I’m wrapping up a long day of traveling to meet a new doctor out of state and meeting up with old friends. I plan on starting to read the two books I bought. #ChronicIllness #ChronicPain #MentalHealth #chronicallymighty #Vasculitis
I’m in the waiting room and have mixed feelings right now. I want to believe this specialist with help control my vasculitis, but I’ve had so many doctors let me down in the past. #ChronicIllness #ChronicPain #RareDisease #vasculitus
I couldn’t find my bus stop and am in Philadelphia for the first time! Found my stop now but it was frustrating. How do you adequately plan? Also I use a mobility device during flares (so now). #Vasculitis #RareDisease #ChronicIllness
I am traveling from New York City to Philadelphia to try and pursue better treatment for my #Vasculitis (HUVS to be specific). Before I became a rare disease patient (after being #Undiagnosed for over a year), I never thought I would have to travel more than an hour to see a doctor.
#ChronicIllness #RareDisease #EhlersDanlosSyndrome #POTS #Fibromyalgia #chronicallymighty #CheckInWithMe
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