reflex sympathetic dystrophy

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Mixed feelings: moving into an assisted living facility/adult family home due to severe, undertreated CRPS

Hello everyone, I joined this app today. Thank you, God, for giving me the strength to reach out to others.

In less than a day and a half, I'll be moving into an assisted living "adult family home" with 24/7 caregiver support.

I have severe CRPS along with several of its eccentric health issues. I'm 31 years old.

Lord, I pray I will always put my faith and trust in you to lead me through life's challenges.

#ComplexRegionalPainSyndrome
#CRPSWarrior
#crpsawareness
#ReflexSympatheticDystrophy

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Hi, I'm Steven. I have been living with RSD for 22 years but in the last two years I have deteriorated rapidly. My question is, how bad will it get?

#ReflexSympatheticDystrophy

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How do I explain?

I stubbed my toe. Yup. That's it. Not even a bruise.
It's been an hour. I'm not injured and I should feel fine.
But because of my CRPS, I hurt up to my knee. I can't put weight on it. It feels like someone is driving nails into me. I have tears in my eyes.
If I tell anyone what really happened, they'll think I'm just being hysterical.
How do you explain the way your body overreacts? How do you tell them this is what CRPS does and get them to believe you? #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Hyperalgesia #Allodynia #ReflexSympatheticDystrophy

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