Hi, my name is psouerslpc. I've been diagnosed with CNS Vasculitis after having 3 strokes at the age of 7 (now I'm 33) and recently was diagnosed with Behcet's Disease. I'm interested in learning ways to support myself and others who have chronic illness and chronic pain as I am a mental health therapist. Just looking to learn more about myself and ways to help others :)
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My wife and I have been working on making craft items to sell. It started with knotted friendship bracelets and bottle cap magnets, but when my mom passed away in February of 2024, I was given any of her crafting items to use for the business. Two cricuts that I barely knew how to use (I gave one away), a mug press and about a 100 mugs, with infusible ink paper and tons of vinyl, so much card making material, and a lot more that I didn't even know what it was. I'm still learning, and sometimes I get so frustrated because mom would have known how to do it, except for the mug press. She wanted me to learn how to use it and then teach her, but I kept procrastinating right through the time she had her stroke. I really hate that I never made time to do that for her, that I wanted to be so unlike her that I took away something that would have brought her joy. I learned a lesson when she passed about not wasting time, that tomorrow may never come, and I dearly wish the lesson I had learned was how to make a mug while spending time with my mom.
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Managing chronic pain is challenging—physically, emotionally, and mentally. It can also feel isolating as you try to figure out what works best for you and your body. But discovering helpful coping mechanisms, tips and tricks for relief, supportive communities, and reliable resources can make a meaningful difference, even if just for a moment. You are not alone!
Our Tips, Tricks, and Hacks for Chronic Pain collection brings together real-life insights and practical strategies shared by people who understand. Whether you're looking for new ways to ease discomfort or simply feel seen, this collection—and our Mighty community—is here to support you. 🌟
Explore the collection here:
Tips, Tricks, and Hacks for Chronic Pain
#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #POTS #Spoonie #Lupus #Endometriosis #Depression
#Cancer #Anxiety #PTSD #CheckInWithMe
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My name is Malini Amaladoss, and I’m reaching out to share a deeply personal podcast I created called “Stroke of Silence.”
This podcast chronicles the journey my family endured after my husband suffered a major stroke—and the devastating delays, miscommunications, and systemic failures we faced while trying to get him the care he needed. Through each episode, I unfold the real and raw story of what happens when time-sensitive medical decisions are lost in silence, and how families like mine are left to fight alone for answers, justice, and basic compassion.
In parallel, I’m also writing a memoir titled “Code Silent: Love, Loss, and the Fight in a Broken Healthcare System,” which dives even deeper into our experience. Both the podcast and the book are part of my commitment to raise awareness, drive accountability, and advocate for better patient-centered care.
You can listen to the podcast and learn more at:
(The podcast is also available on Apple Podcasts, Spotify, and YouTube.)
If this aligns with your mission, I would be honored if you could take a listen—and consider sharing it within your network or community.
Thank you for the work you do in supporting stroke survivors, caregivers, and healthcare advocacy. Together, I believe we can amplify these stories and push for meaningful change.#strokeofsilence
Malini Amaladoss
Hi, my name is Julz11. I'm here because I want to connect and serve others as well as learn from others too.
3 reactions Hi, my name is newME4ever. I'm here because I feel lost in the sea of anxiety's physical sensations. It's been 5 years of the anxiety rollercoaster... only to learn that I have been married to a narcissist for 15 years.
We have split up, live apart and I have gone NO CONTACT.
My anxiety has gotten worse in last 2 1/2 months. Sensations (new & old) seem to flooding me with wave after wave.
My support system, is my mother, that's it. I had no friends due to my marriage and partly my choice because people always ended up hurting me in some way. It was safer to not invest in friendships.
My heart is FINE (had it checked twice in 4 years) but my go-to thoughts of sensations is heart attack or stroke.... and I'm not even 50 years old.
I'm hoping to find ways to work through this really challenging time of my life.
