pain medication

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Taking pain medication with Fibromyalgia

I was diagnosed in 2009. I was started on tramadol, eventually sent to pain management. I have been going there for years. Tramadol became like eating baby aspirin so I was prescribed hydrocodone 5/325. It worked well until it didn’t. I asked for a stronger dose do I was given 10/325 2x a day and pumped to 3x a day. I have been in that for about 31/2 years. It is no longer working as it once was.
I have tried asking for a medication. I keep being put off. I feel as if she is not taking me seriously. I don’t get it. I have always been open and up front with this group. I followed directions to a tee. Has anyone experienced something like this? How can I get this dr to pay attention and take me seriously? I haven’t been pain free in years. I’m exhausted and tired . #Fibromyalgia #ComplexRegionalPainSyndrome #PainManagement #PainMedication


Starting a New Group for Insurance Denial Stories

I am starting a new group where we can share insurance denials and their effects on us and our loved ones. Too often the real impact of these denials goes unheard and unseen. Let's bring some light to this major issue plaguing many with a variety of health conditions! Share your story and let's build a group where we can share them together. #Insurance #Grief #PainMedication #AnkylosingSpondylitis #Asthma #Fibromyalgia #ChronicIllness #Depression #Anxiety #PTSD #CPTSD #MentalHealth


Pain discrimination at Doctor's office

I go to quite a few doctors offices. Some may seem to be a little over zealous with your condition, checking everything and anything for you to get a proper diagnosis. But then there are the doctors that try to make you seem like you don't have anything wrong with you. I had that experience today.

I have #SystemicLupusErythematosus and it entails a ton of medications to help keep your pain under control plus keep your immune system from attacking your healthy cells and organs. I have spent five long years with many doctors trying to figure out the best medications to help me to live day by day. In the last year we found a mixture that works. There has never been any discrimination from any of my physicians. There was understanding of my pain and a willingness to help.

Recently I have been having heart palpitations and there was a concern since I had been on Prednisone for quite a long time. I was referred to a cardiologist and everything seemed to work out. I got in quick and they began with a holter monitor. Showed signs of some stress on my heart. Next a stress test. Results showed some ischemia. They already put me a beta blocker and an antiarrhythmic so I knew that when I saw him for our follow up that he was going to tell me to just maintain my medicine and see me in 6 months.

Today I went in to see him and waited much longer than usual. Short staffed. After being called in a very nice nurse came in to get some info from me and to assist the doctor. When the doctor came in he looked at my stress test results and proceeded to tell me how I am a healthy young woman. I tilted my head and said "with some issues" and then everyone giggled. He blew it off and started looking at my chart. He noticed that my TSH levels were off and said that I should get with my PCP to get my thyroid checked again. It could have something to do with my palpitations. Okay. No problem.

That's when he notices all the medications I'm on. " Why are you on Ultram, Flexeril, and Lyrica? Is there REALLY that much pain?"

"Yes. I've had Lupus for five years."

"Is there REALLY???....................." With a direct look into my eyes and a little crooked smile.

As he turned I looked towards the nurse who had rolled her eyes and covered her face in what looked like embarrassment.

At that point I agreed to contact my PCP and kept quiet through the rest of the appointment. I think I was in a bit of shock.

He left and she turned towards me. "I hate it when people don't understand pain. That was rude of him to question you like that. It was like he was accusing you of lying." she said as she finished putting in the notes in the computer. I told her I'm not faking it and that I thought maybe I took it wrong but I'm glad she heard it too.

I'm still in shock. I'm definitely not going back to him. I think it's time for a second opinion.

#Pain #CoronaryHeartDisease #Lupus #PainMedication #Disability #Spoonie #ChronicPain #ChronicIllness #Fibromyalgia #hypothyroidism


#getoutofmymedicineprescriptions #HGGA

#PainMedication I am the spouse of someone with HGGA who is going through bureaucratic red tape from insurance companies that want to change the amount of pain medication he has been on for 20 years. Cutting the amount prescribed each day and half is incredibly irresponsible and I’m very angry that I/we have to go through these hoops to appeal a denial. Damn the opioid crisis I am so sick of this.

