Hi all, I'm dealing with old and new diagnosis' and challenges. I'm overwhelmed with all the appointments I have coming up and still needing scheduled.
I have Cardiology, Imaging x3, Neurology, gastro, Pain management, opthalmology etc
I'm struggling dealing with the old and new health issues, and dealing with not being able to do a lot for myself like laundry.
How do you all do this with limited help?
Hi all! My name is Tinie ( tee Knee) I'm 38. I have CRPS, POTS, MDD and last week had a stroke. I have always loved writing and usually just write for me. My writing tends to be dark, I don't have the best outlook on life. Writing is cathartic for me, it's just a raw expression of how I'm feeling. If you want to read more of my poetry, check the link in my bio.
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I bought the mold itself. I painstakingly poured the resin and painted the white. #resinart #LGBTQ #pridesupporter #rainbowskull #CRPS #Stroke #POTS #crafts
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As darkness fell,
Cries break the silence of the night,
But go unheard, flames and lightning rip through her body
Tears fall...
Screams silenced, her body goes still
Her tears dry, her eyes close...
Pain dissipates, thoughts fade
She exhales her last breath
Everything goes still and quiet
She has mercy at last
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#CRPS #POTS #Stroke #Depression #Anxiety #Anxiety
So I just got out of the hospital after having a mini stroke, I'm 38. and was also diagnosed with POTS. It's rendered me pretty useless, I barely can care for myself. I pass out if I stand or walk or sit up. I have CRPS in my right arm and weakness in my left arm and leg. They had to care for Otto for me.
I'm feeling like a burden and pretty worthless at the moment. I feel like everything is on my dad's wife's shoulders as she is also his ft caregiver, he had a stroke in 2019.
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Hi, my name is psouerslpc. I've been diagnosed with CNS Vasculitis after having 3 strokes at the age of 7 (now I'm 33) and recently was diagnosed with Behcet's Disease. I'm interested in learning ways to support myself and others who have chronic illness and chronic pain as I am a mental health therapist. Just looking to learn more about myself and ways to help others :)
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My wife and I have been working on making craft items to sell. It started with knotted friendship bracelets and bottle cap magnets, but when my mom passed away in February of 2024, I was given any of her crafting items to use for the business. Two cricuts that I barely knew how to use (I gave one away), a mug press and about a 100 mugs, with infusible ink paper and tons of vinyl, so much card making material, and a lot more that I didn't even know what it was. I'm still learning, and sometimes I get so frustrated because mom would have known how to do it, except for the mug press. She wanted me to learn how to use it and then teach her, but I kept procrastinating right through the time she had her stroke. I really hate that I never made time to do that for her, that I wanted to be so unlike her that I took away something that would have brought her joy. I learned a lesson when she passed about not wasting time, that tomorrow may never come, and I dearly wish the lesson I had learned was how to make a mug while spending time with my mom.
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Managing chronic pain is challenging—physically, emotionally, and mentally. It can also feel isolating as you try to figure out what works best for you and your body. But discovering helpful coping mechanisms, tips and tricks for relief, supportive communities, and reliable resources can make a meaningful difference, even if just for a moment. You are not alone!
Our Tips, Tricks, and Hacks for Chronic Pain collection brings together real-life insights and practical strategies shared by people who understand. Whether you're looking for new ways to ease discomfort or simply feel seen, this collection—and our Mighty community—is here to support you. 🌟
Explore the collection here:
Tips, Tricks, and Hacks for Chronic Pain
#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #POTS #Spoonie #Lupus #Endometriosis #Depression
#Cancer #Anxiety #PTSD #CheckInWithMe
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My name is Malini Amaladoss, and I’m reaching out to share a deeply personal podcast I created called “Stroke of Silence.”
This podcast chronicles the journey my family endured after my husband suffered a major stroke—and the devastating delays, miscommunications, and systemic failures we faced while trying to get him the care he needed. Through each episode, I unfold the real and raw story of what happens when time-sensitive medical decisions are lost in silence, and how families like mine are left to fight alone for answers, justice, and basic compassion.
In parallel, I’m also writing a memoir titled “Code Silent: Love, Loss, and the Fight in a Broken Healthcare System,” which dives even deeper into our experience. Both the podcast and the book are part of my commitment to raise awareness, drive accountability, and advocate for better patient-centered care.
You can listen to the podcast and learn more at:
(The podcast is also available on Apple Podcasts, Spotify, and YouTube.)
If this aligns with your mission, I would be honored if you could take a listen—and consider sharing it within your network or community.
Thank you for the work you do in supporting stroke survivors, caregivers, and healthcare advocacy. Together, I believe we can amplify these stories and push for meaningful change.#strokeofsilence
Malini Amaladoss
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