connectivetissue

And with that picture . In a little way I felt like I was there ..

I seriously have the greatest friends . Do to severe GI symptoms I had to miss out on my friends “ Gothic Plant “ themed birthday party I’ve been looking forward to for months

And All night I was getting pictures of the party on our group chat .

My friend made me one of the
“ grave yard terrariums “
( on her birthday! 🥺❤️❤️ )
And yes my tombstone is yellow , sparkly and covered in unicorns 😂❤️. My real tombstone ( when I’m 90 ) better be this cool . 😂❤️

They sent me a pic of my graveyard 🪦 . ( which was delivered to me by an amazing friend who lives close )

And then they sent a pic of my graveyard . With everyone else’s .

And my little poetic heart kind of burst 🥺❤️.

Because being chronically ill .
Your constantly canceling plans you don’t want to cancel . And constantly feeling like the worst friend ever .

And I’ll be honest through my life ( Especially when I was “dying “ in high-school .
id try not to get to close to people ( which is hard when you are a raging extrovert who thrives off of human connection . )

Because I didn’t want to be a disappointment.

My warped thinking was. ( and I have to admit sometimes still is )

You can’t be mad your friend canceled on an activity if you didn’t really care if they were there in the first place 🤷🏼‍♀️.

But that little act , of having my terrarium in the photo .
In a little way it felt like I was there …
If only in spirit. ❤️

I seriously have the most loyal friends in the entire world .

#smileon🐷 #spoonie #Friends #selfworth #ChronicIllness #spoonie #beafriend #loyal #christianblogger #graveyard #greatestfriendsever #MightyTogether #CVID #RareDisease #UCTD #connectivetissue #warrior

Does anyone else ever have pain after being touched? Went to a new rheumatologist today - didn’t hurt during the exam, but the pain later on was awful!!! Still there today, I can feel each joint she squeezed and each one she rotated…
#Fibromyaliga #connectivetissue ????