Lupus Nephritis

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Lupus Nephritis
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    Lupus messed with the wrong witch”

    Hi all! This is probably the group I didn’t know I needed! I am a 1st degree Gardnerian. I had been practicing Wicca on and off my whole life when I joined a coven. A couple of years after I was initiated I was diagnosed with SLE and lupus nephritis. My coven, actually, my high priestess, wouldn’t believe I was that sick. I had to miss meetings and rituals due to my treatment, and then Covid came, and I felt like I wasn’t a part of the coven anymore. So, here I am, with a chronic illness and on my own again. I think this group might be helpful to me in light of all that I have been through, and I appreciate your allowing me to join. Blessed be!

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    I post a lot on my reddit account but here's a recent update haha! It's been a rough week for me but I'm happy to still be here! 😁

    <p>I post a lot on my reddit account but here's a recent update haha! It's been a rough week for me but I'm happy to still be here! 😁</p>
    8 people are talking about this
    Community Voices

    Hi Lupus Groupies!

    I am new here. I am so glad to be here amongst people who know what we go through!
    I have been living with SLE for more than 20 years. My first diagnosed was Lupus nephritis. Now i have RA, APS, Discoid lupus, Colitis and others related issue. Recently, i got DVT on my right leg. Now im on high dose of prednisolone and on anticoagulant.
    Hopefully find some support within this group.. Thank you😊 #Lupus

    5 people are talking about this
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    Taking It One Day At A Time #chronicillnesswarrior

    Today my battle has gotten more difficult. However I am a fighter and I am strong. I will face my trials with hope and bravery. With God by my side; I will not fail. I am blessed to be alive and breathing. No matter the circumstances- I am grateful. I am a fighter; I can and I will. I thank God for this life He has given me. My path may be more difficult than others, however I am a child of the mist high God. I am an overcomer! #Overcomer #childofgod #SystemicLupusErythematosus #LupusNephritis #ChronicIllness #InvisibleIllness #Lupus #AutoimmuneDisease #Chronicpainwarrior ##lupusawareness #chronicillnessawareness #nevergiveuphope #jesusismyrock ##mylupielife1987 #infiniteangel161 #miss8understood #icanandiwill #OPTIMIST #idealist #lonerwolf #lioness

    17 people are talking about this
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    Hello, I have been on Plaquenil for 3 years and my symptoms are just getting worse.

    I am seeing a new rheumatologist who is assessing me for Sojgren's, Discoid Lupus and Lupus Nephritis. Has anyone been diagnosed with all of these have any advice or comments regarding what medications to watch out for or which are helpful? Thanks! #LupusNephritis #sjogrens #DiscoidLupus

    7 people are talking about this
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    The Suddenness

    Sometimes I think the craziest part of #Lupus is the suddenness of it all. I went to bed last night, had some pain in my elbows and fingers. When I woke up in the morning, my knuckles had swollen to two times their size and the redness was visible and angry. My elbows hurt so bad I can’t lift my arms over my head. It hurts when I breathe in, hurts to stand. My eyes are red and hurt to move them. How could it be that you go from some pain to ALL the pain? #Lupus #ChronicPain #LupusNephritis #HidradenitisSuppurativa #HashimotosThyroiditis #Fibromyalgia

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    No Quality of life

    <p>No Quality of life</p>
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    Facial Paim

    What do you all do for facial pain? I cant take NSAIDS because I have #LupusNephritis My PCP wants me to see an ENT and go to the denist but I feel like Im always pushed to a specialist because I have #Lupus . Ive had Lupus for almost 20 years and never had anything like this pain. Im frustrated because I am a nurse and I always wait until it’s unbearable (like currently unbearable) The pain is throbbing on both sides of my head, jaw pain, and sometimes my teeth. This all started with sharp pains in my right ear (months ago) and then turned into sharp pains both ears plus feeling “stuffed” at times. Im soooo over it. Steroids didnt help and muscle/nerve relaxer only calms it down for so long. I also had this very abnormal vertigo cycle that lasted a MONTH back in May and one day it just stopped. Pain is currently just bearable because I took a muscle/nerve relaxer. Lupus appointment not til Monday. So frustrated.

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