Holy cow. You guys.
Today was my last IV vancomycin!
I can’t say it will be my last dose forever ( because knowing my life it will most likely happen again.) I delivered some donuts to the nurses ( cause honestly we don’t say “thank you” enough in this world, and nurses are probably the least thanked people on earth!) And I can’t tell you how grateful I am to go home without an IV in my hand.
And NEXT WEEEK I CAN SLEEP IN ! ( o my gosh they realization just hit me and I did a mini happy dance 😂) Ending this dose of IVs is weird .
Cause this medication, came with a “high dose “ of realizing that I’m sick.
The part that’s been hardest for me today. Is that I feel like I’m getting a cold.
I can feel my Lungs slowly going backwards.
( don’t worry I sent my Immunologist a message)
I’ve tried to do more “normal “
Things today. And I litteraly just had to sit in the kitchen. Cause I just had a weird wheezing attack trying to make a sandwich .
But when a family member said I was “ Fragile “ today.
I took it as fighting words.
Because I don’t see myself as fragile.
But I am.
I’ve been wearing mask in public ( wore them in 2 stores in my home town today which is HUGE for me )
And was met with nothing but Kindess.
But I still cringe everytime I put the mask on.
Because it makes me “look like I’m sick “
My “favorite part “ of my illness. Is that it’s invisible. That I can hide it.
But I have a feeling. That my illness is going to become harder to hide as my life goes on.
And I have to learn to be ok with that.
Which is harder than I can even describe.
But today, I’ll take the Victory.
That for a while I’ll be IV free.
I’ll soak in the bath, with no reprocussions.
And I’ll celebrate today ❤️
No matter what tomorrow may bring .
I would like to try IV saline for my pots. I have tried all of the usual suspects drink water, eat salt, exercise protocols, med abc, med xyz, raising the bed you name it we’ve done it. I am ready for some relief and i’ve heard good things about IV saline and I want to try it however I am not sure how my doctor will feel about it. How do you get my doctor to let me at least try it? Has anyone tried IV saline?