I had a lumbar puncture Friday, and while it was a temporary bandaid, my headaches are getting worse again. My blurring vision has started up again, but I have an appointment with my neuro-ophthalmologist tomorrow, so hopefully that goes well. I also don’t want to jinx it, but I’ve finally got a neurologist appointment next Tuesday with a doctor who treats IIH. We’ve been waiting since March, and I’m very grateful it’s happening.

I think I just feel so lost, and like my treatment plan is so up in the air and wishy-washy that I’m just existing. Everything just takes time, and I hate waiting. I think I could use some words of encouragement, if anyone’s got some to spare.

#CheckInWithMe #wordsofwisdom #encouragement #encouragementiswelcome #IIH #iihwarrior #IH #survivingnotthriving #IdiopathicIntracranialHypertension #IntracranialHypertension #checkin #AdviceWelcome #advicewanted