hospital

Day one in the Hospital for my knee replacement. The staff has been so kind. They say the surgery went well. Cat naps for the rest of the day, tomorrow the work starts.. #nurse #nursing #night #surgery #Hospital

Symptom management when you live with a chronic health condition can be challenging, especially when you only have so much energy to work with on any given day. It can sometimes feel like a guessing game of how much you can get done, right?

What is the most effective way you’ve found to measure how much energy you have to complete your daily tasks? How do you delineate your responsibilities if needed or slow down the pace?

#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Hospital #Cancer #Anxiety #PTSD #CheckInWithMe

Living with one health condition or two... or five… can feel like a roller coaster ride sometimes, especially when symptoms overlap or egg each other on. Depending on the time of year, and whether or not you have a diagnosis that goes in and out of flares/remission, no day is ever the same.

How do you ride the roller coaster ride with your health? Any tips or wisdom to share?

📕 Check out today’s Mighty read on the subject by EmeraldMaz
themighty.com/topic/disability/roller-coaster-of-fluctuating...

#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Hospital #Cancer #Anxiety #PTSD #CheckInWithMe

When you live with a disability or chronic illness — on top regular everyday living expenses — there may also be additional item or resources that are needed, especially for accessibility, support, or comfort purposes.

What are some of your "hidden costs"?

✨ Need a Mighty story to read? Check out jayquelyn7's related article here:
themighty.com/topic/disability/financial-barriers-higher-edu...

#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Hospital #Cancer #Anxiety #PTSD #CheckInWithMe

Last week I went to three different emergency rooms in the span of three days. I was facing the dreaded status migrainosus with the added bonus of severe nausea and everything else that goes into a protracted migraine attack. I was in the worst pain I think I’ve ever experienced — which is saying a lot.

The ER visits ranged from somewhat helpful to actively harmful. So it goes when bringing a chronic condition to the emergency department, I suppose.

As a chronic illness and rare disease patient with a dash of mental illness on the side, I don’t choose to go to the ER lightly. As I’m sure many of you know all too well, it takes a lot to decide to seek emergency care when you live with a chronic illness or rare disease. We may have medical trauma, distrust in the health care system, or maybe even feel like we don’t deserve acute care when our chronic conditions throw us a curveball.

But, if and when the time comes to go to the emergency room, we have to be prepared. And who better to share advice about seeking emergency care than our community?

So, Mighties, what tips do you have for going to the ER/A&E with chronic illness and rare disease in tow?

P.S. Your answer may be used in an upcoming Rare Weekly newsletter!

#CheckInWithMe #ChronicIllness #ChronicPain #Disability #RareDisease #Migraine #Spoonie #Hospital #MentalHealth

If you have to take prescription medication to manage your health symptoms (there’s no shame in that!), sometimes those prescriptions can be very expensive depending on your health insurance plan and how many medications you have to take.

To alleviate some of those costs and make it more manageable to get the medication you need, prescription discount services like GoodRx can be super helpful. (Mighty staffer Kat recommends using their mobile app!)

What have your experiences been like with prescription cost-cutting services? Did they help you save money? Or were they too much work for what the benefits ended up being?

#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Hospital #Cancer #Anxiety #PTSD #CheckInWithMe