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How I Got Mold Living in My Bronchia #Aspergillosis #mold #moldillness #Asthma #Lung #Malpractice #mystory #CIRS

Sometimes things happen and we have no say in it. A strong wind makes a branch fall from a tree, and the branch kills some guy who was biking home after work. People die from a bee sting because they didn't know they were allergic , or antibiotics, or hair dyes, or they fall in a street hole they hadn't noticed.

One fateful afternoon I was walking on a small street towards the bus stop, I hadn't had time for lunch so I was chewing on some almonds. I saw the bus at the end of the street, and out of habit I started running to get it (buses were sparse and never on time). But I had forgotten about the almond in my mouth.

It went the wrong way, and for around 5 long seconds I thought that was it, my time had come, but then I was breathing and nothing happened. Not even a cough. But I felt really unwell, dizzy. I went home and later developed some weird bronchitis, it felt like a finger was pushing into my chest.

It took weeks of bronchitis to get any medical attention, and they confirmed that there was indeed a piece of almond stuck in my right bronchial tube. They also refused to take it out, saying "it will dissolve by itself". I was lucky it was just a small piece, maybe one sixth of an almond, one bite less and I may have died then and there, in that empty alley.

I had to treat aspiration pneumonia (aspiration bronchitis? because there was no pneumonia) for three months, but the sensation of a finger pushing into my chest never left. Breathing was OK, but singing was more difficult than usual and painful, and bronchitis was always there in some form.

Fast forward 13 months. I had moved to the seaside, not least to improve my lungs' health, and something else happened, This time it was somehow to be expected, but I didn't think, I couldn't imagine the far-reaching consequences of that small event. I had joined a choir, and we were singing in different places around the city.

For this one performance we were placed pretty close to an ancient wall, covered with spots of white fluffy mold. I had already developed a terrible allergy (well, CIRS really, that as the experts know, it's not exactly an allergy) to mold from a previous encounter with mold colonisation, but I realised too late that mold was so dangerously close.

When you sing you really breathe in air, in that case I breathed in mold, really deep down into my lungs. I started coughing right away, and asked to change place further away from the mold. The other choir members seemed unfazed. I went home afterwards and I kept coughing. I assumed it was an allergy crisis and didn't think much of it. I tried a lot of remedies I had with me (a full list is in another post) but the cough didn't stop, it was so strong it would shake me from head to feet.

One day at the end of week Two, I coughed the strangest thing: a perfectly spherical little ball (well, not perfectly, it seemed like one side had a small indent, I imagine where it was attached to some surface), the size of a pea,, cream coloured, but it looked solid, and really weird. After a day, another little ball. In a few days I coughed 6 of those little balls and I was getting really worried. Then one day, during a really long and vigorous coughing fit, I felt like I was going to suffocate with some hug chunk of mucus or something coming up from my chest. Guess who that was? I saw a whole group of those little balls, I counted another seven or eight linked together, and in the middle of that the piece of almond! I guess those cream-coloured (or rather, almond-coloured) things were produced by my body trying to digest the piece of almond? This was all very interesting but it didn't stop the cough.

After more "home remedies" (really strong stuff), I fell into a strange torpor and spent two days and two nights unable to get up from the bed, and for the first time in my life sweating so much that I had to change the sheets and/ or my clothing every few hours. At that point I started suspecting that I was not having an allergic reaction.

I woke up on the third day very weak but the cough was almost gone. Sadly some days later (again, the hand of Fate striking again?) I got the flu, and after a week the cough started again and it grew worse. It was a really strange cough, not productive at all, actually my bronchia had never felt drier in my life, all the airway up to the tongue felt dry and raw and scratchy and terribly itchy, I wished I could scratch my insides.

The chest in particular, where the almond had been, was driving me crazy, it was the same sensation as someone were tickling me with a feather, you know, some kind of Chinese torture, and it was constant.

On day 48 after everything started one strongest cough fit broke one rib, the second from the bottom on the right. Sleeping was already impossible because of the cough, but the fractured rib, convulsed by each fit, added an extra layer of agony.

Around the same time, the very dry unproductive cough finally produced something. It was a speck of jet black powder like substance, of the size of a small coin. I had read enough about mold to see this as confirmation that something was going on. A few more days, my first mucus plug (also typical in the presence of fungal infections). The day after, more black stuff. The inside itching was insane.

I had started seeing doctors since Day 30, but the non-specialists only diagnosed (usually just by looking at me, with their diagnostic superpowers I imagine?) allergic asthma appeared suddenly for no reason, or chronic bronchitis. They suffered, all four of them, from some strange hearing problem, they seemed to become completely deaf whenever I recounted my story, only to recover their faculty when it was time to collect their fee.

Clearly their opinion’s worth was directly proportional to the time it had taken them to form it.

I was pretty much abandoned, coughing black stuff day and night, and everything I was reading about Aspergillosis didn't bide well for my singing future. I had to try and save my lungs in some way. Still, I had no idea that the medical nightmare was just getting started. But that belongs to another post.


Hospitals vs Chronic Lyme #ChronicIllness #ChronicLymeDisease #Hospital #Malpractice #Disbelief #Wheelchair #PainMedication #AnxietyMedication

I’m frustrated. Bear with me. Here’s the deal. I’ve had chronic Lyme disease for over eleven years, since I was a child. I had symptoms for years and not a single doctor believed me or helped me until 2018, when I finally landed a diagnosis for not only Lyme, but also the co-infections babesia, anaplasma, erlichia, and bartonella. Long story short it’s been a long and difficult journey.

Recently, within the past few months, I’ve gone downhill pretty rapidly. I have a great new doctor, a Lyme-Literate specialist, who’s treating me to the best of her ability and is in constant contact with me. My worsening symptoms began with a hospitalization for viral meningitis, and then things like nausea, vomiting, weakness, appetite loss, joint pain, shortness of breath, tachycardia, low blood pressure, etc. I’ve been to the ER six times in 2019 for ***extremely severe*** headaches alone. Every damn time, the second I mention Lyme, the doctors stop taking me seriously and refuse to treat me, saying that it’s NOT REAL, when I have blood labs and symptoms to prove it.

Yesterday, I woke up unable to use my legs. If I try to walk, they shake violently and I buckle at the knee. The extreme weakness is coupled with hip and knee pain, numbness in some areas, and tingling. I saw my specialist in the afternoon and she said I needed to go to the ER (again) to rule out anything life-threatening, even though she strongly believes this is because the Lyme/babesia has rapidly progressed into my nervous system, causing weakness, active tremors, and possible partial paralysis.

Of course I was hesitant to come to the ER again, but at least this time, my symptom is tangible and obvious. But guess what - the doctor came traipsing in, totally cocky, and told me my labs are all negative and he thinks I should just go home because I’m making this shit up. The thing is... I. Can’t. Stand. Up. Let alone walk. At all. I had to demand a new doctor, and per my specialist’s advice, demand to see a neurologist, have them rule out every option, refer me to a physical therapist, and fit me for a wheelchair. They’re also denying me pain meds I’ve been prescribed to use to prevent my killer headaches. I just can’t believe I’m encountering such extreme dismissive behavior - but at the same time I’m not surprised.

Has anyone else experienced this??? HELP ME