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#RareDisease #RareDisorder #RareBloodDisorder #RareHeartDefect #RareCongenitalDisease #RareDiseaseParenting #RareAndMighty
How would you describe your medical family? Are they recurrent (you see them periodically) or transient (just for a couple of consultations or specific procedure)? For me it's:
Recurrent:
1 Internal Medicine Doctor (Primary care)
1 Naturopathic Doctor
1 Dysautonomia Cardiologist
1 Connective Tissue Cardiologist
1 Dysautonomia Neurologist
1 Neuromuscular Neurologist
1 Podiatrist
1 Physical Therapist
1 Occupational Therapist
1 PM&R Doctor / Physiatrist
1 Endometriosis OB-GYN
1 General OB-GYN
1 Geneticist
1 Rheumatologist
1 Dermatologist
1 Upper GI Gastroenterologist
1 Otolaryngologist
1 Dentist-Endodontist
1 Orthodontist
1 Allergist-Immunologist
1 Orthotist
1 Behavioral Therapist
1 Endocrinologist
1 Vitreo-Retinal Ophthalmologist
1 External Disease and Cornea Ophthalmologist
1 General Ophthalmologist
1 Optometrist
Transient:
1 Audiologist
1 Oral & Maxillofacial Surgeon
1 Gastrointestinal Surgeon
1 Sleep Medicine Doctor
#EhlersDanlosSyndrome #AutonomicDysfunction #LivingWithPOTS #ChronicIllness #Disorder #RareDiseases #RareDisorder #RareDisease #RareCongenitalDisease #MastCellActivationDisorder #connectivetissue #Endometriosis
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