Join the Conversation on
33 people
0 stories
5 posts
  • Explore Our Newsletters
  • What's New in

    Tilt table test

    Hi! My doctor is sending me for a #tilttabletest to check for #POTS . It'll be for about 45 minutes. The thing is, I don't always get #Tachycardia , dizziness, shortness of breath or pain upon standing. Sometimes I have no symptoms, sometimes they come on after standing for a while. Has anyone failed the test yet still had POTS? What are the chances of my having POTS, but not exhibiting the symptoms during the test? Thank you!

    5 reactions 6 comments

    Grieving #LivingWithPOTS #tilttabletest #ChronicIllness #ChronicPain #Endometriosis #PosturalOrthostaticTachycardiaSyndrome

    I officially received a POTS diagnosis on Wednesday. The whole thing felt like shock. I was relieved, happy, and then sad and confused, then angry all in the same moments. As I talked more with the team it became glaringly obvious that I likely have had these issues since my senior year of high school and there have been multiple times since then that it has flared up and I didn't realize or attend to it accordingly or label it as such because I was told all my life that it was just anxiety. My symptoms are also worsened by the fact that I have #CPTSD .

    The last few days I have been feeling guilty even talking about how I feel because I feel like right now how sick I am is affecting everything and I must be so annoying to listen to......yet not a single moment of my day isn't effected...so it's hard not to bring it up. Especially when any moment I may have to plop down on the floor mid conversation because we stood too long. I am not okay and everyone else seems to be. And that is garbage feeling.

    Usually the way this works is that I feel safer hiding my pain. I know that the urges are building up because I am feeling like I can only safely hide so long before my emotions start leaking out . I just don't want to put anymore stress on people. I just feel like an utter failure and burden lately. I am grieving. My life has changed and I know it.


    Tilt Table Test Approaching #LivingWithPOTS #Dysautonomia #PosturalOrthostaticTachycardiaSyndrome

    Soon I am having my tilt table test and I’m very nervous about it. I have been advised on my community on Twitter to make sure I don’t wear compression 2 days before, and pretty much pretend I don’t know what pots is and act as if I know nothing about what helps me to make sure I’m at my worst. I also will have to stop taking my anti depressant for 2 days before and that’s going to feel horrible and I am not looking forward to that.

    I am also nervous because I am on the spectrum and trying to communicate what I’m feeling in general is very difficult, but doing it while feeling sick and dizzy is going to be severely difficult.

    I am worried I won’t be able to communicate the way I need to for them to get the answers they need/want from me to get an accurate response.

    I’ve spent a year reporting tachycardia with doctors ignoring me and they are finally listening and I want to make sure this test is as accurate as possible.

    What was your tilt table test like for you? Can anyone run through what the experience was like/how it went? #tilttabletest

    See full photo

    Tilt table test

    I had my tilt table test today and after sitting me up it only took 17 minutes for me to pass out and it took less than a minute for me to be fully out. So basically I lasted barely 17 minutes out of 30 before going out. From the time the nurse jumped up to get me down to actually getting down I was almost fully out. They struggled to find a pulse in my wrist and said once they saw I dropped on screen both of their heads whipped over to me. So because I passed out I didn’t need the inducer (which is usually required because of my age) now to wait on the doctor. #PosturalOrthostaticTachycardiaSyndrome #Undiagnosed #AutoimmuneDisease #tilttabletest #ChronicIllness


    stop medicine for test?

    has anyone had to stop all of their medication to take a test? specifically for the tilt table test?
    the doctor says 2 weeks with no meds before test. #PosturalOrthostaticTachycardiaSyndrome #AutonomicDysfunction #DepressionAndMentalHealth #EhlersDanlosSyndrome #tilttabletest