We are currently looking for a new Co-Leader for the Multiple Health Challenges group. We have grown quite a bit and just passed 1,500 members. In the past co-leaders have been golden, really helpful for me when I got sick or burnt out and had to step away for a few days. I am looking for someone to welcome new members, comment or respond to most posts or other comments, make new posts to the group every once and a while, and preferably someone who has physical and emotional health challenges so they can best relate to and understand where other members are coming from when they post or comment.
It is important for the group to have two distinctly different voices to support people because people might relate more to one of us. What is a really good situation is if we both respond to the same posts, welcome new members from different perspectives and provide voices for people that are accessible and relatable. There is a commitment needed that you monitor activities on the group regularly and can respond pretty quickly.
Offering your own posts provides more content for the group…and when posts pose a question they keep things moving forward. I can assist and support by offering to look at your new posts for feedback and editing before you post if you would like it, comment on your posts to get the responses going to best support your efforts, help finding memes or images, and support you if we are dealing with someone struggling …. Like sounding suicidal or being manic…and I will check in to make sure you are happy and comfortable!
I look at potential leaders' history of posts and/or comments that have helped and supported others in the past. Willingness to be honest and open about your own health challenges is crucial to best support people. A co-leader works together with me for some new posts and drafting new questions and is concerned about the well being of all members and can empathize with their paths.
You will get access to the Community Leaders group and your name will have a “Group Leader” tab next to it up top on your comments and responses so I think people pay attention especially to your activity and wisdom shared from personal experience. Would you consider joining me on this journey? Let’s have a DM chat to discuss this! Thanks for considering taking on this role!
#Depression #Anxiety #MentalHealth #ChronicPain #Chronicpainwarrior #Disability #BipolarDisorder #BipolarDepression #Bipolar2Disorder #Bipolar1Disorder
#Stigma #ObsessiveCompulsiveDisorder #ADHD #Autism #Dementia #Addiction #AddictionRecovery #Cancer #TraumaticBrainInjury #BrainInjury #LossOfAParent #Grief #SuicideSurvivors #ChronicFatigueSyndrome #DistractMe #HIVAIDS #longtermsurvivor #ChronicIllness #ChronicPain #MightyQuestions #DownSyndrome #IfYouFeelHopeless #Hope #Deafness #neckpain #BackPain #CongestiveHeartFailure #Migraine #COVID19 #PeripheralNeuropathy #LymeDisease #Diabetes #EatingDisorders #Headache #Stroke #help #BorderlinePersonalityDisorder #Fibromyalgia #Disability #thankful #grateful #EatingDisorders #CocaineDependence #drugaddict #alcoholic #PTSD #EmotionalHealth #physicalhealth PainAcceptance #Acceptance #relief #Selflove #MightyMinute #MentalHealthHero #TheMighty #RareDisease #MightyTogether
Living with a chronic illness or disability doesn’t mean you can’t go outside to explore or have adventures, but planning and preparing is key (and something not a lot of non-disabled people even realize).
What are some tips and tricks that help you prepare for outside activities?
🗺️ Need a few others? Check out Amy Denton-Luke’s new Mighty story here: 5 Tips for Exploring the Outdoors With Chronic Illness
#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Cancer #Anxiety #PTSD #CheckInWithMe
25 years ago had left frontal lobe and Pons stroke. 2 hrs from home. Spent week in Saginaw hospital. During stroke had out of body experience. Weird. Survived minor effects. Happy Birthday . 65yrs/25 years old 10-18-52. Still xicking and ornery as ever . Delanie's story causes memories. Thanks delanie.
I took several tumbles on cement stairs over a four month period. After the first fall at my physician’s office, I thought I just tripped. When I fell on the back steps at home,, I started to wonder if there was something wrong with me. I began to have dizzy spells many months prior to my accidents. I would wake up with the room spinning, or it would occur suddenly. Then my balance was off sometimes when I was home, and I’d bump into walls as if I were drunk.
I had an appointment with my neurologist’s PA , and she ordered several tests to determine why I’ve been having these issues. Once the results were in, I was given the diagnosis of peripheral vestibulopathy and central involvement. This is defined as”the perception of the brain and the information apparatus which sends details to it is faulty”. The PA prescribed vestibular therapy (aka balance rehabilitation) for me at home for eight weeks. This exercise-based regiment is designed to promote vestibular adaptation and substitution.
One of the things that A. mentioned to me was that I’d have to use a walker or cane for the rest of my life. Since my symptoms were always unpredictable, utilizing these would prevent me from injuring myself again. I wasn’t happy about it at first. Eventually, I came to realize that my poor husband needed a break from doing first aid and rushing me to the ER.
I was fortunate to have an excellent rehab therapist who was very well versed in this area. S. took the time to explain what the goals of VRT
(vestibular rehabilitation therapy) were:
1) to enhance gaze stability
2) to enhance postural stability
3) to improve vertigo
4) to improve daily activities
When he’d explain each exercise and demonstrate how it was done, I’d say something funny about it. For instance, he’d state, “walk toe to to toe five times back and forth”. I’d say, “Oh, you mean “the am I drunk test.” He’d say,”Stand on one leg for as long as you can”, and I’d say, “You mean act like a flamingo”. This went back and forth for several minutes to where we couldn’t stop laughing. I just had to lighten things up otherwise I’d take myself too seriously. Recovery time for this sort of problem can take anywhere from weeks, months, to years. This is why it’s so important to continue on even after the therapy sessions have ended.
I still have vertigo at times but at least there’s a way it can be treated. Plus, with the assistance of my walker or cane, it allows me to take steps safely. I wish I would have known sooner that problems can still occur years later after having a #Stroke. Oh well. Better late than never.
I did not know I was PSTD, depressed (that I did figured), ect until I had my strokes. Some doctors said I can only expect X amount speech or lucky if I can walk with a cane and others. Try not anyone to limit you but I pushed myself too much for several years, I am stubborn, but I am better of realizing my limitations and work smarter.
Everyone is different, stroke "victims", I do not know why I went to my home after 184.108.40.206 months but that was not an option 2 weeks before. I did not need a walker, I had a cane for 9 months. I know I am fortunate but it is also putting in the work and there is times I am so down and can not figure out how to pull up.
Things, thoughts, stressing, strengths, ect for me are all, not at the same time I hope, I realize day is not a paperwork day, try tomorrow or if it is urgent I need help. If I realize I am in a "funk" or my cousin or friends notice, they pull me up or kick my backside. If you want, do what you need, want, try, ask and asking help is strong than you think.
Hello everyone, I am new here and found my way due to a now chronic pain syndrome I have developed following my stroke six months ago. I have no motivation to get up and face the day with all of these sensations and wondered if anyone would like to share how they cope? Did things get better with time as far as acceptance?