allodynia

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    Don’t force yourself to wear what doesn’t feel good

    <p>Don’t force yourself to wear what doesn’t feel good</p>
    9 people are talking about this
    Community Voices

    Shoutout to the grandparents

    <p>Shoutout to the grandparents</p>
    3 people are talking about this
    Karianne M

    How to Cope With the Distress of a Fibromyalgia Flare-Up

    So you have been diagnosed with a chronic illness. No cure is offered to you, instead some temporary relief or tools to cope. Now what? For a number of reasons, depending on your illness, your body will decide to go on “overdrive” and create what most will call a flare-up. Medicinenet.com refers to it as: “Flare: 1. an exacerbation of a chronic disease.”  This exacerbation of symptoms can be quite distressing to an individual’s mental and physical state of being. What do I mean by physical distress? Here are some examples. Allodynia is pain that is provoked by something that would not usually hurt.  Sudden onset of migraine, pain, fatigue, and other symptoms can occur, or suddenly get worse. What types of mental distress can you experience during a flare? An increase in anxiety Bouts of depression Feelings of loneliness Anger or grief How can you learn to cope with a flare-up? Here are some tips that have helped me through the years: Have a flare-up emergency kit at the ready to help keep your mind off the pain Talk to someone you love or find support online Deep breaths. It does feel like it will never end and it is hard but it will pass Try to notice what brings on the flare-ups. Are there any cues? Is there anything that stands out about your day? Rest, rest, and more rest. As I mentioned above, flare-ups can be overwhelming and feel never-ending. Our bodies are resilient and in those moments they are just trying to adjust to their brain signals. I will leave you with this powerful quote by Christopher Reeve: “A hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles.”

    Community Voices

    Tonight I am at the end of my rope. I am having anxiety surrounding my fibro. I believe either allergies or a sinus infection is lingering and its making feel like sh*t. I am exhausted so my mind is on overdrive. Im experiencing allodynia. I just want it to stop . I hate when it gets this discouraging, would appreciate words of encouragement #Fibromyalgia #ChronicIllness #Anxiety

    2 people are talking about this
    Community Voices

    Does anyone have the symptoms of allodynia? I had a fibromyalgia flare up recently that was so uncomfortable and frustrating that it led to tears.

    Everything bothered me constantly for a couple of days. Here’s a list of what I experienced: All tags from my clothing, elastic from bras and panties, wrinkles in anything touching my skin, (clothing, sheets, etc.), all seams, (on furniture, clothing, etc.), and vulvadynia, (the vaginal area of my body was so painful that I couldn’t sit).

    I was constantly shifting around to get comfortable. Very anxiety provoking.

    5 people are talking about this
    Community Voices

    Fibromyalgia getting worse?

    Fibromyalgia isn't supposed to get worse but I've started experiencing horrible itching, buzzing, and allodynia on top of the tremors, fatigue, and general pain. I'm covered in bruises now. Any thoughts or similar experiences? #Fibromyalgia

    17 people are talking about this
    Community Voices
    Community Voices

    A dog and his auntie managing spoons and boundaries

    <p>A dog and his auntie managing spoons and boundaries</p>
    2 people are talking about this
    Community Voices

    1st allodynia flair😥 It's under bra strap and where my pants fit around my waist. Can I expect it to go away with time, or will it keep speading?

    5 people are talking about this
    Community Voices

    Has anyone else had sudden allodynia on-set and what do I do? My clothes and sheets are killing me!

    2 people are talking about this