My lumbar, right hip, and skull were at 9 out of 10 so I texted Pauley for meds about 2 hours ago. My migraine is gone and my lumbar and hips feel fine. I want to go out today but I don't know if she's up for it.
Maybe we can go to Dixieland flea market for a little while and then we can cross the street for Burger King. The other street corner has a dispensary I've been wanting to go to. I need more 10 mg gummies.
Hi, my name is Jill. I've been diagnosed with incomplete dRTA. I'm passing stones daily, apatite. Being used as a test dummy with k citrate though it knocks me into this abnormal high bo and numbness. urine mg 48, urine potassium 13.I need a dr asap.
Hi, my name is Lily. I'm here because I have several rare chronic illnesses plus some not so rare ones. Two that are the primary behind a lot of secondary are Autoimmune Autonomic Ganglionopathy and Autoimmune Gastrointestinal Dysmotility. My mom also lives with myasthenia gravis.
#MightyTogether #Migraine #AutismSpectrumDisorder #ADHD #Dysautonomia #AutoimmuneAutonomicGanglionopathy #Gastroparesis #EhlersDanlosSyndrome #deltagranulestoragepool #POTS #PolycysticOvarySyndrome #Scoliosis #accomodationparesis #MastCellActivationDisorder #longcovid
I have problem having stress and worried even though taking medication of Latuda with 80 mg that I was stressed by checking blood test of white blood cells have low. My mom said it to me because of side effects. I couldn’t stop taking medication. Now, I have already finished and graduated with bachelor’s degree. I argued with my mom that she thought that I cannot be independent because of stress. I feel a bit depressed because what my mom said to me. She said that she will avoid me because of having bipolar mood swings and autism. It makes me really depressed and unloveable person. She discussed with me about the problems that was just side effects. I hate people think of me as bad person because of having bipolar and autism. I just want them that they should be sympathetic and understanding other people with disabilities and mental illnesses not being stigmatised. I think people with mental illnesses and disabilities can be independent themselves instead of people supporting, but they misunderstood them.
My name is Kia, and I am the creator of The Dual Diagnosis Diaries, a blog dedicated to sharing the realities of living with Crohn's Disease and MuSK-positive Myasthenia Gravis.
After spending more than three years searching for answers and fighting for a diagnosis, I stepped away from advocacy work to focus on my health. Today, with a diagnosis, treatment plan, and renewed sense of purpose, I am returning to advocacy through storytelling, education, and awareness.
I created The Dual Diagnosis Diaries (https://thedualdiagnosisdiaries.wordpress.com) to provide hope, raise awareness, educate others, and help individuals living with chronic illness understand that they are not alone. Through personal essays and educational content, I share my experiences navigating chronic illness, invisible disability, mental health challenges, fatigue, respiratory complications, employment, and the emotional realities of living with multiple autoimmune diseases.
Many of the topics I write about align closely with the content featured by The Mighty, including resilience, diagnosis journeys, treatment challenges, caregiver relationships, grief, identity, and finding strength through adversity.
I would love the opportunity to contribute patient stories, collaborate with your editorial team, or explore ways to share my journey with The Mighty community. My hope is that my experiences can help others feel seen, understood, and supported.
#MightyTogether #Crohn 'sDisease#MyastheniaGravis
Hi my name is Diane and I was diagnosed with fibromyalgia this Jan. I had a total hip replacement and I probably got fibromyalgia after the surgery. The surgery was in Dec 2025.
I have seen a rheumatologist and she started me on Gabapentin 300 mg three times a day and cymbalya 60 mgs once a day. I didn't like the first rheumatologist I went to , started seeing the new one this June
I have pain in my neck, my shoulders, the area next to your arm pit. My back, my upper thighs and my hands. I never thought this would happen. So far the meds aren't helping. I do go to physical therapy
First thing in the morning getting up is unbearable. So I'll walk around, rub my body with Biofreeze.Thst helps a little bit. My ankles are swollen. Had everything checked out no blood clots. I do wear the support stockings sometimes. Does anyone else take anything other than gabapentin and cymbalta. It was so bad one night I went to the ER.
Gave my 4 mgs of morphine introvenisly and it fell so good ,all the pain was gone. They kept me for 2 days in a room called pain control ,gave me Percocet and Toradol which helped a little bit. Then released me. This was before I knew I had fibromyalgia
I don't take any pain medication at all. If It would help I would take it but I don't want to get hooked on it.
The pain is 24/7. Can't even have one day where I'm not in pain. .
I guess I'm looking for what others do for the pain. I just need some support. Thank all of you
Just noticed it says I was having a good day, I'm not
I forgot to mention many years ago I had back problems before the fibromyalgia. I have 3 bulging discs. My pain management Dr tried every type of injections and they didn't work. Facet injections, radio frequency ablation, sacroiliac injections, trigger point injections they did nothing.
Before all these injections I saw another pain management Dr and he gave me epidural injection and it helped for years. I don't know why none of these recent ones didn't help. I saw a neurosurgeon and he looked at the MRI from 2025 and said it didn't warrant surgery. He said he knew I was in pain ,but wouldn't consider surgery
. I just had another MRI of the Lumbar and I have an appointment 2 weeks from now, I just want him to compare the 2 MRI'S and see if anything got worse, not that I'm looking for a back surgery. Must be part of the fibromyalgia affecting my back. I'm going to ask my pain management Dr to try some injections again
Hi, I'm Archana — a Myasthenia Gravis warrior since July 2020 and a life coach based in Kochi, India. I'm here because I spent a month on a ventilator in early 2025 during my fourth MG crisis, and I came out the other side with a smile and a story I believe needs to be told. I write about invisible illness, the battles nobody sees, and the quiet, stubborn will it takes to rebuild. If you're fighting something the world can't see — you're not alone, and you're stronger than you know.
#MightyTogether #MyastheniaGravis #MightyTogether #invisibleillnes #butyoulookfine