KidneyPain

If your doctor prescribes a new-to-you primary hyperoxaluria type 1 (PH1) treatment, what’s important for you to know before you start taking it?

Maybe you receive the majority of your medical information from your doctor, and defer to their recommendations about possible treatment options. Maybe you would prefer to talk to your loved ones about your options, or perhaps you look to the experiences of other patients who have already tried the medication you are considering.

Share what’s important to you in the comments below. There’s no wrong answer!

#KidneyDisease #KidneyTransplant #LiverTransplant #Transplant #OrganTransplant #kidneyawareness #KidneyStones #KidneyPain #KidneyProblems #RareDisease #ChronicIllness #CKD #ChronicKidneyDisease #PrimaryHyperoxaluriaType1

Living with a kidney disease like primary hyperoxaluria type 1 (PH1) means that taking care of your health can often feel like a full-time job. Maybe you are making phone calls to your medical team, paying bills, requesting medical records, scheduling an appointment, or picking up medication at the pharmacy.

What do you need to get done this week?

#KidneyDisease #KidneyTransplant #LiverTransplant #Transplant #OrganTransplant #kidneyawareness #KidneyStones #KidneyPain #KidneyProblems #RareDisease #ChronicIllness #CKD #ChronicKidneyDisease #PrimaryHyperoxaluriaType1

The symptoms and severity of a kidney condition such as primary hyperoxaluria type 1 (PH1) can vary from person to person, but we want to hear about your experiences. What symptom is the most difficult or challenging to manage?

Fatigue or exhaustion Pain Loss of appetite Fever Chills

Choose from our list of symptoms or share your own in the comments below. ⬇️

#KidneyDisease #KidneyTransplant #LiverTransplant #Transplant #OrganTransplant #kidneyawareness #KidneyStones #KidneyPain #KidneyProblems #RareDisease #ChronicIllness #CKD #ChronicKidneyDisease #PrimaryHyperoxaluriaType1 #PH1

Living with a kidney condition requires a person to make a lot of change — big ones, small ones, temporary ones, forever ones.

Some of those changes can be hard to swallow because they are ones we never thought we’d have to make (like leaving a job). But sometimes the changes can be for the better. Maybe your health made you slow down so you can spend more time with your family. Change up your diet? Focus more on your mental health? Explore a new, more flexible career path?

Share your positive changes with us in the comments below.

#KidneyDisease #KidneyTransplant #LiverTransplant #Transplant #OrganTransplant #kidneyawareness #KidneyStones #KidneyPain #KidneyProblems #ChronicIllness #CKD #ChronicKidneyDisease #PrimaryHyperoxaluriaType1 #RareDisease #ChronicIllness #PH1

For a lot of us, the timeline of our lives can be broken into two parts: who we were before we got diagnosed and who we are now.

That change also comes with a lot of challenges, but not all of them are expected. Has there been one particular aspect that’s surprised you the most (good or bad)?

Maybe you didn’t realize how tough it would be to stay hydrated or keep up with your treatment plan, or perhaps you were shown just how strong you really are.

Whatever they may be, share your surprises with us in the comments below.

#KidneyDisease #KidneyTransplant #LiverTransplant #Transplant #OrganTransplant #KidneyStones #KidneyPain #KidneyProblems #RareDisease #ChronicIllness #CKD #ChronicKidneyDisease #PrimaryHyperoxaluriaType1 #PH1

Kidney stones can be very uncomfortable and painful regardless of what’s causing them, but did you know that there are many causes of kidney stones? Gender, ethnicity and genetics can all affect how likely a person is to experience kidney stones. Some health conditions, such as diabetes or high blood pressure, can also increase a person's risk. Another health condition that can cause kidney stones is primary hyperoxaluria type 1, or PH1, a genetic rare disease that mainly affects the kidneys.

If you or a loved one has ever experienced (or are currently experiencing) kidney stones, we encourage you to talk to your doctor about what might be causing them.

P.S. For more information and resources about PH1 in particular, follow our #PH1 page (or make a post of your own!), or join our PH1 Support group to connect with others who understand.

#KidneyDisease #KidneyTransplant #LiverTransplant #Transplant #OrganTransplant #kidneyawareness #Kidneystone #KidneyStones #KidneyPain #KidneyProblems #kidneyawareness #RareDisease #ChronicIllness #CKD #ChronicKidneyDisease #Diabetes #HighBloodPressure #PrimaryHyperoxaluriaType1 #PH1

What ya got planned for today? Im trying to smile through the pain😎
Cinnamon raisen bread is helping me forget right now... Mmmm... Yummy! #chronicmigraine #ChronicPain
#Fibromyalgia #Arthritis #Depression #Anxiety #Art #Music #BorderlinePersonalityDisorder #PanicDisorder #KidneyPain #Rain #Suicide #COVID19

I haven’t slept very well the last few nights. I woke up early morning around 5 ish to take a potty break and I fell and I’ve fallen a lot lately but this is the first time it’s really scared me. So I’m gonna go back to bed and try starting over because I’m in a lot of pain. Didn’t bump my head just lower back pain and left hip pain. #fall #BadStartToDay #KidneyPain #hippain #ImOnly27 #Lupus #Fibromyalgia #ouch #BabyItsColdOutside #Walker