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What's New in tachycardia

Tilt table test

Hi! My doctor is sending me for a #tilttabletest to check for #POTS . It'll be for about 45 minutes. The thing is, I don't always get #Tachycardia , dizziness, shortness of breath or pain upon standing. Sometimes I have no symptoms, sometimes they come on after standing for a while. Has anyone failed the test yet still had POTS? What are the chances of my having POTS, but not exhibiting the symptoms during the test? Thank you!

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My mum kinda pissed me off...

So, I've been trying to lose weight for a long time, and I've slowly been losing it. I walk for 2-3 hours a week at a brisk pace, I've been really careful of what I eat and drink, too. A couple of weeks ago I had a review of my diabetes, and I was placed on a new medication that's going to help keep my blood sugars down. I'm still going to keep up with the diet and exercise, though. A nifty side effect of this drug (Dapagliflozin) is that it helps you lose weight, which my doctor thinks is a good idea.

Exercising can be difficult for me because I have Postural Orthostatic Tachycardia Syndrome - when I stand up, my blood pressure plummets so drastically I often faint, and to make up for the drop in blood pressure, my pulse skyrockets - often getting up to around 150-160bpm. It's a horrible condition and I truly hate how much it limits me.

I've managed to drop my weight down to 95kg (209lbs), and I'm really pleased. And my mother said... "I wish I had a heart like yours. MY weight would fall off too if my heart rate was constantly over 150bpm."

Like... Excuse me? I couldn't help but get really angry. I'm not even sure how I managed to hold my tongue. I would give ANYTHING to be healthy. To not have this condition so I could have more of a normal life, so I wouldn't have to live in fear of fainting in public. I'm not even sure that ONLY having tachycardia would make you lose weight... But if it does/did... I still wouldn't want it.

I'm just seriously pissed off. Would YOU be pissed in a family member said this to you? My friend says I'm overreacting. But, if anything, I feel like I'm underreacting.

#POTS #posturalorthostatictachycardia #Dysautonomia #chronicillnesswarrior #ChronicPain #Tachycardia #EhlersDanlos #EDS #NAFLD #Diabetes #BPD #Migraines #InterstitialCystitis #HeartCondition #WeightLoss #Exercise #ChronicFatigue

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Tdap #Vaccine side effects?

Looking for others experiences here: I was recently told I have a weird autoimmune disease that causes my body to not hold on to my old vaccines and am now having to repeat childhood vaccines. Yesterday afternoon I got a Tdap shot (it’s a combo for tetanus, diphtheria and pertussis/whooping cough) by the time I went to bed my whole lower body waist down was ridiculous sore, like muscle soreness but worse than anything than any workout could do ( and I can’t workout because of all my other illnesses) so much even the blankets hurt and it hurts even to sit on the toilet, I can barely walk, but arm is fine! Has anything like this ever happened to anyone else? #AutoimmuneDisease #Rare disease #NeurologicalDisorder #Tachycardia #GastrointestinalDisorder #bonedisease #maybemito #stillfiguringthingsout #vaccinesideeffects

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Oh lol

Cardiologist says I have tachycardia, so that's fun.
Also did a breath test and it turns out I have SIBO so I'm currently getting treated for that (icky tho).

They did an abdominal ultrasound that showed mild enlargement of my liver (benign so my doc isn't worried about it) and a small non-obstructive kidney stone.

It's been a while since I've been on antibiotics so I gotta ask - while I'm on antibiotics (doxycycline and flagyl), can I eat normally throughout the day (when my appetite exists)?

#sibo #Tachycardia #HEDS #antibiotics #questions


Holter Monitor

I have recently started experiencing tachycardia throughout the day (especially while standing or walking) so my doctor (reluctantly) ordered a holter test, and I was hoping to hear about the test from people who have actually had one. Is it bulky or super visible? As a female, did you have to have the fine hairs on your chest or abdomen shaved for the test? Appreciate any bodies insights 😅 #MyalgicEncephalomyelitis

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Instead of working on my homework because my brain was too stressed to even attempt to do math, yesterday I cleaned and organized and de-cluttered my room quite a bit. Unfortunately I am now completely out of spoons today and am having to catch up on work.

