Gastroparesis

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What do you wish someone would ask you?

Mighties, have you ever wished someone would ask the right question — one that shows they see you and truly care, especially when you’re experiencing a health flare or when life just feels like too much? If so, what do you wish someone would ask you? Maybe it’s "How are you really feeling?" or "Is there anything I can do to help?" or even something as simple as, "Do you need a break?"

For Mighty staffer @sparklywartanks , it’s "What can I help you with today?" or "Do you need anything? What can I do to support you?"

What about you?

#MightyMinute #CheckInWithMe #ChronicPain #Spoonie #Selfcare #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Depression #BorderlinePersonalityDisorder #PTSD #Fibromyalgia #Gastroparesis #ChronicFatigueSyndrome #MultipleSclerosis #Lupus #RheumatoidArthritis

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My dogs my motivation

I am glad to join this group as no one understands the bond that I have with my two dogs. I had an atypical case of guillian barre where I lost became weaker and weaker over the course six weeks to the point where I could not get up, walk, or sit up unassisted. One of my dogs was unable to go up the stairs. In the last few weeks before I went into the hospital I spent most of my time upstairs in my bedroom and the bath across the hall. I missed my dogs terribly. They didn’t see me differently I was still the person who gave them snuggles and they would still light up every time they saw me. They were the only ones who could make me forget the horror I was going through. I would gather all of the strength and energy I had to scoot down the stairs to see them. They brought me more love and comfort then anything else could at the time. For reference I have two cute gentle and lovable giant dogs so carrying them up the stairs was not an option. They continued to bring me joy and happiness post hospital stay and throughout my journey to recovery. They even learned to walk while I “chased” them trying to get their toy. The thing about dogs is that no matter what state you are in they will always see you as their person. I don’t think any of my family truly understands how much they helped me get to where I am today or how much they both truly mean to me. They kept me going when it would have been easy to give up. Even now while I have mostly recovered from my guillian barre they bring a smile to my face when I have bad days with my health from my other illnesses. #womansbestfriends #GuillainBarreSyndrome #Dysautonomia #Gastroparesis #SmallFiberNeuropathy

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Write a three-line poem describing what self-care looks like for you today.

Hi Mighties! ☀️

Let’s write some bite-sized poems. In three lines, share what self-care looks like for you today. Is it getting some fresh air? Curling up with a good book? Or simply taking a moment to breathe and reflect?

Here’s Mighty staffer @sparklywartanks poem:

Glee fills the room as we connect with each other.
Our pens lightly dance across our journal pages.
There’s nothing like the warmth of beating hearts in shared creativity and community.

Share your poems below! 📝

#MightyMinute #CheckInWithMe #ChronicPain #Spoonie #Selfcare #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Depression #BorderlinePersonalityDisorder #PTSD #Fibromyalgia #Gastroparesis #ChronicFatigueSyndrome #MultipleSclerosis #Lupus #RheumatoidArthritis #CheerMeOn

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_____________ helps boost my confidence.

Living with a myriad of symptoms due to your health can make it difficult to feel confident, especially on days when your body doesn’t cooperate or your energy feels depleted before the day even begins. (If you can relate, you’re definitely not alone!) However, this doesn’t mean we can’t work on building confidence in ourselves. Despite our health conditions, we are still worthy of feeling good and knowing our value.

So let's talk about it, what are some things you do to help build or boost your confidence?

⭐️ P.S. You are beautiful, even if you don’t feel it today. If you’re looking for tips, inspiration, or something to read on the topic, here’s a Mighty story you can check out:
10 Strategies to Help You Feel Beautiful When You're Chronically Ill

#MightyMinute #CheckInWithMe #ChronicPain #Spoonie #Selfcare #ChronicIllness #Disability #RareDisease #MentalHealth
#Anxiety #Depression #BorderlinePersonalityDisorder #PTSD #Fibromyalgia #Gastroparesis #ChronicFatigueSyndrome #MultipleSclerosis #Lupus #RheumatoidArthritis #CheerMeOn

10 Strategies to Help You Feel Beautiful When You're Chronically Ill

"It’s hard to feel attractive in your own skin when you feel like your body is turning on you."
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New member old friends with gastroparesis

Hi, I am new to The Mighty but I have had gastroparesis for the last ten years, (only 8 since official diagnosis). I am excited to join a group with those who have this same difficult and stubborn condition and who want to try and focus on the positives.

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How do you manage physical discomfort, pain, or fatigue while in bed?

There can be a range of reasons why we may feel physical discomfort, pain, and fatigue while spending our days in bed—from health symptoms and muscle tension to stiffness, even stress. Finding relief and some level of comfort can be a constant challenge, but it’s also essential for maintaining a sense of balance.

For some, it may involve using supportive pillows or cushions to adjust their body alignment and alleviate pressure points. Others may find relief through gentle stretches or movement, when possible, or by using heating pads or cold compresses to soothe sore muscles. Breathing exercises or practicing regular hobbies can also help reduce stress and ease the mind, which in turn can ease physical discomfort.

Sometimes, it’s about creating a comfortable environment—adjusting room temperature or dimming lights to promote relaxation. And for many, reaching out to loved ones or healthcare providers for advice or support can provide both physical and emotional comfort.

What helps you manage physical discomfort, pain, or fatigue while you’re in bed?

#ChronicIllness #Disability #ChronicPain #Pain #BackPain #Spoonie #ChronicFatigue #Fibromyalgia #Neuropathy #MyalgicEncephalomyelitis
#Lupus #Cancers #Gastroparesis #MultipleSclerosis #RheumatoidArthritis #InflammatoryBowelDiseaseIBD #ChronicEpsteinBarrVirus #MentalHealth #ChronicDepression #Anxiety #PanicAttacks #InvisibleIllness
#alwaysinbed

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