Lupus Nephritis

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Lupus life struggles, I need some advice please!

I was finally diagnosed with Lupus Nephritis last year after many hurdles and struggles so I am FINALLY on the medications I need to help my kidneys improve, including prednisone but now I'm dealing with some side effects from prednisone that I find difficult to manage. if anyone has any suggestions at all for the problems below, I'd really appreciate any help at all!!!

I love to do my make up and hair but my skin has become very greasy and sensitive so I struggle to use foundation of any kind and it never lasts!

My hair is very hard to manage due to being extremely greasy no matter how much I wash it or the products I use. I'm also missing all the hair on the top of my head.

I usually like to dress nice when I have the energy, but I have severe weight fluctuations and swelling, I don't always have the resources to go buy new clothes with every change. #Lupus #LupusNephritis #ChronicIllness #lupuslife #prednisonesideeffects #medicationsideeffects #chronicillnesslife #weightgain #physicalchange #adviseplease #adviseme #Advice

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Lupus messed with the wrong witch”

Hi all! This is probably the group I didn’t know I needed! I am a 1st degree Gardnerian. I had been practicing Wicca on and off my whole life when I joined a coven. A couple of years after I was initiated I was diagnosed with SLE and lupus nephritis. My coven, actually, my high priestess, wouldn’t believe I was that sick. I had to miss meetings and rituals due to my treatment, and then Covid came, and I felt like I wasn’t a part of the coven anymore. So, here I am, with a chronic illness and on my own again. I think this group might be helpful to me in light of all that I have been through, and I appreciate your allowing me to join. Blessed be!

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It’s been a realllllly long time since I’ve been on here; life has been busy, work has been busy.

I’m engaged. Ive received all 3 covid vaccines. Loving my job again.

Stay well my friends and Happy Thanksgiving!

#Lupus #LupusNephritis #SystemicLupusErythematosus #KidneyDisease #MentalHealth #Thanksgiving

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This is what being diagnosed with active Lupus Nephritis looks like. #Lupus #LupusNephritis #MixedConnectiveTissueDiseaseMCTD

Been in the hospital since September 7th. Was found by my mom having a seizure in my bedroom floor. I had 2 strokes, one on each side of my brain. Have been diagnosed with active Lupus Nephritis at this time and am being treated for it. I knew I'd been dealing with something underlying for quite awhile now just didn't know what until this happened. As much as I wish it didn't I'm kind of glad it did because I feel like I'd not know otherwise. I'm grateful my mom just so happened to be at my house at the time of the strokes otherwise I don't know if I'd be here right now.

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Hi Lupus Groupies!

I am new here. I am so glad to be here amongst people who know what we go through!
I have been living with SLE for more than 20 years. My first diagnosed was Lupus nephritis. Now i have RA, APS, Discoid lupus, Colitis and others related issue. Recently, i got DVT on my right leg. Now im on high dose of prednisolone and on anticoagulant.
Hopefully find some support within this group.. Thank you😊 #Lupus


Taking It One Day At A Time #chronicillnesswarrior

Today my battle has gotten more difficult. However I am a fighter and I am strong. I will face my trials with hope and bravery. With God by my side; I will not fail. I am blessed to be alive and breathing. No matter the circumstances- I am grateful. I am a fighter; I can and I will. I thank God for this life He has given me. My path may be more difficult than others, however I am a child of the mist high God. I am an overcomer! #Overcomer #childofgod #SystemicLupusErythematosus #LupusNephritis #ChronicIllness #InvisibleIllness #Lupus #AutoimmuneDisease #Chronicpainwarrior ##lupusawareness #chronicillnessawareness #nevergiveuphope #jesusismyrock ##mylupielife1987 #infiniteangel161 #miss8understood #icanandiwill #OPTIMIST #idealist #lonerwolf #lioness


Hello, I have been on Plaquenil for 3 years and my symptoms are just getting worse.

I am seeing a new rheumatologist who is assessing me for Sojgren's, Discoid Lupus and Lupus Nephritis. Has anyone been diagnosed with all of these have any advice or comments regarding what medications to watch out for or which are helpful? Thanks! #LupusNephritis #sjogrens #DiscoidLupus


The Suddenness

Sometimes I think the craziest part of #Lupus is the suddenness of it all. I went to bed last night, had some pain in my elbows and fingers. When I woke up in the morning, my knuckles had swollen to two times their size and the redness was visible and angry. My elbows hurt so bad I can’t lift my arms over my head. It hurts when I breathe in, hurts to stand. My eyes are red and hurt to move them. How could it be that you go from some pain to ALL the pain? #Lupus #ChronicPain #LupusNephritis #HidradenitisSuppurativa #HashimotosThyroiditis #Fibromyalgia