Does anyone know the best place to go to get treatment for mast cell disease? Anywhere. I’m in awful shape and really need help but can’t get proper treatment so far.
#MastCellActivationDisorder #MastCellDisease #MultipleChemicalSensitivity #Systemicmastocytosis #MyeloproliferativeNeoplasms #ChronicMyeloproliferativeNeoplasms
#Food #RareDisease #Mastocytosis #Systemicmastocytosis #Fibromyalgia #MentalHealth #ChronicIllness #TheMighty #ChronicPain
Today I wanted to share a thought with you. Recently on Instagram many have asked me where I take the courage to tell my story and my experiences.
I think that as long as we have a voice, we have to make ourselves heard,especially those who have rare diseases that are not yet know,so that people start to know us.
This is my opinion, there are those who are more reserved and there are those who want to shout out to the world its history, its wounds,its experience,perhaps to help the next 😊 #Systemicmastocytosis #Mastocytosis #RareDisease #ChronicIllness #MultipleChemicalSensitivity #Fibromyalgia #Spoonie #AutoimmuneDisease
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Does anybody else suffer from periods of super greasy hair and shampoos only making it worse rather than bettering it? I would love to get some recommendations on shampoo’s or other products that won’t make my greasy hair even more greasy when taking a shower #Systemicmastocytosis #Mastocytosis #MCAS #MastCellActivationDisorder #MCAD
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