Vasculitis

Hi, my name is Ionna326. I'm here because of systemic problems relating to vasculitis and effects on the heart, mesentery and kidneys.

#MightyTogether #RelapsingPolychondritis #sjogrensvaculitis

I am sure that I have Vasculitis but

I cant find a Dr to diagnose me or else need months waiting list for appt.

I have Lupus and Sjogrens.

I would go anywhere on the East coast.

Thank you

#GranulomatosisWithPolyangiitis

Betrayed....
That's the word that comes into my mind, when I think about having
several chronic illnesses.
Betrayed by my own body. Having to fight just to do the "normal" things in life like
getting up, taking a shower, going to work etc.
Every time you think you've come to terms with the current status life throws
something new your way.
And there you are… Again standing before the next mountain they expect you to
climb.
In my case this mountain is named MPA (Microscopic Polyangiitis)
At the moment it's just a suspicion.
But I'm tired. Tired of getting a new diagnosis every other day. As if EDS, PTBS,
Autism, chronic Migraine blablabla isn't enough.
Tired of them expecting me just to take it. To put on that brave face and keep going
like it doesn't affect me.
Truth is: I am so scared right now.
And I don't know how to go on from here....
#DistractMe #CheckInWithMe #scared #EhlersDanlosSyndrome #Vasculitis

Hi, my name is RubiconRenegade89. I've been diagnosed with Vasculitis and Rheumatoid Arthritis.

#MightyTogether #Anxiety #Depression #RheumatoidArthritis #PTSD

Hi, my name is Sherry (MySharona for this site) I'm here because of a recent diagnosis of Livedoid Vasculitis and I’m hoping to connect with others whh have it.

#MightyTogether #VasculitisSyndromesOfTheCentralAndPeripheralNervousSystems

Hi, my name is FeliciaDistad. I'm here because I want to elevate patient voices and create a space where we have a more active role in our own care.

#MightyTogether #Vasculitis #GranulomatosisWithPolyangiitis #chronicallyill