nospleen

This year, back-to-school is not what it used to be for anyone. For parents, the hardest question is whether to send the children to the school or to do virtual. The risks of both decisions. The consequences of either could be detrimental to our kids well being.
Now imagine that on top of worrying about your children's safety, you also have to factor in being an immunocompromised parent. In my case, I have #multisystemicsarcoidosis . I am currently taking a daily immunosuppressant, methotrexate weekly and remicade infusions every 7 weeks. I also have no spleen due to #Sarcoidosis so I really have NO immune defense.
I have 4 daughters, grades 10, 7, 5 and 3… All of the girls have many reasons why in-person schooling would be most beneficial to their education and social development. I feel selfish to keep them home because of MY deficiencies. Children NEED social interaction, one of my daughters has an IEP which includes an hour 1-on1 with a resource teacher 5 days a week and distance learning did not go well for her. Another daughter is a straight A honors student and her grades dropped significantly at some points during distance learning.
I am so conflicted about this coming school year. The schools do not have proper ventilation, our state currently has a 15 person limit due to covid but the classrooms will have many more people. What if ONE student in one of their classes tests positive.and one of our kids catch it. And what if they pass it to me. The chances of me surviving covid-19 are not good. The thought of my daughters living without me is devastating.

What would you do in my shoes? Keep the kids home? Let them go to in person schooling?
#ChronicIllness #Sarcoidosis #Parenting #parentingwhilesick #ButYouDontLookSick #Conflict #BackToSchoolFear #nospleen

I have no immune system and haven't been to work since mid March, my job is closed and not sure when they'll open. But, I'm so scared to go back to work because of the no immune system and I work with the public everyday. I don't know how to handle this.

It is so hard getting sick on top of chronic illness. I've caught what i thought was a cold. Now I am getting worse. It gets so hard to see "out" when we fall so far in. My body continues to let me down, fears take over, and my anger with "it's not fair" erupts. #ChronicPain #t1diabetes #AdrenalInsufficiency #MuscularDystrophy #nospleen #nopancreas #noimmumesystem