Relapsing Polychondritis

I am just a guy trying to learn and get the word out on this crazy, rare, autoimmune disease. This is my first foray in trying to help others and myself learn more about #RelapsingPolychondritis

Hi, my name is oldjc. I've recently been diagnosed with Relapsing Polychondritis. I have had the other 3 for 20 plus years.
#PeripheralNeuropathy #PsoriaticArthritis #RelapsingPolychondritis #Psoriasis

Hi, my name is Kinnie47. I'm here because my chiropractor suggested that I may have Ehlers Danilo’s syndrome as well as my relapsing polychondritis & cosochondritis.

#MightyTogether

Hi, my name is Ionna326. I'm here because of systemic problems relating to vasculitis and effects on the heart, mesentery and kidneys.

#MightyTogether #RelapsingPolychondritis #sjogrensvaculitis

Hi, my name is LisaLeeLeeBlue. I've been diagnosed with Relapsing Polychronditis! I am sooo relieved after being “the sick kid” then pushing through pain and infections for 20 years while performing and teaching dance, gymnastics, cheerleading, and acrobatics. I can’t believe all the times I had to call out and never got a paid sick day and often did not have health insurance and danced and flipped my way into the hospital, I feel like a superwoman looking back at how I powered through so much. My friend said I make pain look good. alllll the docs and specialists said it was wear and tear, in my head, anxiety and asthma. Nope. At 37 years old I finally found out I’m not weak or a whimp. I’m actualyy stronger and tougher than allll deez btches!! When my right elbow collapsed and dislocated while doing a slow, simple, low impact acro skill, I knew I had something more than just fibromyalgia chronic fatigue chronic pain asthma allergies anxiety and depression. That I didn’t wanttt to go to the hospital a few times a month or create infections with my mind. i never did more than drink alcohol in high school, but my nose collapsed at 17 years old like hardcore coke user. (no offense at all for those who did or do, I was too scared since I always had reactions to everything) 2 reconstructive nose surgeries later, I still have had trouble breathing but ENT’s said it all looked fine. I had a daughter, then my body fell apart in every direction for the past year. Doctors were mad that I wanted referalls to specialists. I’m a mom now and my daughter needs me to give her a great life! I want to be the mom I’ve been dreaming of being since I was her age… but I can barely move, I have no energy, I can’t remember sht, I get fired from every job for being late or calling out sick because of pain and infections… I finally got a new doc that when I cried he took blood and took me seriously, and the ANA arthritis got me to a rheumatologist who was so excited to see abd hear my symptoms that he called another doc in the room to look at me. lollll. To know that I have this rare sometimes fatal disease is to know I am so much tougher than I ever thought. And now I can manage my symptoms properly, adjust my diet, and show my daughter how to be Superwoman!!

#MightyTogether #Anxiety #Depression #Fibromyalgia #RelapsingPolychondritis #ChronicIllness

Hi, I was wondering if anyone out there has tried this treatment? #RelapsingPolychondritis #RareDiseases

Hi, my name is lauriebrp. I'm here because I suffer with RP. the lack of knowledge and support causes this disease to cause damage to our bodies, and souls. I wa hoping to share my knowledge and experience and want to learn from all of you

#RelapsingPolychondritis

Hi, my name is MrsAE. I'm here because I spend most days on my bed resting and thought it might be nice to have similar people to communicate with.

#MightyTogether #RelapsingPolychondritis #Polymyositis

Hi, my name is Tammycrazyhouse. I’m new to The Mighty and look forward to sharing my story.

#MightyTogether #RelapsingPolychondritis