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Well, Doctors have always been a challenge for me. Not only do I feel like my past continues to haunt and challenge me when it comes to living my life but I have been having dizzy spells and some chest pain.. sometimes sharp chest pain when I am overly stressed. My doctor is either just tired of me coming in or this could actually be a diagnosis that makes sense? She is going to get me to do a ecg. I have had one in the past but no results came back. I struggle with serverr depression and have some cptsd symptoms so having to do anything medical related can make me spiral a bit and feel guilty of not getting this dealt with sooner. When I researched dysautonomia I was surprised to find that the dizziness, irregular heart beat and blood pressure makes sense. Even the fainting makes sense as when I go to give blood I have to lay down after a fainting incident year ago. I also got horrible heat stroke as a child and would end up vomiting very easily if I could not cool myself down in time. I am hopeful that there is more research and understanding of this coming out there. I mean in the world of ai. I really think that the future of health will get better now that we can track symptoms and see what matches from data. Take care lovely people of the Mighty community.
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I've always loved being in the water. Being immersed in water helps my muscles relax and allows me to move my body in ways that are far more strenuous on land.
I've spent years doing various Aqua therapy programs, which have helped improve my mobility in many ways. One day, as I was staring out at a friend’s pool, admiring it, I decided I wanted to conquer the pool in a way I never had before – one hundred laps, there and back. I knew it would be a challenge and I could not accomplish such a feat on the first try, but that was okay. I had devoted the summer of 2013 to the challenge.
I committed to starting with five laps, there and back. I took a deep breath as I entered the water. I completed the five laps and kept going. Five turned into ten. Then ten turned into fifteen.
As I continued swimming, I assessed my body and pushed for just a few more laps. Exhausted, I made it to eighteen laps on my first swim of the season.
After reaching eighteen laps, I set a new goal of twenty-five. Again, I took to the water and swam with my whole heart. My goal came and went as I pushed myself harder. Thirty-eight, thirty-nine… forty laps! Once again, I had exceeded the goal I set for myself. I felt amazing.
My friends and family supported my goal by encouraging me to continue to push myself in healthy ways. They encouraged balanced nutrition, drinking plenty of water, and reapplying sunscreen as needed. They cheered me on throughout the process, giving me greater strength and determination to succeed in my goal.
As my journey to reach one hundred laps continued, I let go of everyone else’s opinions of how I should be swimming and listened to my body’s intuition as it guided me along each stroke of each lap. It didn't matter that I didn't use the "perfect form" or that I used multiple strokes to get to the end of the pool. Each lap built upon the last and I gained greater strength and stamina.
After months of practice the day arrived: I was finally going to conquer this goal. One lap after the last, in succession, I approached my goal with excitement. Ninety-eight… ninety-nine… one hundred!
What seemed to be an impossible goal not only became possible with great support and encouragement from people in my life, it was met with exhilaration that spilled over into each area of my life. I conquered the water and continue to conquer living with Ehlers-Danlos Syndrome. #EhlersDanlosSyndrome
So, my older cat has had some congestion type issues pretty bad for a few months. We've been taking him to the vet and tried a few things and he gets a little relief from the twice daily inhaler but nothing else has helped. He's lost a pound and a half in a month and a half and today we took him in to get him scheduled for a CT scan and confirm there's not much we can do but wait for the results of it. While we were at the vet she noticed that there's a pretty big difference in how dialated the pupils are. In getting a picture of it I noticed the 3rd eyelid hanging out on the eye that isn't as dialated. I am so afraid we are going to do this scan and be told that there is nothing they can do for him. Tomorrow is my husband and my anniversary only I don't feel much like celebrating right now. We already made plans with friends and I'm not going to back out (unless something changes again) but I am not feeling so great right now. I keep thinking either he could have cancer or had a stroke or something and with the weight loss...I am scared we are going to lose him. But I also hate that he's suffering. Mostly this is just an emotion dump because I need to get it out somewhere. I know we are doing the right thing working with the vet. My mother lives with us so she will be with the cat while we are out so she can keep an eye on him if anything changes. Just my husband is at work and my mom is not very good at comforting me.
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Hi, my name is Tipperarian1. I'm here because I want inventive ways to look after someone with post stroke pain
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