IH

Join the Conversation on
IH
169 people
0 stories
18 posts
Note: The hashtags you follow are publicly viewable on your profile; you can change this at any time.
  • Explore Our Newsletters
  • What's New in IH
    All
    Stories
    Posts
    Videos
    Latest
    Trending
    Community Voices

    I will not apologize for being me #

    <p>I will not apologize for being me #</p>
    Community Voices

    The picture says it all #CheckInWithMe

    <p>The picture says it all <a class="tm-topic-link mighty-topic" title="#CheckInWithMe: Give and get support here." href="/topic/checkinwithme/" data-id="5b8805a6f1484800aed7723f" data-name="#CheckInWithMe: Give and get support here." aria-label="hashtag #CheckInWithMe: Give and get support here.">#CheckInWithMe</a> </p>
    2 people are talking about this
    Community Voices

    Been struggling with the pain

    <p>Been struggling with the pain</p>
    3 people are talking about this
    Community Voices

    The storms yesterday had me like… 😂

    <p>The storms yesterday had me like… 😂</p>
    Community Voices

    Where I am right now #CheckInWithMe

    <p>Where I am right now <a class="tm-topic-link mighty-topic" title="#CheckInWithMe: Give and get support here." href="/topic/checkinwithme/" data-id="5b8805a6f1484800aed7723f" data-name="#CheckInWithMe: Give and get support here." aria-label="hashtag #CheckInWithMe: Give and get support here.">#CheckInWithMe</a> </p>
    2 people are talking about this
    Community Voices

    End of Year Goals

    It was a mighty prompt that prompted this writing (haha- get it?) and I usually love the mighty prompts. They are usually a way to stop and reflect- on myself, on my ideas of success, on my my goals, etc. This one stopped me dead in my tracks as I was scrolling as it said the following:

    What are your top 3 goals for the remainder of the year?

    What really hurt was that I couldn’t come up with one, let alone three! This simple prompt, meant to lift up and celebrate even the smallest goals and achievements in the coming months, shed light to the fact that I don’t even know what my coming months look like. I should probably explain.

    Because of my chronic illness, Idiopathic Intracranial Hypertension, I’ve had to defer my acceptance to college back a year and take what is called a “gap year”. Gap years are pretty normal, the circumstances of mine is not. My goal is to take the fist semester and get my health under control, and then work to save up money the rest of the time so I can go to college next year in the best position I can be in to succeed. Unfortunately, the whole “getting my health under control” thing is a little harder than it sounds. It’s what we’ve been trying to do since since I was diagnosed and subsequently pulled out of school back in March. So obviously, it’s been going great (not).

    As I’m writing this, I have come to the realization that goals don’t always have to be tangible. I don’t have to get x grades for my degree or make x amount of money or anything like that. So I’ve made some goals for the second half of 2021- even if I’m not entirely sure where it’s going to take me yet.

    Emma’s 3 2021 Goals

    - Smile at people when they make eye contact
    - Accept the help as it comes, say thank you, and don’t brush off their support
    - Support my friends as they go off to college and be the friend they can always come back to, no matter how far they’ve gone

    As you go off and make your own goals, whether they look anything like mine or not, make them with you in mind. You are on your own journey, and are in a different stage of life than anyone else around you. Give yourself the grace to make goals that fit where you are right now, not where you wish you could be. I look forward to cheering you on as you reach for the stars!

    #goalsetting #goals #Goal #mightyprompt #mightygoals #mightygoal #3goals #newyearresolutions #IIH #Writing #WritingThroughIt #CheckInWithMe #checkinonme #IdiopathicIntracranialHypertension #IH #IntracranialHypertension #College #gapyear

    2 people are talking about this
    Community Voices

    Does a coloring book count? #TheMightyCraftRoom

    <p>Does a coloring book count? <a class="tm-topic-link ugc-topic" title="TheMightyCraftRoom" href="/topic/themightycraftroom/" data-id="5eb4a0ad01b65f00e63fdd2e" data-name="TheMightyCraftRoom" aria-label="hashtag TheMightyCraftRoom">#TheMightyCraftRoom</a> </p>
    7 people are talking about this
    Community Voices

    A Life Update - Where Have I Been #CheckInWithMe

    <p>A Life Update - Where Have I Been <a class="tm-topic-link mighty-topic" title="#CheckInWithMe: Give and get support here." href="/topic/checkinwithme/" data-id="5b8805a6f1484800aed7723f" data-name="#CheckInWithMe: Give and get support here." aria-label="hashtag #CheckInWithMe: Give and get support here.">#CheckInWithMe</a> </p>
    1 person is talking about this
    Community Voices

    🤢 diamox 🤢

    <p>🤢 diamox 🤢</p>
    Community Voices

    When You Lose Time to Chronic Illness

    As I’m writing this, it is the end of Memorial Day weekend. The advertisements are in full swing, and the fact that I just graduated from high school has hit me like a truck.

    I’ve been sick with Idiopathic Intracranial Hypertension since March. Since March, I’ve been stuck. Stuck in bed, stuck out of school, stuck out of work. I was diagnosed two days after my eighteenth birthday, and being a legal adult still feels like a foreign concept. (The only part of being eighteen I’ve accepted is going to an adult hospital now.)

    All of my friends are throwing graduation parties, and I’ve been doing my best to show up, at least for a little while. Oftentimes, the conversation will turn to summer plans and beyond. My response is almost second nature: “Well it’ll depend on where I am.” Or maybe: “We’ll have to wait and see.”

    There’s a lot of waiting that comes with chronic illness. Waiting for appointments. Waiting for tests. For medications to work. For insurance to cover this or that. I’m working to accept that waiting comes with the territory. And if it means I need to wait for the next stage of my life, well, I can work to accept that too. Maybe. 😉

    #IIH #IdiopathicIntracranialHypertension #IntracranialHypertension #IH #RareDisease #chronicallyill #chronicallyillteen #ChronicIllness #CheerMeOn #CheckInWithMe #Waiting #HighSchool #College #Student

    4 people are talking about this