autoimune

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Grieving what will never be.

I’m so tired. I found out a few days ago that I cannot have children, I cannot get pregnant and carry a baby to term, let alone safely.
I have Lupus nephritis- lupus in my kidneys. I have anti-phospholipid antibodies syndrome, infertility is a major symptom of this condition too.
You kind of need healthy, functional kidneys to have a baby, and have blood that functions normally or at least efficiently enough- to carry a baby. I have neither.
People have been telling me “well you can always adopt!” But that’s not the point. Besides, I was adopted when I was a baby. I’ve battled with the difficulty of being adopted- I couldn’t adopt a kid to build my family as I couldn’t help them cope with their experiences when I can barely do the same for myself.
It doesn’t replace the fact that I feel so empty, knowing that I should be able to have a pregnancy. Every other woman on the planet is able to have a baby. Almost every woman on this planet has functioning organs and blood at the very least. I feel like I have failed in every single aspect of life a human could fail in. And on another stupid note, who on earth would want to marry an infertile, chronically ill, medically fragile women?! No one. Or at least not anyone who would fit my standards of basic human decency. I’ve been too disappointed by men who’ve tried to take advantage of me for those reasons.
I’m broken on a cellular level, my organs are broken, my mental health is broken… and now the one thing I was counting on, to complete in my life as a women? I am broken there too. I’m a failure of a woman, and a human. How do you move on in life when your future is wrecked in every single way possible, and it’s set in stone? Every option is awful and I’m so so tired of all of this. #Lupus #LupusNephritis #SystemicLupus #AntiphospholipidSyndrome #Infertility #autoimune #Vasculitis #MentalHealth #Anxiety #Depression #PTSD #Grief #advisemeplease

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Finally got authorization for Rheumotogist

Almost 40 years suffering with Fibromyalgia (my Mother had it as well), so this isn’t my first rodeo. Finally got in to a Rheumatologist who told me my skin rashes and gastro issues are not Fibro symptoms 🤯. Feeling defeated again.
#Fibromyalgia #autoimune

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I am 7/10. ❤️💪🏻

I am 7/10. I stand with 7/10 💪🏻❤️
Today is chronic disease day.
And I wanna tell you that A life full of illness, and a life full of pain can still be a beautiful life.

If you let it.. this horrid trial.
Can teach you the most amazing lessons

Today I sit here physically feeling horrible

But I’m grateful

Grateful for a heart that beats
For arms to hug my nieces ( no matter how swollen they are)

For a life.. I wasn’t quite sure I’d get to continue to live.

This 7/10. I may be chronically ill.

But I have chronic Hope. And chronic gratitude.
That I ( hopefully) have many beautiful days to come ❤️

#smileon 🐷 #MightyTogether #RareDisease #MCTD #autoimune #Survivor

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