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I'm new here!

Hi, my name is Thefight7. I'm looking for foods that are good to eat for Gastroparesis. I am struggling with what to eat and its very frustrating and depressing. I am tired of being "sick". I just want to feel "normal"

#MightyTogether #Anxiety #Depression #Fibromyalgia #PTSD #Gastroparesis

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I'm really struggling right now. I'm in a really dark place. Dealing with chronic migraines, gastroparesis, anxiety, depression, and hashimotos. I have no job. I can't make it a day without a migraine or vomiting from the gastroparesis. Soon I will have my first gyno appointment due to really horrible periods. It seems like I'm always in pain. I'm worried about what they might find. My mom, aunt, and grandma all have endometriosis. I don't know what the gyno will ask or what I should be sure to tell them. How do you tell what's normal and what you should tell your doctor? How do you tell what is from your known health conditions and what could be something else? I need to find a job, but each day I seem to feel worse. I don't feel like I can be reliable and I can't stand that. It makes my anxiety and depression worse.

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I'm new here!

Hi, my name is Sunflowers70. I'm here because I have been misdiagnosed for over 20 years & I finally got diagnosed with gastroparesis 2 years. After I eat just a little I have stomach pain & also I get lower back pain at the same time. Didn’t realize that my back pain was because of my stomach pain. It’s so hard on me because all the foods I love I can’t eat anymore! My friends want me to go out for lunch & there usually isn’t anything I can eat on the menu & they don’t understand….

#MightyTogether #Anxiety #Gastroparesis

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I’m new here

Hello! I’ve been diagnosed with ehlers danlos syndrome. I believe my disease doesn’t define me and I’m trying to live according to that mindset (also acknowledging and embracing my illness)

I’ll be happy to exchange some useful tips and also chat with people that is living something similar 🤍

#EhlersDanlosSyndrome #Dysautonomia #MastCellActivationDisorder #SjogrensSyndrome #PosturalOrthostaticTachycardiaSyndrome #Gastroparesis

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My stomach has been hurting off and on for years, but the last few weeks it’s been hurting almost constantly. I can barely eat anything because I feel so full that I can’t swallow. I’m not vomiting which I know is a big thing for gastroparesis. But I have EDS which makes me think that it’s a good possibility. Is this close to anyone else’s experience? #Gastroparesis #EhlersDanlosSyndrome

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Open Letter to Dr. Adam Farmer: An Emotional Goodbye to the Epitome of What a Doctor Should Be

Part 1 of 2 I wouldn’t have believed it myself that you, the doctor who does my colonoscopies and gastroscopies, would become my favourite, but it’s true. And now you’re leaving the UK to fulfill your doctor-dreams in the U.S.

I can’t live without you.

This may sound metaphorical, over-dramatic, and creepy, but I’m not convinced any of those are true. (Although if I am diabolically dependent, I might not be the best judge.) Let me prove to you why my devotion is perfectly placed.

From the beginning, you treated both my husband and me with respect. Many doctors make us patients earn it, which I understand, but it’s hard work. We’re already sick. When our rationed energy has to be spent proving ourselves to be well-researched, in-tune with our bodies, and willing to do our part for our health, we’re left at a deficit. You took the ‘innocent until proven guilty’ approach to deference, and you didn’t have to. I hope in our case, it was easy.

It soon became apparent that our relationship was one of equals. Of course, not in the medical training sense. But you’ve always talked to us as intelligent people, and as an equal part of my health equation. We’ve been a team, working toward the best for my health. “Call me Adam,” you said, some months after ‘working’ together. I couldn’t do it, because calling you “Doctor” was a way to show you my respect. Still, that you offered me your given name reinforced our human equality.

You also believed me, which isn’t a given for so many patients–especially those in pain. You listened to my symptoms, took accurate notes, asked key questions, and took immediate action.

“They didn’t do a gastric-emptying study before implanting the gastric pacer?” Your tone was steady, but we could see the shock in the way you pushed your shoulders back in your chair. “That’s the first thing we’re going to do. I’ll also order a defecating-proctogram. We need to find out what’s really going on.”

To be honest, Dr. Farmer, I can’t say that I thank you for the proctogram. In my forty years of illness and hundreds of tests, sitting on that commode in the centre of the x-ray room with an audience cheering me on as I defecated, was an all-time low. I had to laugh though, as the tears of mortification trickled down my cheeks, because…what else? At least barium, though pumped into every orifice in this case, is painless? And I do thank you for, ahem, getting to the bottom of it all.

Hmmmm. So I was never a suitable candidate for that pacer that caused me so much grief for two years. What did you do? You found me the top surgeon in the country to remove it.

I’m not sure what stage I was at when you called unexpectedly, but I know I was a mess. Yes, you called me (pre-covid) without an appointment just to check on me. It was after-hours. You probably don’t remember that phone call, but I forever will. That is the stuff of an excellent doctor.

You also might not remember that time right before my most recent gastroscopy when you greeted me with a hug. Right there, in front of the hospital staff. It felt a hug of empathy, but also of friendship. I hope the staff were taking notes on compassionate care and how to see a patient as a person.

My situation is currently dire. I had improved for a while. You tell me that is the nature of gastroparesis. Up and down, but all the while, sliding down. And here I am, barely able to eat and getting schooled on feeding tubes. Your eyes oozed kindness as you took, what, an extra half an hour  in that appointment, to discuss it all? But that’s no surprise. You’ve always been kind and patient. Never once have I felt rushed out of your door.

And even in the dire, with your stark honesty about my diseased body and what is yet to come, you offered hope. Still, it was hard not to cry as we learned the pros and cons of the different surgically embedded tubes, but it would’ve been okay if I had cried. You are safe.

When you said you’d be leaving in two months, panic choked my gut and throat and I almost couldn’t speak. Did I mention my nausea? Well in this moment it wasn’t the disease. Can I live without you? Will I live without you?

Self-preservation, or perhaps selfishness, joined the panic and I blurted out, “You’ll see me one more time before you go, right?” Despite the overwhelming list of patients you need to wrap up with, the very next day I received a notice of a phone appointment on one of your last days of work here. I’m not lying when I say I cried with relief. Maybe you will still save me. You gifted me two months plus fifteen minutes to cling to that belief.

When it came time to leave after the appointment riddled with tube talk, you asked if we knew where the phlebotomy area was to get my bloods done. “Yes, it’s in outpatients, right?

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