Mastocytosis

Hi, my name is SashaMarie. I'm here because I’m seeking a community that can offer support for any of the following conditions; ASD (AS), Mastocytosis, EDS, POTS, Vasovagal Syncope, Chronic Urticaria & Angioedema, Sensory Processing Disorder, Fibromylagia, Chronic Fatigue, Migraines, Depression, Anxiety, PTSD.

Hi, my name is mkj1. I'm here because

#MightyTogether #Mastocytosis

Hi, my name is sunnyscribe237.

#MightyTogether #ADHD #PTSD #Migraine #Mastocytosis

Hi, my name is Lidahesa. I am 54 years old and I suffer from Mastocytosis and MCS.

#mightytogeth

Hi, my name is HeatherBennett.

#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #ADHD #PTSD #OCD #Mastocytosis #HypermobilitySyndrome

Systemic mastocytosis is trying to kill my right leg. I am loosing circulation and feeling in it as well as severe pain when rolling around on it at night. If i try to move using the muscles on my right hip, I experience severe pain. When it was cold, it felt like the long bone was hollow and freezing. I had to heat it up in an electric blanket to make it feel normal.

To help with this problem, they put me on Prednisone 20mg with tapering off. Only problem is my bones flared up once I got to one tablet a day. Its happened before but essentially all bones feel swollen and painful.

This is a rare disease so my #Depression is because I cant reserch too much about this. All I find is that it causes osteoporosis/osteopenia.

I get results this week from the bone marrow biopsy I had on Wednesday. The main lab test for mast cells was allowed to clot so they are going to need to repeat the procedure.

#RareDisease

No one near me wants to deal with Mast Cell Disease.
#RareDisease

No one near me wants to deal with Mast Cell Disease.
#RareDisease

No one near me wants to deal with Mast Cell Disease.
#RareDisease