyndrome #Dysautonomia #MastCellActivationDisorder #ChronicIllness #Anxiety #ChiariMalformation #PosturalOrthostaticTachycardiaSyndrome #funny #Gastroparesis #Spoonie #SpoonieProblems

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    Do it on my own

    So I have gastroparesis, gastritis, ibs&c, and something else I can’t remember the name. My dr wants to load me yup with pills. I take the highest amount you can take and still doesn’t work, I am also allergic to a lot of medicine.

    So I am trying things on my own. Since my dr, tells me I’m fine and I’m also not bad off yet to do anything about. So yay let me suffer great quality of life. Anyway I’m trying different kinds of food.

    Is there anything out there that you try and has help? Any kind of product? Anything. I’m tried of being sick either throwing up and or so constipated, I’m miserable. #Gastroparesis #IrritableBowelSyndromeIBS #Stomach #Gastritis

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