Syncope

General health appointments: 5

Specialist appointments: 12 (rhuemotology, ophthalmology, podiatry, endocrinology)

Allergy: 20 appointments, 76 allergy shots

Infusion: 13 appointments, 32.5 hours sitting in the infusion center

Imaging/testing (not labs): 2 MRIs, 2 1-week long heart monitors, 1 stress test, 1 tilt table test, 1 heart ultrasound

Mobility aids: 2 mobility aids added to my daily routine

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Pre syncope episodes: 3

Vertigo episodes: 5

Anxiety Attacks: 2

I’m proud of myself for speaking up to my doctors about a symptom I’ve experienced my whole life but no one has ever looked into. I’m proud of all the ground techniques I’ve learned this year. I’m happy I found 2 apps that help me with mental health and health record keeping. I’m also very proud of my mom who started her chronic health journey with Parkinson’s this year. She is going to speech classes and sharing information with us (family). Her new diagnosis is frustrating and exhausting but she’s learning and still doing things she loves. 2026, please be gentle to us.

#Uveitis #Glaucoma #ParkinsonsDisease #MentalHealth #Anxiety #ChronicPain #Presyncope #NeurocardiogenicSyncope #AutoimmuneDiseases

I was so excited for today and have been looking forward to it this whole week. I had a hair appointment and I haven’t had my hair done in 3 years.

I’m sitting in the chair with bleach in my half my hair and I can tell I’m going to have a pre syncope episode. I started sweating like crazy, my face had no color, I was shaking, and my vision kept going away and coming back. I tried my routine breathing and talking to myself but it did not work.

Soooo I had to end my appointment. Called grandma to pick me up. Luckily my hair stylist is the greatest human on the earth - using the cold setting on the blow dryer to cool me off, washed and styled my hair while I was awardly leaning backwards.

Anywaysss later I looked at my health data - my heart rate went from 78 resting to 50 resting and struggled to raise my heart rate for the next 10 minutes.

I did try to have extra electrolytes before my appointment. I did have 3 glasses of water this morning. I did eat a meal before I left. I swear, the biggest trust issue I have is with my own body. I’m frustrated with my body, I’m embarrassed of my body, I want to forget today happened but half my head is bleached for a continuous reminder. And what? I’ll make my appointment to get it finished and be anxious about possibly passing out again and won’t be relaxed like I should be when you get your hair done.

Let me sulk today, I’ll get back on the positivity bus tomorrow. But huge shout out to my hair stylist for making me feel safe and seen - I wish more people could do that. Also I love a good salon dog, thank you for resting your head in my lap when I arrived, you are the sweetest.
#bradycardia #NeurocardiogenicSyncope

Hi, my name is PomegranateKoala21. I'm here because The Mighty represents a great resource for persons with various medical issues. I’d like comment on my specific medical issues, and there’s a large amount of them. First, I’m a 77 year old female. These are many, but not all, of my medical issues:1. Hepatic sarcoidosis – diagnosed 50 years ago. Active2. Pulmonary sarcoidosis- active3. Pulmonary hypertension4. Diastolic dysfunction5. Autonomic small fiber neuropathy – (asfn) with 90% of symptoms 6. Chronic inflammatory demyelinating polyneuropathy – (CIDP)7. Fibromyalgia8. Severe restless leg syndrome9. Severe central sleep apnea10. Severe obstructive sleep apnea11. Heart failure12. Non-REM sleep13. Syncope and collapse14. Asthma15. Chronic venous insufficiency16. Idiopathic hypersomnia17. Gout 18. Myositis19. Sciatica20. Allergies21. Low pulse ox- sometimes down to 84 and below22. Bradycardia – at times into the upper 40’s - asfn23. Tachycardia – up to 111 – asfn24. Low blood pressure – down to 80/40 – asfn25. Severe osteoporosis26. Heart perfusion defectI’m tired, but I have more than 70 diagnoses. Feel free to comment

Hi, my name is livia. I've been diagnosed with autism lvl 2, anxiety, and being tested for depression and ADHD. I also have vasovagal syncope. I'm currently considering a psych ward stay due to re-occurring suicide thoughts

#MightyTogether #AutismSpectrumDisorder #Anxiety #Depression

Hi, my name is hanniebananie.
I was just diagnosed with MCAS, POTS, and either EDS or Lipodema (we don’t know which one yet). I’ve been on a long journey with chronic syncope and I’m just now getting some answers! I would love to connect with people who relate and understand, or don’t! Let’s talk :)
#MightyTogether #PTSD #MastCellActivationDisorder #RheumatoidArthritis #PosturalOrthostaticTachycardiaSyndrome

The short summary is, January 19th I got choked on food and I ended up getting dysphagia from it and couldn’t swallow anything for weeks. I ate pudding and apple sauce, eventually I ended up passing out February 2nd, my first time ever passing out. They said it was just panic attacks and syncope and not a issue, so they sent me home but my blood pressure was terrible my boyfriend was leaving to go to bootcamp too so that was stress added onto it. February 20th around that I had a doctor appointment with a gynecologist and she told me my iron was low and my b12 was high which made no sense cause I wasn’t eating but 100-200 calories a day if that. But I eventually was able to eat, and slowly felt kind of better but not fully. I had issues of being fatigued, and tired even though I got 8 hours of sleep. It’s tmi but my last cycle was watery and light and wasn’t normal compared to how they usually are. I felt terrible on it, short of breath, weak, fatigued, blurry vision, it was bad. However I’ve had issues when I’m eating, everything will start going black and I struggle to breathe and it feels like my heart stops for a second, then it starts racing and I panic, which makes it worse, I feel like I’m going to pass out during that, my head feels weird too. That’s what happened again earlier today, but yesterday at work I was standing there ringing up a customer and everything started going black and I almost passed out then too. I’m just scared. I’ve never dealt with anything like this before. I was told I have insulin resistance PCOS and may be iron deficient from my doctor and maybe anemic, I’m waiting on blood results to come back but is this a blood sugar issue or is it something else. Please help.#Anemia #anemic #iron #IronDeficiency #insulin #PCOS #irondeficient #help #question

Hi friends. I’m new here. On January 19th I had a choking incident and ever since then I’ve had issues swallowing my food due to anxiety I’m guessing. My doctor told me it’s Dysphagia from anxiety and potentially acid reflux cause I have acid reflux. A lot is going on in my life right now. But the main thing that bothers me is my boyfriend leaving for bootcamp. I think that’s part of why I’m dealing with all of this panic. I also had an episode of syncope and passed out for a few seconds from severe panic. I have panic attacks when I go to eat, and it’s so bad I go light headed, can’t breathe, I go numb, I feel my soul “flooding out of my body” it’s an experience. Due to this I have only ate small bites for like 3 weeks now. I’m just confused on what to do and how to heal. If anyone has any recommendations I would seriously appreciate it. Much love to you all.

Hi, my name is SashaMarie. I'm here because I’m seeking a community that can offer support for any of the following conditions; ASD (AS), Mastocytosis, EDS, POTS, Vasovagal Syncope, Chronic Urticaria & Angioedema, Sensory Processing Disorder, Fibromylagia, Chronic Fatigue, Migraines, Depression, Anxiety, PTSD.