Myasthenia Gravis

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Swallowing issues

Hello. Ever since the middle of March, I have been struggling with swallowing issues. I ended up going to the ER and they told me it was jsut mg anxiety. Well as time progressed on it just continuously keeps getting worse that I can barely swallow saliva or breathe. I did a swallow study and it came back as normal. Now I have an endoscopy at the end of the month. Can anyone relate or know of any possible related diagnosis’s? I also get very nauseous sometimes and have struggled with IBS my whole life and have absolutely no energy.

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Predisone Side Effects

Earlier in Febuary I got the flu. As I was recovering I started to slowly lose my vision. I was taken to the hospital where we found out I have optic neuritis. Which than later turned into bilateral optic neuritis spreading to both eyes. I was in so much pain and they put me on IV steroids for about 7 days. I then got to go home and take them orally. I started with 80 mg for two weeks and am tapering down to 0. Currently on 30mg. The side effects are making me very depressed. I've gained so much weight in my mid section, neck, and face. I have to have a low sugar and low carb diet to prevent ny blood sugar from spiking. My hair is falling out in clumps. My back hurts, I'm shaky, I'm CONSTANTLY sweating, insomnia, acne on my shoulders, water retention.... you name it.
And still.... we don't know what caused my body to develop optic neuritis. They are doing so many tests for autoimmune. L.. but I just eant answers because I want to see clearly again and not have so much pain.
This is my MOON FACE. I am so scared that it may never go back to normal. I feel so self conscious because when I see people i know they obviously notice how much weight I've gained. #OpticNeuritis #MoonFace #Steroids #MentalHealth #AutoimmuneDisorder #MultipleSclerosis #ChronicIllness

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I will be seeing a new psychiatrist next week. I have felt the need to write in my self esteem workbook almost daily now since Early February. I want to share with doctor how tired the 50 mg hydroxyzine makes feel. I have been diagnosed bipolar 1 taking all my meds to help me relax and be calm . In November went to court first time ever. 4 charges, domestic violence, battery, 2 counts disorderly conduct. Been telling my public defender pleading not guilty. Since husband and neighbor lady provoked my fighting with them. Then was out on administrative leave, sly lady called my Mgr after I was taken in custody . So this Feb. 17th I have no up to date DOT fed med certification to continue my bus job, was fired. Add to this my final court day is on March 11th for charges- angry outburst again w/ spouse and a misdemeanor battery charge (neighbor) who described me outside as insane. I unfortunately got in her face. I explained to Police she was looking to use us for $... When I complained to my husband back in Sept and Oct she is after him for babysitting ( for free) and that he must love her, Cause I don't see him talk to me near long enough but he puts forth effort to visit outside when she and her child are there, conversation without me or her hubs, while continues ignoring me and stopped participating with his own grandkids. he denied everything. He complained about how unfortunate her marriage is. Evidently her own hubs didn't pay for a big electric bill in October. So why'd she feel need to be texting my husband? (a swift, sly move )but yet I was taken into custody. I was telling officer to take me to hospital to help find inpatient hospital. I did eventually get into one in January. Now, I can't even apologize to the neighbor cause of her court order of protection. Any one, gone through a mess similar? Thoughts?#BipolarI #Anxiety #MentalHealth

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Hair Loss

I had a biopsy and bloodwork that confirms Systemic Lupus. I have another month before I am able to see a RA doctor. Appointments are 3 months out for new patients. My dermatologist prescribed 40 mg of Prednisone daily and 200 mg of Hydroxychloroquine. I have been in a flare since August. My hair is falling out daily. It is the full strand not breakage. The bald spots are the size of a nickel. Does anyone know how to treat this?


Company Required Career Path Goals

As someone with Myasthenia Gravis, I’m extremely careful about using any muscles and how I use them to excess. It’s critical I do so to protect my health.

My employer is a very large international manufacturer and distributor, and rolled out a requirement this year that all employees must have a career path and advancement plan.

What would be a constructive or diplomatic way to point out to this employer this new requirement is not appropriate given that I’m lucky to be able to see at the end of my workday, let alone pursue career advancement? #MyastheniaGravis

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