Primary Hyperoxaluria Type 1 (PH1)

We know how important it is to have access to advice, resources and insights from medical professionals (especially when navigating a scary or mysterious part of your health journey) — which is why we want to help you facilitate those conversations!

In the comments below, we’ll collect questions from this group and pose them to a trained medical professional. We will try and get as many of your questions answered as possible! Once we have the information (it may take us a little while, but we’re totally on it), we will share them as a post within this group. Keep a look out! 👀

🤔 What makes a good question you ask? One that has broad appeal. As opposed to asking about your very specific health experiences, comment with a question that may apply to a lot of people. Those are the ones more likely to get answered by an expert, and they are more likely to help a larger number of Mighties!

🏥 P.S. If you need timely or more urgent medical advice, we recommend you make an appointment with your current provider.

#KidneyStones #KidneyDisease #PH1 #ChronicIllness #AskMe #MightyTogether

Do you or your child experience kidney stones? This group may be of interest! Connect with those affected by primary hyperoxaluria type 1 (PH1), discover resources and events and find support.

#KidneyDisease #KidneyStones

Kidney stones can be very uncomfortable and painful regardless of what’s causing them, but did you know that there are many causes of kidney stones? Gender, ethnicity and genetics can all affect how likely a person is to experience kidney stones. Some health conditions, such as diabetes or high blood pressure, can also increase a person's risk. Another health condition that can cause kidney stones is primary hyperoxaluria type 1, or PH1, a genetic rare disease that mainly affects the kidneys.

If you or a loved one has ever experienced (or are currently experiencing) kidney stones, we encourage you to talk to your doctor about what might be causing them.

P.S. For more information and resources about PH1 in particular, follow our #PH1 page (or make a post of your own!), or join our PH1 Support group to connect with others who understand.

#KidneyDisease #KidneyTransplant #LiverTransplant #Transplant #OrganTransplant #kidneyawareness #Kidneystone #KidneyStones #KidneyPain #KidneyProblems #kidneyawareness #RareDisease #ChronicIllness #CKD #ChronicKidneyDisease #Diabetes #HighBloodPressure #PrimaryHyperoxaluriaType1 #PH1

Making health goals can create a roadmap for you to follow when you’re looking to make decisions about your well-being. It’s not always easy, though, to implement every goal immediately — especially when you’re met with challenges or barriers. This can be anything from health limits and demands, limiting beliefs, finances, your living situation, or even circumstances that are out of your control.

What’s a health goal you set but find it challenging to implement?

#KidneyDisease #Caregiving #Parenting #RareDisease #Transplant #PrimaryHyperoxaluriaType1 #CheckInWithMe

Making health goals can create a roadmap for you to follow when you’re looking to make decisions about your well-being. It’s not always easy, though, to implement every goal immediately — especially when you’re met with challenges or barriers. This can be anything from health limits and demands, limiting beliefs, finances, your living situation, or even circumstances that are out of your control.

What’s a health goal you set but find it challenging to implement?

#KidneyDisease #Caregiving #Parenting #RareDisease #Transplant #PrimaryHyperoxaluriaType1 #CheckInWithMe