Raynuads

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    How does CFS affect your work or school performance?

    Living with chronic fatigue syndrome can be challenging, so when you add a job or a full-time academic load into the mix, the struggles (as well as the opportunities) can multiply.

    What has your experience been like? Is there anything that has helped (or would help) you better manage your condition at work or in school?

    Share the good, the bad, and your reality with us in the comments below.

    💕 P.S. For anyone whose health makes it impossible for them to work right now, your experiences are valid too. We see you.

    #ChronicPain #ChronicIllness #COVID19 #ChronicFatigueSyndrome #PosturalOrthostaticTachycardiaSyndrome #AutoimmuneDisease #Spoonie #Fibromyalgia #IrritableBowelSyndromeIBS #Migraine #Depression #Raynuads

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    Share an example of something unhelpful or harmful someone has said to you when discussing your CFS.

    Sharing your experiences with others about living with chronic fatigue syndrome can be incredibly validating, but sometimes other people’s reactions can be disappointing and hurtful (even if done unintentionally).

    Have you been told something unhelpful or harmful when talking to others about your CFS? How did you respond?

    #ChronicPain #ChronicIllness #COVID19 #ChronicFatigueSyndrome #PosturalOrthostaticTachycardiaSyndrome #AutoimmuneDisease #Spoonie #Fibromyalgia #IrritableBowelSyndromeIBS #Migraine #Depression #Raynuads

    17 reactions 10 comments
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    What is your most frustrating CFS symptom? How do you cope with it?

    No matter what health conditions you live with, the symptoms manifest differently for each patient. The same can be said of chronic fatigue syndrome.

    What has been your most challenging CFS symptom and why? What coping strategies would you recommend to others? Share in the comments below. ⬇️

    #ChronicPain #ChronicIllness #COVID19 #ChronicFatigueSyndrome #PosturalOrthostaticTachycardiaSyndrome #AutoimmuneDisease #Spoonie #Fibromyalgia #IrritableBowelSyndromeIBS #Migraine #Depression #Raynuads

    75 reactions 30 comments
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    What advice do you have for someone who is newly diagnosed with CFS?

    Imagine you have the opportunity to chat with someone who was just diagnosed with chronic fatigue syndrome. They may be overwhelmed, relieved, confused, or unsure how to process their new reality.

    What would you say? What advice, words of wisdom, or tips would you pass along?

    #ChronicPain #ChronicIllness #COVID19 #ChronicFatigueSyndrome #POTS #AutoimmuneDisease #Spoonie #Fibromyalgia #IBS #Migraine #Depression #Raynuads

    10 reactions 20 comments
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    What’s a common misconception about chronic fatigue syndrome?

    Although we have learned more about CFS/ME in recent years, many misconceptions and myths about the condition still remain. This is especially true since COVID emerged, as some long-haul patients have been diagnosed with it.

    Which misconceptions do you encounter most often or wish would be debunked?

    Share it with us in the comments below. ⬇️

    #ChronicPain #ChronicIllness #COVID19 #ChronicFatigueSyndrome #PosturalOrthostaticTachycardiaSyndrome #AutoimmuneDisease #Spoonie #Fibromyalgia #IrritableBowelSyndromeIBS #Migraine #Depression #Raynuads

    94 reactions 23 comments