iihwarrior

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    Where I am right now #CheckInWithMe

    <p>Where I am right now <a class="tm-topic-link mighty-topic" title="#CheckInWithMe: Give and get support here." href="/topic/checkinwithme/" data-id="5b8805a6f1484800aed7723f" data-name="#CheckInWithMe: Give and get support here." aria-label="hashtag #CheckInWithMe: Give and get support here.">#CheckInWithMe</a> </p>
    2 people are talking about this
    Community Voices

    Does a coloring book count? #TheMightyCraftRoom

    <p>Does a coloring book count? <a class="tm-topic-link ugc-topic" title="TheMightyCraftRoom" href="/topic/themightycraftroom/" data-id="5eb4a0ad01b65f00e63fdd2e" data-name="TheMightyCraftRoom" aria-label="hashtag TheMightyCraftRoom">#TheMightyCraftRoom</a> </p>
    7 people are talking about this
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    A Life Update - Where Have I Been #CheckInWithMe

    <p>A Life Update - Where Have I Been <a class="tm-topic-link mighty-topic" title="#CheckInWithMe: Give and get support here." href="/topic/checkinwithme/" data-id="5b8805a6f1484800aed7723f" data-name="#CheckInWithMe: Give and get support here." aria-label="hashtag #CheckInWithMe: Give and get support here.">#CheckInWithMe</a> </p>
    1 person is talking about this
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    I Graduated!!! #CheckInWithMe

    Sorry I’ve been so MIA for the past week but I had my eye surgery and then a week later was able to walk as the Salutatorian at my high school graduation yesterday! I arrived late and left right after I walked due to fatigue but I’m so grateful and so proud of myself for doing it at all. And for, you know, graduating.

    In other news, I get to try to come down on the diamox (slowly) and see how I do!

    #IH #IIH #IdiopathicIntracranialHypertension #Graduation #HighSchool #iihwarrior #CheckInWithMe #goodnews #goodnewsforonce

    7 people are talking about this
    Community Voices

    Boy do I love the symptoms of csf buildup, don’t you? 🙄

    <p>Boy do I love the symptoms of csf buildup, don’t you? 🙄</p>
    Community Voices

    I actually have some good news for once! #CheckInWithMe

    So last Thursday was my first appointment with a new doctor who I see again this Thursday, and the appointment was really emotional.
    With almost perfect timing, my college planning counselor calls to let me know I’m graduating as salutatorian of my high school class! It came as a complete shock to me, because I just considered myself lucky that they were letting me graduate at all, due to me missing the majority of the fourth quarter of my senior year.
    I feel really proud of myself and the hard work that I did put in, and to top it all off, my best friend is valedictorian! 👩‍🎓
    #HighSchool #Graduation #goodnews #proudofme #Proudofmyself #IIH #iihwarrior #CheckInWithMe

    3 people are talking about this
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    This was me after my second CT scan!

    <p>This was me after my second CT scan!</p>
    Community Voices

    Hello darkness my old friend, I stood up to fast again (oops)

    <p>Hello darkness my old friend, I stood up to fast again (oops)</p>
    Community Voices

    First Neurophthalmologist appointment next week... any advice?

    So I have my first appointment with a neuropthemolegist (still can’t spell sorry) next Thursday and I’m not sure what to expect. I’m quite nervous and would love to hear about other’s experiences to quell some of my anxiety. The one thing I have heard about this particular doctor is that she is very thorough and the appointment will probably take like 3 hours so... any advice is greatly appreciated!
    #IIH #iihwarrior #IdiopathicIntracranialHypertension #BenignIntracranialHypertension #PseudotumorCerebri #IntercranialHypertension #doctorsappointment #Advice #AdviceWelcome

    1 person is talking about this
    Community Voices

    Umm.... please tell me I’m not alone on this one?

    <p>Umm.... please tell me I’m not alone on this one?</p>
    5 people are talking about this