Hi all! This is probably the group I didn’t know I needed! I am a 1st degree Gardnerian. I had been practicing Wicca on and off my whole life when I joined a coven. A couple of years after I was initiated I was diagnosed with SLE and lupus nephritis. My coven, actually, my high priestess, wouldn’t believe I was that sick. I had to miss meetings and rituals due to my treatment, and then Covid came, and I felt like I wasn’t a part of the coven anymore. So, here I am, with a chronic illness and on my own again. I think this group might be helpful to me in light of all that I have been through, and I appreciate your allowing me to join. Blessed be!
It’s been a realllllly long time since I’ve been on here; life has been busy, work has been busy.
I’m engaged. Ive received all 3 covid vaccines. Loving my job again.
Stay well my friends and Happy Thanksgiving!
Been in the hospital since September 7th. Was found by my mom having a seizure in my bedroom floor. I had 2 strokes, one on each side of my brain. Have been diagnosed with active Lupus Nephritis at this time and am being treated for it. I knew I'd been dealing with something underlying for quite awhile now just didn't know what until this happened. As much as I wish it didn't I'm kind of glad it did because I feel like I'd not know otherwise. I'm grateful my mom just so happened to be at my house at the time of the strokes otherwise I don't know if I'd be here right now.
I am new here. I am so glad to be here amongst people who know what we go through!
I have been living with SLE for more than 20 years. My first diagnosed was Lupus nephritis. Now i have RA, APS, Discoid lupus, Colitis and others related issue. Recently, i got DVT on my right leg. Now im on high dose of prednisolone and on anticoagulant.
Hopefully find some support within this group.. Thank you😊 #Lupus
Today my battle has gotten more difficult. However I am a fighter and I am strong. I will face my trials with hope and bravery. With God by my side; I will not fail. I am blessed to be alive and breathing. No matter the circumstances- I am grateful. I am a fighter; I can and I will. I thank God for this life He has given me. My path may be more difficult than others, however I am a child of the mist high God. I am an overcomer! #Overcomer #childofgod #SystemicLupusErythematosus #LupusNephritis #ChronicIllness #InvisibleIllness #Lupus #AutoimmuneDisease #Chronicpainwarrior ##lupusawareness #chronicillnessawareness #nevergiveuphope #jesusismyrock ##mylupielife1987 #infiniteangel161 #miss8understood #icanandiwill #OPTIMIST #idealist #lonerwolf #lioness
Sometimes I think the craziest part of #Lupus is the suddenness of it all. I went to bed last night, had some pain in my elbows and fingers. When I woke up in the morning, my knuckles had swollen to two times their size and the redness was visible and angry. My elbows hurt so bad I can’t lift my arms over my head. It hurts when I breathe in, hurts to stand. My eyes are red and hurt to move them. How could it be that you go from some pain to ALL the pain? #Lupus #ChronicPain #LupusNephritis #HidradenitisSuppurativa #HashimotosThyroiditis #Fibromyalgia
I’m 27, I live in pain daily in so many ways I loose track of symptoms and of what hurts. I have no life because I’ve abandoned friends so much they’ve all dashed I guess we were never truly friends. I’ve never really had a normal life or gotten to live a proper problematic young adult hood I’ve had lupus since the age of 7 ,20 years. I’m tired 😓 doctors want give me pain medication, I wonder what makes other patients more deserving than myself. Even tho I’m tired I’m not ready to give up I can’t give up, I have siblings and nieces and nephews I have to live for a can’t imagine them being hurt because I chose to quit, something has gotta change. #ic #InterstitialCystitis #bladderCystitis #Pain #hurt #tired #Lupus #Fibromyalgia #Osteoarthritis #highbloodpressure #LupusNephritis #KidneyDisease #Hypertension #Depression #Anxiety #Asthma