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When part of a partnership is in pain, the whole hurts.

Some people who love me know some of these, only my husband knows all of them.

I try not to overwhelm everyone about what is an overwhelming part of our lives, but this series on living with hemiplegic migraine is so well crafted and hits so close to our own experience, I thought those who wish to enter into ours at a deeper level may want to read it.

The issue of medication rationing is particularly striking, because no one wants to talk about it, or believe the choices we are forced to make, or that they would make the same should they find themselves in the same situation.

My team, which now includes more than 35 doctors nine years after diagnosis, has agreed to prescribe a 15 count supply of my strongest acute migraine medication. I can take a three count dose every three hours.

It takes a second grade education to realize, I could go through the entire month’s supply during a single attack if I choose to do so.

So, I don’t.

I was also warned not to use the Rx more than two days a week to safeguard against dependence, so I schedule my dosage dates. Each week I decide what days are the most important to live life to the fullest, be they my children’s birthdays, Christmas, or the day my son needs a new AFO. I won’t even discuss the side effects of neurological pharmaceuticals. The roulette played between symptoms or side effects is a dangerous gamble we are as powerless to overcome as gravity.

#Migraine #IntractableMigraine #HemiplegicMigraine #ChronicIllness #ChronicPain #PainMedication #SpecialNeedsMarriages #SpecialNeedsParenting


Painkillers for abdominal pain #Pain #PainMedication #abdominalpain

I've had chronic abdominal pain nearly a year now. When the pain began I started with codeine and soon realised this was not helping my pain. I went onto tramadol which I have been taking for the majority of this year now but I'm finding the pain is becoming worse and the tramadol is no longer helping as much as I'm still in alot of discomfort. What painkillers have you found most effective for pain? Abdominal pain to be exact?


what physical symptoms does Cymbalta give you (if you take)

I take Cymbalta/Duloextine 90mg and i want to know how much of my physical symptoms could be what i am taking as a medication, and which are caused by my body itself. So if you take duolextine (or used to) and get physical/bodily issues from it (not talking about withdrawal because that’s a different breed entirely lol) please describe what you feel and how it impacts/impacted you?
#PsychiatricMedication #PainMedication #Undiagnosed #Depression #Fibromyalgia #ChronicPain #ChronicFatigue #AnxietyMedication #Fatigue #MentalHealth


How to ask your doctor for stronger #PainMedication?

So I've been on many a PRN pain killer atop of my daily medication regime. Tylenol, Naproxen, Ibuprofen, and Tordol do not work and give me epic rebound headaches, which trigger migraines and neck/jaw pain. I have gel, I use ice and heat, I've been working on my hydration. This life saving medication my Neuro raved about, Ubrelvy, doesn't help. It doesn't bother me much until night, where I cannot fall asleep easily for the life of me as my head, neck, and knees hurt not to mention this weird texture thing that happens with my hands. Usually it's just 2 issues, but when it's 3+, it gets overwhelming.
Honestly, I would appreciate a stronger pain medication but a few months ago, the pain specialist said, "You are young so you're not in tbat much pain" and another stated that "narcotics are terrible."
Trust me, I worked with clients with substance issues and it was my focus in school.
I know how to properly use it, and since I hate the feeling of pain medication in general... things are pretty harsh right now.
So how do I ask for pain medication without seeming like a drug seeker? #HypermobileTypeEDS #Migraine #Asthma #ChronicPain #ChronicIllness #PseudotumorCerebri #IrritableBowelSyndromeIBS #Tachycardia


Okay so my doctor prescribed me 25 mg cymbal and I took it for four days and it seemed to help the pain but made my agitated and affected my sleep.

Did anyone else have this issue at first and than it calmed down ? #Fibromyalgia #chronic #Pain #PainMedication

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Pain control #Pain #PainMedication #PainKillers #Opiods

I am so tired of being in pain.

These past 2 weeks have been the worst I’ve had in a while. My mother keeps begging me to go to the hospital for some relief, but honestly I’m too afraid to go. I’m afraid that they’re going to label me a drug seeker and push me aside.
Damn this “opioid crisis”! I’m so angry at what it’s doing to people like me who really need pain control.

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