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Direct messaging frustration # fibromyalgia #Asthma #Arthritis migraine

I get periodic requests to message someone. They usually only say hello. I don’t know if I want to be friends yet. I know nothing about these people or how they decided to contact me. It would be really helpful if those members would tell me something about themselves for example “I’ve seen some of your posts and see you have fibromyalgia. I also fight with this” or anything that would help me know you. Some of these people want to call me dear or beautiful before I have heard anything about them, or they want to switch to Snapchat right away. Let me get to know you a bit and figure out if I want further conversations. In addition, if you never answer my questions but you sure want to know a lot about me, that’s a huge red flag. For those who want a friend, let me know that. For those who think I may have advice or could be a shoulder to cry on, tell me what you’re looking for. I’m not a mind reader.

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Love this so much!!!

So so so much of my life is sleeping. As a senior in high school my body was creating so much pain I would black out often so my body could get the rest it thought it needed.

Having such a messy schedule is its own problem but sleeping best during the day os still true to me.

I always ignored the doctors who said naps were the worst thing to do but I knew I felt a thousand times better after sleep. And if I didn't sleep, my already sky high pain would triple.

So I was up from 1Am to 6AM.
Now I am at waking at 6AM until 3pm though it is forever Changing.

My best advice is to listen to your body, what does it NEED??
Not just want but Need too?

You Re the You expert, show em how it is done!!!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Insomnia #JuvenileRheumatoidArthritis #Upallnight #CheerMeOn #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #plantarfasciitis #MentalHealth #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica

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Comet

Our neighbor took this amazing pic if a comet over our house on Sunday.
#comet , #Sky ,# night sky, # nature,
# chronic pain, #Asthma ,
# sarcoidosis

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Gasp! The human is giving me scratches!!! Can she read my mind?! 🤣

Cute Lil Rosie Fluff on a lazy Saturday ✨️✨️

I do love my puppy snuggles 💕

Thinking of each and everyone of you, my Mighty's, as we do all we can to improve our lifes, however that looks.
Life is brighter knowing we are Not in this alone, knowing that there is hope, and that we can Lways find beauty on our darkest of days.

We were created this way because our life needed to specifically be ours. We always have the opportunity to improve ourselves and heal past hurts.

One day, tomorrow a new dawn. Deep breaths, bring it on!!!

Or rest up for tomorrow 😉 you know yourself best! ❤️❤️❤️

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #CheerMeOn #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #IfYouFeelHopeless #Upallnight #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #chronicheadache #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #plantarfasciitis #PanicAttack #PanicAttacks #MentalHealth #MightyPets #MemoryLoss #MightyTogether #Migraine #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

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Aurora Borealus/Northern Lights

Beautiful pic my daughter took from Wisconsin last night. #Sky , #aurora borealus,# northern lights,#chronic pain, asthma, #Fibromyalgia ,
#Nature ,# beautiful

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Flurry of hummingburds

It's migration time. On their way down to Mexico for the winter. We have 3 feeders that have many hummers drinking. #Nature ,
#hummingbirds ,#beautiful birds,
# chronic pain, # asthma, sarcoidosis, # spinal cord stimulator

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Rosie purposely looking away from my camera, the stinker!!

Her hair is so fluffy from the humidity. She is considered a toy dog but our neighbors dog-and Rosie's boyfriend is a big great dane.
She was scared of him but once I loved on him she knew he was safe. They love playing up and down the gate between them.
Who knew Rosie was a romance at heart?! 😅💖

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #AnkylosingSpondylitis #ComplexRegionalPainSyndrome #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #MentalHealth #MemoryLoss #MightyTogether #Migraine #MightyPets #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #PanicAttack #PanicAttacks #plantarfasciitis #Psychosis #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #SuicidalThoughts #RheumatoidArthritis #sciatica #ShinSplints

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I am Soooooooooo proud of this creation!!! Oh man it turned out even better than I hoped!! *squeal of happiness *

My brother is returning from his mission for our church. We are members of the church of Jesus Christ of Latter-day Saints and members who go on missions go for 2years.

This is a picture with my camera flash so you can see the sparkles of silver and gold in the acrylic paint I used for the sword.

The hilt is a Phoenix which actually looks decent if I do say so myself lol

In the middle my mom will write the words:

"Well done thou good and faithful servant.Thou hast been faithful. Enter thou into the joy of the lord"

Oooh I am so excited to give it to him!!!

He has thrived as a missionary and I am so darn proud of him!!!

What do you guys think of my sword??

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #PanicAttack #PanicAttacks #plantarfasciitis #Psychosis #musclespasms #MultipleAutoimmuneSyndrome #CheerMeOn #MentalHealth #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

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