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I have t1 diabetes, lupus (sle), aps, gastroparesis, celiac, and anxiety #DiabetesType1 #SystemicLupusErythematosus #LupusNephritis #AntiphospholipidSyndrome #Gastroparesis #CeliacDisease #Anxiety
Lupus Nephritis
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Lupus Nephritis
Lupus Nephritis
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Paganism, Spirituality, and Disability
February 27, 2022
”Lupus messed with the wrong witch”
Hi all! This is probably the group I didn’t know I needed! I am a 1st degree Gardnerian. I had been practicing Wicca on and off my whole life when I joined a coven. A couple of years after I was initiated I was diagnosed with SLE and lupus nephritis. My coven, actually, my high priestess, wouldn’t believe I was that sick. I had to miss meetings and rituals due to my treatment, and then Covid came, and I felt like I wasn’t a part of the coven anymore. So, here I am, with a chronic illness and on my own again. I think this group might be helpful to me in light of all that I have been through, and I appreciate your allowing me to join. Blessed be!
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Update
It’s been a realllllly long time since I’ve been on here; life has been busy, work has been busy.
I’m engaged. Ive received all 3 covid vaccines. Loving my job again.
Stay well my friends and Happy Thanksgiving!
XOXO
#Lupus #LupusNephritis #SystemicLupusErythematosus #KidneyDisease #MentalHealth #Thanksgiving
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This is what being diagnosed with active Lupus Nephritis looks like. #Lupus #LupusNephritis #MixedConnectiveTissueDiseaseMCTD
Been in the hospital since September 7th. Was found by my mom having a seizure in my bedroom floor. I had 2 strokes, one on each side of my brain. Have been diagnosed with active Lupus Nephritis at this time and am being treated for it. I knew I'd been dealing with something underlying for quite awhile now just didn't know what until this happened. As much as I wish it didn't I'm kind of glad it did because I feel like I'd not know otherwise. I'm grateful my mom just so happened to be at my house at the time of the strokes otherwise I don't know if I'd be here right now.
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I post a lot on my reddit account but here's a recent update haha! It's been a rough week for me but I'm happy to still be here! 😁
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Lupus Groupies
March 14, 2021
Hi Lupus Groupies!
I am new here. I am so glad to be here amongst people who know what we go through!
I have been living with SLE for more than 20 years. My first diagnosed was Lupus nephritis. Now i have RA, APS, Discoid lupus, Colitis and others related issue. Recently, i got DVT on my right leg. Now im on high dose of prednisolone and on anticoagulant.
Hopefully find some support within this group.. Thank you😊 #Lupus
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Taking It One Day At A Time #chronicillnesswarrior
Today my battle has gotten more difficult. However I am a fighter and I am strong. I will face my trials with hope and bravery. With God by my side; I will not fail. I am blessed to be alive and breathing. No matter the circumstances- I am grateful. I am a fighter; I can and I will. I thank God for this life He has given me. My path may be more difficult than others, however I am a child of the mist high God. I am an overcomer! #Overcomer #childofgod #SystemicLupusErythematosus #LupusNephritis #ChronicIllness #InvisibleIllness #Lupus #AutoimmuneDisease #Chronicpainwarrior ##lupusawareness #chronicillnessawareness #nevergiveuphope #jesusismyrock ##mylupielife1987 #infiniteangel161 #miss8understood #icanandiwill #OPTIMIST #idealist #lonerwolf #lioness
Question
Lupus Groupies
February 24, 2021
Hello, I have been on Plaquenil for 3 years and my symptoms are just getting worse.
I am seeing a new rheumatologist who is assessing me for Sojgren's, Discoid Lupus and Lupus Nephritis. Has anyone been diagnosed with all of these have any advice or comments regarding what medications to watch out for or which are helpful? Thanks! #LupusNephritis #sjogrens #DiscoidLupus
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The Suddenness
Sometimes I think the craziest part of #Lupus is the suddenness of it all. I went to bed last night, had some pain in my elbows and fingers. When I woke up in the morning, my knuckles had swollen to two times their size and the redness was visible and angry. My elbows hurt so bad I can’t lift my arms over my head. It hurts when I breathe in, hurts to stand. My eyes are red and hurt to move them. How could it be that you go from some pain to ALL the pain? #Lupus #ChronicPain #LupusNephritis #HidradenitisSuppurativa #HashimotosThyroiditis #Fibromyalgia
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No Quality of life
I’m 27, I live in pain daily in so many ways I loose track of symptoms and of what hurts. I have no life because I’ve abandoned friends so much they’ve all dashed I guess we were never truly friends. I’ve never really had a normal life or gotten to live a proper problematic young adult hood I’ve had lupus since the age of 7 ,20 years. I’m tired 😓 doctors want give me pain medication, I wonder what makes other patients more deserving than myself. Even tho I’m tired I’m not ready to give up I can’t give up, I have siblings and nieces and nephews I have to live for a can’t imagine them being hurt because I chose to quit, something has gotta change. #ic #InterstitialCystitis #bladderCystitis #Pain #hurt #tired #Lupus #Fibromyalgia #Osteoarthritis #highbloodpressure #LupusNephritis #KidneyDisease #Hypertension #Depression #Anxiety #Asthma
