Gastroparesis

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Resources

Gastroparesis can be heavy to carry and I stumbled across some really great resources that cover a lot of bases. In my time with GP medicine and understanding has catapulted forward so I know one day we will get relief and hope one day a cure. I have no affiliate to these resources just too good to not be put out there to the people who come here together.

1. Book: Living (Well) with Gastroparesis by Crystal Zaborowski Saltrelli. This is the most comprehensive book I've come across for GP and covers a lot of areas. She has also written other GP book on diet and cooking with GP.

2. Online Program Free - Living Well with Gastroparesis Program. www.livingwellwithgastroparesis.com/thriving-program

3. Online resource: www.livingwellwithgastroparesis.com

4. Online Resource: The Western Sydney GI Motility Disorders Unit does a lot of great work. If you gastroenterologist is not familiar with gastroparesis they can refer to specialist experts on the condition who can help assist in the management of your condition and care. helphttps://www.westernsydney.edu.au/gimotility/gi_disorders/Gastroparesis

5. Free online program: Gastroparesis Mind Over Gut Resilience Program. Can help manage mental health impacts of the condition. Intervention Program | Gastroparesis Resilience Program

Knowledge is key for advocating for your health and wellbeing. Note that not all doctors get it and it can take a little time to find a doctor that's suited to you and your condition. Wishing you better days ahead xx

Living WELL with Gastroparesis

Information and resources to help educate, empower and inspire you to live WELL with gastroparesis.
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Hi from UK - newly diagnosed

Hi, I was diagnosed with gastroparesis a few months ago. Im on meds for it which have helped me a little, altho I wish there were decent antisickness meds that actually worked and/or didn't have bad side effects!..

I feel nausea a lot but rarely vommit, so getting drs to take me seriously has been difficult! Im seeing a specialist soon to discuss the possibility of a gpoem procedure and im nervous because i just want him to say yes lets try it. Im hopeful it could make a difference.

Im working and socialising very little at the moment due to the nausea and fatigue so im really hoping for some improvement 🤞

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I'm new here!

Hi, my name is mari101_2000. I'm here because I think online support is critical. I'm a 48-year-old mom of two. Brittany is 28 and is on the autism spectrum and has PTSD. My son, Tyler, is 24 and diagnosed with bipolar and ADHD. He is unmedicated by choice. He's been sentenced to three years for probation absconding. We don't have a relationship at the moment. I've been through a lot of trauma, I'm either MDD or Bipolar 2, and I don't know why they can't tell the two apart. I have CPTSD, depression, and anxiety. I also have a chronic illness.. I have very bad gastroparesis, and it's really affecting my life. I also have horrible arthritis, fibromyalgia, and back and hip pain. These are the things that I'm struggling with. Brittany had a baby that she'd worked very hard to bring forth. She had Everleigh, and she was a stunner. Five weeks later, she died of SIDS. So we are all grieving her. Also, we lost my mother to Alzheimer's about 6 months later.

Sorry, I just spilled my guts. Hope to make some connections!

#MightyTogether #Anxiety #AutismSpectrumDisorder #Depression #PTSD #Grief #Fibromyalgia #Migraine #Gastroparesis #Arthritis #COPD

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I'm new here!

Hi, my name is Katie57. I'm here because my husband has Gastroparesis and can't find a doctor to treat him. He had a GP specialist until two years ago and he left the GI practice, the GI practice didn't replace him. He saw a different doctor in the practice and was basically told there was nothing that could be done for him. I would like to learn what other GP sufferers do to get through each day. The poor guy is sick constantly. The only thing that helps somewhat is medical marijuana capsules. Zofran, Phenergan, Compazine don't help any more. It's been 12 years since diagnosis but two years with no help. Hoping to glean something, anything that would be helpful for him

#MightyTogether

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I'm new here!

Hi Hi, my name is Aslan777. I'm here because I care for my husband who has gastroparesis, anxiety, and ADD, along with Asperger‘s. I would like to have more ideas on how to make the food that to me basically has no nutritional value, but it’s the way he needs to eat. I get confused as to what is we meats, and how to get enough vegetables in since there are very few options. Thank you for your input.

#MightyTogether #Anxiety

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I’m new here!

Hi, my name is GracefullyDisabled.
I was diagnosed with hEDS, POTS, and MCAS several years ago and was recently diagnosed with gastroparesis. I’m here to connect with others like me—share health tips and resources and engage in community.
#MightyTogether #ehlers-DanlosSyndrome #PosturalOrthostaticTachycardiaSyndrome #MastCellActivationDisorder #Gastroparesis #Anxiety

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