Myasthenia Gravis

I'm not talking about the upcoming holidays; although for me are depressing. I'm talking about that nasty sky dandruff! The temperature is only a high of 31 degrees F.
Honest I'm not sure which is in a flare! Fibromyalgia, Musculoskeletal Pain, Arthritis, hEDS or any combination. But I am absolutely miserable! Two days ago is when I pulled myself out of a multi-day deep depression. I had the energy so I tackled my living quarters which I had neglected 4/5 days. Also Scrolling YouTube and enjoying life. Before I knew it, it was like 3 am. Whoops!! Needless to say I didn't get much sleep that night. Last night between coughing (swollen tonsil), having to use the bathroom and sporadic pain of different types and in multiple places, I don't think I got more than 2 hours of sleep. So I am downright tired! I had to walk the 3 minutes to the grocery store (using my rollator walker) to get fruit, a few other items and much needed BC Powder. 3/4 of the way into shopping my back went into full spasm. It was all I could do to finish. I just needed to get my BC Powder and then pay. When I got to where my medicine was I was thinking; CRAP. Cause it was on the bottom shelf. A woman just happened to walk past and I asked her if she would get it for me and explained I can't bend over. She was polite and did so. This store has 6 self checkouts and typically only 1 (2 on busy days) regular registers where an employee rings you up and bags your groceries. I can't use that one because my body won't allow me to wait in the long lines where people have full carts. So I'm bending as little as possible to pick up an item off my walker seat, scan it and then bag it. By the time I'm done with that process I had 3 bags and could barely move. I hung one on each handle and the heaviest in the pocket under the seat. I fixed a quick lunch by tossing (I can't think of what their called) 6 of them into the air fryer. Put away my items and went to take them out. Ate those and some melon,and am laying down and my arms are wanting to resist holding my phone!
However; I know I am blessed. I know I've had worse pain days than this. AND ... I know this pain will eventually subside, I just gotta ride the wave of ... (no words to truly describe how I feel, Natural childbirth hurt less)! Thanx for listening. Oh, my BC Powder stopped my headache, but even the combination of my morning meditation of 6 are Tylenol Arthritis (I take 2) and Ibuprofen 800, the BC and I had taken my Gabapentin 300 MG; nothing stops this pain until it rides its course! Stay strong ya all! After all, that's what we do!! 😉

I saw a psychiatrist , the best I’ve ever had in my 30+ years of Major Depression with Anxiety disorder. He retired 1 year ago, it was difficult but I found a pHD nurse practitioner who continued the same medications for 6 months. Suddenly she decided it wasn’t good for me to be on Clonazepam 0,5 mg tid and Ambien 5 mg hs. I was doing well with some antidepressant adjustments over those 18 years.
She has tapered me off Ambien and I still have insomnia. She has tapered me down to Clonazepam twice a day, with resulting increased social anxiety, a terrible habit of picking the skin off my thumb until I have sores. I am fearful and anxious. Decreased appetite.reclusiveness to my apartment, no interterests…..I used to read, do crafts. Now all I am interested in is my 2 cats, and my Chihuahua. I was an advocate for wolves and animals that couldn speak for themselves, used to foster kittens and volunteer at an animal she,yet. I no longer drive because of decreased vision and lack of spatial awareness. I have no family living in Denver. I am at odds with my entire family because of the election. I live with my husband in a senior living retirement. My husband is very supportive but he is gone most of the day because he is very involved in activities here.
I need to find a psychiatrist who will allow me to stay on Clonazepam and Ambien, plus my Paxil and Wellbutrin….therapuetic medications that help me maintain some sort of normalcy in my depressed state.
I desperately need help. Her suggestion was to make friends, get out more…which I have tried. All of my best friends live in the Midwest or Northwest, including my two children an 3 grandchildren. Help me please.
#Depression #MajorDepression , #AnxietyDisorder
, #fearful ,#reclusuve ,

Hi, my name is Cookie5. I've been diagnosed with generalized myasthenia gravis,gout,osteoarthritis

#MightyTogether

I still get Rx notices for my husband because I have to keep them in my name or he'll switch back to him getting all the notices and that's how he got away with stealing my meds. He is still in sober living for stealing my Percocet, Soma, and Ubrelvy. He also went to the hospital via ambulance for taking too much of his Neurontin. Well, I got a notice saying his Rx is ready. I was in total shock it said his Percocet 5 mg of oxycodone and 325 mg of acetaminophen tablets were ready. What the HECK! I just don't understand this at all. I don't know if he's lying, or the therapist are clueless, or both. I'm literally in tears. I'm so triggered right now. I guess there are absolutely no consequences for him at all.

Hey everyone I have a question. My fibromyalgia was getting worse and I had requested to increase my Lyrica from 150mg to 200mg. I started the 200 mg on Saturday and yesterday I was really drowsy and didn't really feel well. Today I'm having the worse flareup ever. I'm having pain in every part of my body. Are these symptoms I'm having side effects from the increase? Has anyone experienced this before? What some remedies for really bad flare ups? Thank you in advance ☺️

I’m new to the group. I have several chronic and autoimmune disorders. Fibromyalgia, ME, myasthenia gravis, a rare eye disorder and a few other things. I live at the beach (summer traffic!) and have a load of pets. One dog and seven indoor cats. My house is chaotic sometimes. Looking forward to meeting others.

Hi. I became fast (instant) friends with someone with MG. Things got touchingly honest, fast. Then, after I shared my feelings (just deep affection, romance), communication basically ceased. They were also going through medication changes. I very much want to remain friends and hate to just walk away, because I, too, have a chronic disease and I know what it’s like when people walk away. They say they are “still here” but there hasn't been any real communication in two months. I don't feel friendship. Is MG like this?

Today marks 2 weeks on my new medicine combination 》》》Zoloft and Lamictal.

I have noticed a little difference towards the better but it's still early to tell. My doctor upped my dose on Lamictal to 50 MG instead of 25 mgs.

Let's see how it goes over the next 2 weeks.

This is my first time on a mood stabilizer so I'm hopeful for something to actually work for me.

Fingers crossed🤞

#BipolarDisorder