Mixed Connective Tissue Disease (MCTD)

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Mixed Connective Tissue Disease (MCTD)
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    How do I navigate unlawful termination?

    This was my 4th job I’ve been fired from since being diagnosed.
    When I say diagnosed it’s not just my Mixed Connective tissue disease, I have bipolar disorder, PTSD, Fibromyalgia, anxiety disorder, and depression.
    I had been sick a few times within 4 months and actually felt I was doing well adjusting to a sales line of work I had never done it before. I’m typically in administrative positions.
    Continuing on; I had enough when my manager tried to make a joke about me wearing a dress one day and reported him. I was told he had been written up.
    Since that day my performance was scrutinized repeatedly I was made fun of because I stopped using alcohol. - my flares were out of control.
    I was told I wasn’t a team player but also since I didn’t volunteer to move hot tubs around I had lost “points in the game which my coworker had been winning” at the time. (I was unaware of a game)
    Two days later I was terminated for “not following policies and procedures.”
    I have tried contacting an attorney which I have been informed many times there’s a conflict of interest , the EEOC which the soonest appointment available is in mid May 2023.
    I need help- I’m not married, I don’t have savings. Why was I the one let go?
    #MixedConnectiveTissueDiseaseMCTD #PTSD #Fibromyalgia #AnxietyDisorder #BipolarDepression #BipolarDisorder


    Didn’t even realize…

    Didn’t even realize … I couldn’t do it anymore without severe consequences.

    Needless to say I am still struggling to find that balance for myself and what I can handle, be ehh after vs pushing myself farther than I should have because my brain doesn’t understand my body just can’t. Now am severely am / going to be paying the issues over the next week+.

    Went on my first really long car ride OH to SC and back over a span of 4 days. To pick up my daughter from Bootcamp Graduation and Celebrate her becoming a Marine.

    I didn’t have to drive to much which I have kinda figured out I really start having issues after driving an hour and am absolutely drained to nothing after. Every little movement in this car ride just sends shooting pain down my nerves.

    So needless to say I have been gritting my teeth sense Wednesday. So I can actually have a smile on my face and show how proud I am of her and to celebrate with my family.

    So yep…. It’s been a long never ending day the last 4 days and have not slept. On the positive I will be home in 30 minutes and hopefully relax my body.

    #MixedConnectiveTissueDiseaseMCTD #Anxiety #Depression #RaynaudsDisease #RaynaudsPhenomenon #ChronicMigraines #Nervedamage #AutoimmuneAutonomicNeuropathy


    Why Do Our Friends Leave Us?

    I'm sharing a previously posted story written on here from 4 years ago.

    My very last 'surviving' friendship is now also drifting away out of my reach 😔. I hate the loneliness it brings.

    Having one friend made everyone else disappearing more bearable. But how am I to feel now I am alone? no more bestie or 'solid' friendship.

    Was it me? Am I too oppressive? Could I have done more?! - I'll never know.

    To clarify, we had a 10 year friendship and we were each others 'best friend' she is my sons godmother. We were literally thick as thieves - could finish each others sentences, say the same things at the same time. She, my husband and I were the '3 amigos'

    So our situation now is that she, and her new husband have moved to another town nearby. She's made new dear friends there,and has slowly weaned off me.

    The last time she saw me it was for my birthday 2 weeks after it 😓 it felt like she was feeling awkward after a while. After she left, I never received the 'I really enjoyed seeing you 🥰' etc text message we would normally exchange - even though I sent one myself

    What finally made me see it for what it is, is that I was meant to see her tomorrow. We planned this ages ago. But was told yesterday she cannot do the afternoon. Morning only. Then today got a message cancelling entirely

    Once before I got sick there was a time where I was all she had, even when everybody left her due to a trauma she experienced, I supported her through.

    I really thought after years of bullying and never fitting in due to Autism, I had found my 'forever friend' ❤️ for years and years our social media pages were constantly full of pictures of our 'adventures' and tagging each others names on posts. Almost announcing to the world what a close unbreakable friendship we had. It made me feel lucky and special🤦‍♀️ somebody liked me for me! I had never had a friendship this genuine before (i thought) I feel embarrassed to have felt this way now.

    I know people who don't stick around due to illness aren't worth my time. Equally I know people can change and drift apart too, but I thought we were stronger than that?

    But it doesn't change the hurt. Especially as this gradually happened over two years, feeling it slip away. Questioning if it was really happening? Surely not?! Then realising the truth, and the painful feelings of being alone, betrayal, of feeling replaced - as if I were a broken toy.

    I feel very sad really. Especially as I am housebound, and cannot make friends offline.

    Has anybody else been left totally alone other than their spouse/partner?
    (im lucky mine is incredible)

    This epitomises how I feel

    Dear Friends: Please Don't Leave Just Because I Have a Chronic Illness

    #friendships  #ChronicIllness  #Loneliness  #Depression  #UCTD #MentalHealth #Anxiety #Autism #ADHD #ASD #AutoimmuneDisease #alone #CheckInWithMe #Sadness #housebound #Longtermillness #hi #Lupus #MixedConnectiveTissueDisease #Fatigue
    #ChronicFatigue #ME


    In a really bad head space right now.

    Does anyone else ever ask, what karma am I repaying that I deserve this. #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RaynaudsDisease #Anxiety #AnxietyAttack #Depression #Migraines #supportneeded


    Dismissive of MCTD by family

    Hi All,
    I realize that some of you may not be in my exact position, but I bet you have some suggestions.
    My mom is in assisted living, we’re selling condo, lots of family drama surrounding these things. As usual, I’m the one who’s “guiding “ these processes. It HAS to be me bc my siblings are not trustworthy, hence my mom made me her POA.
    The problem is that my siblings seem to gloss over my health issues. Idk if they’re unwilling to understand the complexities of MCTD or if it’s an excuse not to BE there. I think there’s resentment that I am the POA, n hence, the “money manager “. Even though I’m handling the paperwork, which is exhausting, I still need help with doing errands for mom .
    I think they’re thinking that it’s just a disease that can be overcome with positive thinking or rearranging my life to accommodate my mom.
    I wish I COULD rearrange when I flare or am fatigued!!! They don’t understand. I sense frustration and anger on their part.
    I’ve tried talking to them and get the usual “ have you tried _________?” Fill in the blank from anything from gluten free to swinging a dead chicken. Or, it must suck to be so tired. It’s insane.
    I’m at the point where I don’t want to have any other relationship with them except a cordial one over my mom .
    Any suggestions???
    At my breaking point of blowing up in anger and tears of frustration.
    Thanks in advance!


    Does anyone know what to expect after starting IVIg transfusions? I start them in two weeks.
    Two days back to back for 4.5 hours per day for procedure. Once a month.

    #FreakingOut #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RaynaudsDisease #Migraines #Anxiety #Depression #Arthritis