But You Don’t Look Sick

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But You Don’t Look Sick
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Crisis in chronic illness is danger and also opportunity. God has the best interest of all who love HIM, and HE will make us strong while we suffer in medical crisis.
Pass Your Test!
Keep the Faith!
Suffer Well!
#ChronicIllness #RareDisease #ChronicPain #ButYouDontLookSick #Mito #sjogrens

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I often think that I’m lazy! #Lazy #Selfcare #ButYouDontLookSick

Today as in most days I slept till 11.30, took my meds and came down the stairs, took up residence in the indented corner of my sofa and have stayed in the same position all day other than doing a couple of tasks around the house, I know I’m pacing because I’m going to an event tomorrow but feel so lazy, I have to pace for 2-3 days to enjoy 4 hours out, and then I’ll be recovering for a couple of days after, is it really worth it?

59 reactions 16 comments

Fibromyalgia and marriage

This illness is ruining my marriage! I am writing in tears because my marriage is over because if this. My husband thinks it's all an excuse and because I haven't worked for so long I have no money. I have nothing! 25 years gone. Thanks! I am am so angry and lonely right now! #Divorce #ButYouDontLookSick #Fibromyalgia

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Mental Health Poem

You will never know how it feels to be me
Just breathing everyday feels like darkness is all I see
I’ve never felt normal with those around me
I just can’t help but to wish they would all accept me
Why can’t you understand my mental illness controls me
Stop saying I need to be happy like everyone should be
I wish I was absent sometimes so I can stop explaining myself
But leaving will make everyone think I gave up on life itself

❤️I love you and I’m proud of you❤️ #BorderlinePersonalityDisorder #ButYouDontLookSick #Depression #Community #normal #empty #Empathy

2 reactions

Dirty Looks

Yes, I wear lipstick. Yes, Eminem was playing from my car. Yes, I am 44 years old. Yes, I had to get groceries before the winter storm arrived. Yes, I have handicapped plates. Yes, the car belongs to me as do the plates. (❗️AND❗️) Yes, I see your dirty looks, glaring, shaking of heads, whispering and ignorant assumptions of what a handicapped person looks like. I owe you no explanation of my disability. You are not entitled to my health history. The audacity of people to verbalize comments 'that's a handicapped parking spot,' 'stop using your grandma car,' 'I'm going to report you.'
Listen assholes, I have more metal in my body than an aluminum can recycling center. I have Avascular Necrosis (AVN) or Osteonecrosis. I have rods, pins, plates, screws etc holding this body together. My hips went first. Bilateral hip replacements. Second, my left shoulder. Shoulder replaced. Third, knees. Bilateral knee replacements. Fourth, left ankle. Same story, same dance.
Like most, some days are better than others. Sometimes I need a cane, sometimes I don't. Sometimes I can get in/out of my car with minimal difficulty. Other times it takes me 10 minutes to align my hips, legs and feet to the ground.
Basically FK YOU and your dirty looks. #AvascularNecrosis #Osteonecrosis #ChronicIllness #ChronicPain #InvisibleDisability #InvisibleIllness #Disability #ButYouDontLookSick #Youdont knowme

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A Typical Day For Me Looks Like . . .

Many of us spend our time moving from one errand, doctor appointment, or task to another. Sometimes, because of our disease or disorder, we feel alone or different than others. But sharing the challenges we have to deal with can make us feel less alone.

Please share what a day looks like for you and connect with others on our journey.

#chronicilness #livingwithra #better2gether #Support #ButYouDontLookSick #RheumatoidArthritis

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living with a mental illness is not a smooth path, but it’s not an impossible one either. we make mistakes. we learn. we fall. we get up and put ourselves back together again. anxiety makes you feel stuck and maybe you haven’t heard this in a while, but it’s okay to be stuck and be frozen; you don’t need to have it all figured out.

#SocialAnxiety #AnxietyDisorder #MentalHealth #Emotionallydrained #ChronicDepression #ChronicIllness #Bekind #CheckInWithMe #ButYouDontLookSick #Support #CPTSD

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What makes it hard to trust God? How to you cope with it?

What is something that happens or happened to you that makes it hard to trust God? What are ways that you cope with that and continue to trust God? #ChronicIlless #Christians #ButYouDontLookSick #Jesus #Jesussaves

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When did you know it was time to change jobs, reduce hours or quit work, due to your health condition? #Work #MentalHealth #Lupus #ButYouDontLookSick

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Dry Heaving and Vomiting

I’m not even sure where to ask this question. I have been dry heaving and vomiting over the last two months and it has been increasing. Taking a shower and strong odors trigger it. No chance of pregnancy. Has anyone experienced these symptoms? #MightyQuestions #ButYouDontLookSick

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