Join the Conversation on
689 people
0 stories
58 posts
Note: The hashtags you follow are publicly viewable on your profile; you can change this at any time.
Don’t miss what’s new on The Mighty. We have over 20 email newsletters to choose from, from mental health to chronic illness.
Browse and Subscribe
What's New in tachycardia
Community Voices

Oh lol

Cardiologist says I have tachycardia, so that's fun.
Also did a breath test and it turns out I have SIBO so I'm currently getting treated for that (icky tho).

They did an abdominal ultrasound that showed mild enlargement of my liver (benign so my doc isn't worried about it) and a small non-obstructive kidney stone.

It's been a while since I've been on antibiotics so I gotta ask - while I'm on antibiotics (doxycycline and flagyl), can I eat normally throughout the day (when my appetite exists)?

#sibo #Tachycardia #HEDS #antibiotics #questions

Community Voices

Holter Monitor

I have recently started experiencing tachycardia throughout the day (especially while standing or walking) so my doctor (reluctantly) ordered a holter test, and I was hoping to hear about the test from people who have actually had one. Is it bulky or super visible? As a female, did you have to have the fine hairs on your chest or abdomen shaved for the test? Appreciate any bodies insights 😅 #MyalgicEncephalomyelitis

3 people are talking about this
Community Voices
Community Voices
Community Voices

Best smart watch for having heart conditions? #LivingWithPOTS #PosturalOrthostaticTachycardiaSyndrome #Tachycardia

I’m looking for the best smart watch to monitor my heart rate, o2, and overall heart health because of my conditions.

What’s all your recommendations for those living with heart issues?

5 people are talking about this
Community Voices

Holistically treating my IST

Hi everyone,

This is my first post here and I’m really happy to find community that can relate to some of my health struggles.

I wanted to share a bit of my story with the hope that maybe it will help someone. A bit of a background on this, the first time I was told I had an #Arrhythmia was about 10 years ago and back then I actually had #bradycardia . It hadn’t bothered me much throughout the years until last August.

First, I started having very sharp chest pains accompanied by palpitations that would last around 15 minutes. The feeling spread to pain in my arm which really worried me at the time. It went from happening every few days to every single day.

I went to the doctors and they did an EKG that showed tachycardia. After lots of back and forth I was able to get a referral for a cardiologist who did another EKG that was borderline and Echo which came back normal. I’m waiting to receive a halter monitor. Overall though, this doc in particular is terribly rude doctor and tells me it’s just anxiety.

It’s very hard to get an appt with him and in between I ended up at urgent care 3x and taken by ambulance to the hospital 1x when my HR hit 180 BPM. I was at the point of debilitating IST that hit when I was sitting down working on my computer or laying down - multiple times a day. It felt like my heart was running a marathon over and over. Absolutely exhausting.

That brings me to this current moment. The ER doc gave me Propranolol which is the FIRST thing to stop an episode. He also gave me Xanax 3x/day but I haven’t touched it because I don’t believe this is anxiety related.

None of my docs are trying to find the root cause so I’ve done a lot of my own research and I’m trying to treat this issue holistically. The most fascinating discovery I’ve made so far is this:

Right before my arrhythmia got bad last year, I started carb cycling (I’m also vegan and have been for over a decade). I’ve done keto before and ended up in the hospital years ago for palpitations while on the diet - I didn’t make that correlation until recently.

I looked at my Kardia app and realize that all my 130+ BPM episodes tended to be on my low carb days. I’m trying to test out this theory so today when I started having an episode, HR 105 and climbing, I ate a few pieces of fruit, some crackers, and honey - literally anything I had in my fridge that was high carb.

Within 15 minutes my HR went down to 80 BPM. That’s the LOWEST it’s been in a very long time and the first time I have been able to self-regulate the tachycardia.

I’m also taking magnesium every day which has helped with the palpitations. I’m going to end my carb cycling and incorporate healthy carbs into each of my meals to see if it helps reduce the onset of IST.

Has anyone else had this experience?

My IST might be triggered by a low carb diet and wonder if others noticed this too.

#InappropriateSinusTachycardia #Tachycardia #SinusTachycardia

2 people are talking about this
Community Voices
Community Voices

Forget To Take My Meds

I hate when I forget to take my meds. I have sinus tachycardia and my resting bpm is 140 without it. Then is start to freak and that raises my bpm even more which is bad.

Community Voices

The fear in waiting.

I just had an #Endocrinologist appointment that ended with bloodwork. Now I'm in that dreaded stage of waiting. I may have had every single symptom that checked the boxes for an endocrine problem, specifically #CushingsSyndrome , but you know... that's happened before. As someone who has spent their entire teen and current adult life suffering through doctors and their tests, most of them coming back negative, I'm used to this. But this time...I really need to have an answer. An answer with a solution, no more incurable diseases. If its Cushing's, which I hope it is, I'll just get the snip of a benign tumor and return to my typical homeostatic state of #EhlersDanlosSyndrome . I really just need some support during this time, and good vibes I have solid answers instead of "rule outs." #ChronicIllness #ChronicPain #Asthma #HypermobileTypeEDS #IrritableBowelSyndromeIBS #AcidReflux #GastroesophagealRefluxDisease #BellsPalsy #Tachycardia #CheckInWithMe #Undiagnosed

5 people are talking about this
Community Voices

I saw my PCP today to follow up on the hyper mobility, joint and muscle pain, and weakness. I also brought up that I subluxed my back on Saturday and he didn’t say much about either thing.

Told me my echocardiogram was normal, which is a plus. Told me he will not start me on any more meds as I’m already on 14 but that includes vitamins too. Told me a brace is okay but good luck finding something for joints other than ankle and wrist that are readily available. He did put in a referral to the EDS specialist at the University of Iowa but who knows how long that will take to get set up.

I did mention how my PT didn’t seem to do much. Yeah the pain is diminished, but it was replaced with numbness. I also mentioned the comments PT has made about hyper mobility being normal which I agree with to an extent, but the amount I have isn’t normal. Again he didn’t say much about it.

I guess I’m at a loss for what to do. I know there’s nothing they can do for hyper mobility, but can’t they still do the MRI that I pushed through 6 weeks of PT for? Can’t that help me find a PT that works with hyper mobility and knows how to treat it?

Yes, I know I’m fat. Yes, I have mental health problems. If my weakness, pain, and hyper mobility were related to those things it would’ve been a problem 20 years ago, not just an annoyance and me being “clumsy” with bad posture. Also it would’ve improved when I lost 20lbs a couple months ago, but it didn’t it actually got WORSE!

Sorry about the rant/vent I just don’t know what to do. I’m missing work because of subluxations which I can’t afford. I have a support team, but they’re all paid to support me (therapist, dr, and home aides). I feel lost and alone and my mental health isn’t doing the best.

#EhlersDanlosSyndrome (?) #Hypermobility #Depression #Anxiety #quietborderline #BorderlinePersonalityDisorder #GastroesophagealRefluxDisease #HiatalHernia #dismotility #Gastroparesis #Endometriosis (?) #Anemia #Malabsorption #BingeEatingDisorder #Tachycardia #Hypertension #ChronicPain #weakness

14 people are talking about this