But, something good came out of it. I organized my plant area and now have a pretty little set up by the window.

Those plants I’ll need to repot soon, but it’s cute for now! I also have roses from my girlfriend, and stones/crystals from my girlfriend and friends.

But now I’m exhausted, out of all motivation and attempting to grudgingly get coursework done that my brain is not down for.

Ugh. I wish I just had like 5 more spoons every day than I normally do. I’d get so much more done like walk up and down the stairs.

I’m so exhausted.

Oh and my heart rate has been above 110 since 5am when I woke up and I’ve been sitting almost this whole time. I’ve clicked my heart monitor button 11 times this morning.

#Fibromyalgia #FibroFog #SmallFiberNeuropathy #ChronicIllness #ChronicPain #PostrualOrthostaticTachycardiaSyndrome #Tachycardia


Best smart watch for having heart conditions? #LivingWithPOTS #PosturalOrthostaticTachycardiaSyndrome #Tachycardia

I’m looking for the best smart watch to monitor my heart rate, o2, and overall heart health because of my conditions.

What’s all your recommendations for those living with heart issues?


Holistically treating my IST

Hi everyone,

This is my first post here and I’m really happy to find community that can relate to some of my health struggles.

I wanted to share a bit of my story with the hope that maybe it will help someone. A bit of a background on this, the first time I was told I had an #Arrhythmia was about 10 years ago and back then I actually had #bradycardia . It hadn’t bothered me much throughout the years until last August.

First, I started having very sharp chest pains accompanied by palpitations that would last around 15 minutes. The feeling spread to pain in my arm which really worried me at the time. It went from happening every few days to every single day.

I went to the doctors and they did an EKG that showed tachycardia. After lots of back and forth I was able to get a referral for a cardiologist who did another EKG that was borderline and Echo which came back normal. I’m waiting to receive a halter monitor. Overall though, this doc in particular is terribly rude doctor and tells me it’s just anxiety.

It’s very hard to get an appt with him and in between I ended up at urgent care 3x and taken by ambulance to the hospital 1x when my HR hit 180 BPM. I was at the point of debilitating IST that hit when I was sitting down working on my computer or laying down - multiple times a day. It felt like my heart was running a marathon over and over. Absolutely exhausting.

That brings me to this current moment. The ER doc gave me Propranolol which is the FIRST thing to stop an episode. He also gave me Xanax 3x/day but I haven’t touched it because I don’t believe this is anxiety related.

None of my docs are trying to find the root cause so I’ve done a lot of my own research and I’m trying to treat this issue holistically. The most fascinating discovery I’ve made so far is this:

Right before my arrhythmia got bad last year, I started carb cycling (I’m also vegan and have been for over a decade). I’ve done keto before and ended up in the hospital years ago for palpitations while on the diet - I didn’t make that correlation until recently.

I looked at my Kardia app and realize that all my 130+ BPM episodes tended to be on my low carb days. I’m trying to test out this theory so today when I started having an episode, HR 105 and climbing, I ate a few pieces of fruit, some crackers, and honey - literally anything I had in my fridge that was high carb.

Within 15 minutes my HR went down to 80 BPM. That’s the LOWEST it’s been in a very long time and the first time I have been able to self-regulate the tachycardia.

I’m also taking magnesium every day which has helped with the palpitations. I’m going to end my carb cycling and incorporate healthy carbs into each of my meals to see if it helps reduce the onset of IST.

Has anyone else had this experience?

My IST might be triggered by a low carb diet and wonder if others noticed this too.

#InappropriateSinusTachycardia #Tachycardia #SinusTachycardia


Medical binder

I am incredibly bored and want to organize. So!
Do you have a medical binder? What sorts of things did you add? What do you wish you had included sooner?
Help me make a beautifully organized medical binder! #binder #MedicalRecords #EhlersDanlosSyndrome #LivingWithPOTS #DiabetesType1 #Diabetes #Tachycardia #Migraine #Asthma #MajorDepressiveDisorder #GeneralizedAnxietyDisorder #PTSD