Hi, my name is Karenhorses. I'm here because I'm feeling so lonely even when I'm around others. I was forced into disability retirement, covid hit, my husband has a career and narcolepsy. my best times are mornings till 3. When I'm totally alone. I have zero heat tolerance and live in Arkansas.... so Summer has been hades,literally! do to MS and retirement, covid, I've lost touch with even acquaintances. Is there anyone out there?
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I awoke this morning after yet another night on the sofa with Binks, my wee dog. I have chronic insomnia and so much pain I can’t climb the stairs. I was in luck last night, the start of a meteor shower, so many shooting stars, who needs fireworks? A brief glimpse the Northern Lights and a cup of tea at 3 o clock.
I’ve just kissed my husband, Paul before he goes to work. Every morning I make his sandwich, yes he could do it himself and happily would, but, it’s my little way of paying all his kindness back.
Ever since I had my Covid vaccine 3 years ago I have a shingles type rash in my genital area. It’s so, so painful, it’s like having pants full of fire ants.
It’s been a very, very rough 4 month’s, I’ve fallen down the stairs 4 times, bruised myself very badly, I’ve had Covid, 2 very dear, very fit friends died, far too soon. One a super fit, marathon running woman, days from her pension, had a back ache, went to the doctor and was told she had stage 4 pancreatic cancer, she lived just 11 days after diagnosis. The other a lovely, gentle bear of a man died from heart failure. One 65, the other just 60. It made me reflect that despite this godawful disease of mixed connective tissue disease, fibro, Behçet’s and rheumatoid arthritis, I’m still here. I’m so in tune with my body and its numerous creaks and groans I’d notice change. I miss them and will plant them roses in my rose garden. I’ve planted too many over 3 years.
Today I’m taking Binks my puppy out to the forest, it’s literally just our my door. I use my wheelchair, she runs ahead. I hope to sew butterfly wings for my granddaughter Emma and make a unicorn hobby horse.
I’m grateful for every moment of every day, could it be better? Of course, but, it’s still pretty wonderful.
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I have been struggling so much for so long. Today, I just feel like it is all too much. My whole life I’ve had one illness after another. Examples: frequent strep throat and tonsillitis as a kid; heavy periods and anemia as a teen; migraines began with menstruation but never diagnosed until my 20s; procrastination & disorganization with school/work (likely adhd); a rare kidney problem & kidney stones; hysterectomy (after 3 children) because of endometriosis & a painful adhesion; recurrence of a kidney problem that was undiagnosed for years; worsening of migraine; covid with long covid resulting in joint pain, brain fog, extreme fatigue, headaches, insomnia, hot flashes; a child with extreme anxiety/SI/SH with school avoidance; my husband is resentful because he feels I have not given energy to him for years & he no longer has energy to give toward me. I feel like a complete burden. I physically and emotionally cannot do what I need to or should be doing on a daily basis. I quit working 3 years ago because of the complied list (with my husband’s support at the time). When I think about it all, I feel like I have not been emotionally or physically supported by my partner. I don’t even know how to ask or communicate. If I’m direct or short, obviously it doesn’t go over well. It seems everyone under my roof responds best to my husband because I am too soft. I don’t have anyone to talk about this with unless it is a paid service/therapy. And it feels like emotional cheating voicing vulnerability here. I really am lot looking for sympathy. I would love solutions or advice or a hug.
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Living with long COVID can feel like an uphill battle, both physically and emotionally. One thing that makes a difference is having the right emotional support. 💬
What emotional support do you find most helpful in dealing with long COVID? Whether it’s talking to friends, therapy, mindfulness practices, or something else entirely—let’s share what’s been working. Your tips could help someone else feel a little less alone. 🤝💚
#longcovid #COVID19 #CheckInWithMe #Spoonie #ChronicIllness #PosturalOrthostaticTachycardiaSyndrome #ChronicFatigue #Fibromyalgia #MentalHealth
2 reactions Hi, my name is AnneD. I'm here because I have Long Covid, ME/CFS. Basically, I’m just sick and at home all the time. I’m an artist who doesn’t have much energy to make art, but I still love it, and I love art history. I have empathy for all of us who are dealing with grief, loneliness, and isolation
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For many people, Long COVID has reshaped social interactions. Fatigue, brain fog, and physical symptoms can make staying connected, attending gatherings, or keeping up with social commitments harder. Has your social life changed?
3 reactions Hi, my name is Matt I'm here to learn about and hopefully connect with others with CPTSD and I think it contributed to my Long Covid.
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Hi- I’m a 48 year female mother dealing with lots of health and mental health issues. My mom passed away a year ago and it sent me on a downward spiral. That along with having long term covid symptoms which caused what they think was a NSTEMI heart attack. I also have been diagnosed with anxiety, depression, ADHD, severe migraines, TMJ, PCOS, endometriosis, chronic fatigue and going through menopause, my body is in constant pain and doctors can’t figure it out so I’ve given up hope! My finances suck because of the world today and we are barely getting by. My job is super stressful and most days I force myself out of bed because I don’t want my son to see what’s happened to me and I’m ashamed. I did grief counseling briefly and quit because I couldn’t afford it. I now have social anxiety and when I’m not working I hide in my home. I’ve pushed most my friends and family away because I’m ashamed that I cannot cope with my feelings. Most days I wish I wasn’t here anymore but I don’t want to hurt my family. I just don’t see a light at the end of the tunnel. I feel like I’ve tried everything and nothing has helped! I do not like the person I’ve become. Am I alone?
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