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Just went on my first 2-mile walk after being mostly bedridden for ~2 years while I waited for surgery. It's been a long and difficult recovery, but it was so lovely to finally get outside! However, this old bog witch's knees are creakier than I remember...

#CPTSD #ComplexPosttraumaticStressDisorder #patientadvocate #ChronicPain

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Best Gift

I have Gastroparesis and the sloth is the animal used to represent it as our digestion is excessively slow, like a sloth. This shirt was a Valentine's gift from my son. It just arrived and I love it.
#gastroparesisawareness #slowdigestion #chronicillnesswarrior #oleyambassador #patientadvocate

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Feeding Tube Awareness Week (6-10)

Feeding Tube Awareness Week is celebrated nationwide the 2nd week of February annually. There are many reasons why one would have any type of tube. I have Gastroparesis, which means paralyzed or partially paralyzed stomach. I got my first tube, which was a jejunal (small intestinal) feeding tube, in 2017. The reasoning is because other steps we'd taken were not enough. I then switched to a gj (gastrojejunal-one part stomach/one part Intestinal) tube. When I stopped tube feeds, I got a regular g (gastric) tube. My current one is for venting/draining only. You may say yuck. I say helpful.
Feeding Tube Awareness Week

Feeding Tube Awareness Week

Feeding Tube Awareness Week raises awareness about tube feeding and its positive impact.
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Friday Vibes

Good evening! I hope you all had a great week. No matter what you go through, you can choose how you'll respond. In all things, choose to be joyful. No one can take that away.
#chronicillnesswarrior #imjoyful
#patientadvocate #oleyambassador
#Gastroparesis #RareDisease #tpndependent
#EDS #Zebra #Dysautonomia

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HPN Awareness Week

It's HPN Awareness Week!! I have been on HPN since Sept 2019! This has truly been a lifesaver. I have more energy and have even gained weight back on it. So thankful for HPN (TPN)!!!
#HPNawarenessWeek #oleyambassador #tpndependent #chronicillnesswarrior #patientadvocate


Dysautonomia Awareness Month

I know this month is full of awareness. For me, it represents Dysautonomia Awareness (Autonomic Dysfunction). It affects lots for me such as Orthostatic Hypotension, Hypoglycemia, Gastroparesis, Migraines, temperature dysregulation, Neurogenic Bladder, and much more. Check out the article for more information.
#chronicillnesswarrior #patientadvocate

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I'm a Warrior

#chronicillnesswarrior #gastroparesisawareness #socialhealth #patientadvocate #TPN #rarediseaseawareness

Yesterday I had several procedures done 3 hrs from home. This picture was taken on my way. I have Autonomic Dysfunction which causes many issues. I had to have my esophagus dilated again, an endoscopy to recheck a gi bleed, g tube for venting switched out, and colonoscopy due to polyp history. Thank goodness no more polyps this time. My throat is sore, but will get better. My g tube button was starting to become buried, according to the dr. My colon was significantly tortuous. Will be seeing a colorectal surgeon soon to discuss options. Make it a great day everyone!!