chronicfaitgue

After eliminating basically every other possibility, my doctor thinks I might have Epstein Barr. Unfortunately, my insurance won't cover the test for it. I understand it has no cure anyway, so I am trying to find a way to deal with the constant fatigue, and be able to function. There are days when I manage to interact with family and friends or accomplish something, but after that, I pretty well crash and burn. Getting up every morning is a battle, even on good days. What can I do to deal with this?
#ChronicFatigue

Articles like this one terrify me!

1) Doctors are already extremely tentative when prescribing painkillers. Or increasing doses if pain increases.

2) Chronic pain conditions often have good & bad pain periods. Having a one stop shop approach towards all periods of pain & types of pain and your treatment of them is extremely problematic.

3) I have spoken with and experienced the fact that some medical professionals already have a mistaken belief that ALL chronic pain sufferers will become or are addicted to opiods. When really they're in pain and desperate for a solution.

4) Addiction is real, but treating everyone with the expectation of addiction is just as potentially dangerous as the previous tactic of assuming people wouldn't become addicted. People aren't all the same!

5) CBT and group therapy doesn't work for everyone.

*The mistaken belief that it's a miracle worker for ALL people annoys me to no end 🙄

5b) CBT and group therapy while you're in pain and desperate for relief I truly doubt will be at all effective without some painkillers.

5c) BOTH are needed!

6) This is an obvious knee jerk reaction to the (very real) largely global opioid crisis.

6b) knee jerk reactions and changes in policy rarely ever work. Ever 🤦🏿‍♀️

7) Access to other forms of pain management are still very inaccessible for most people.
Whether that's due to extremely long waiting times; or group therapy/ CBT costing too much money in some countries; people being homebound/ bedbound and thus being unable to access CBT in person only sessions.

8) I repeat AGAIN no chronic pain sufferer is the same. Some will react really well to opiods and be able to have a good standard of life; others would be better suited to more holistic pain management.

At the end of the day the most important thing surely is getting the chronic pain sufferer to have a decent quality of life 🤷🏿‍♀️

#Fibromyalgia #fibrowarrior #FibroFog #ChronicPain #chronicfaitgue #IBS #BackPain #Depression #Anxiety #ChronicPain

So every month or sometimes every couple of weeks I get really, really painful left sided abdominal pain. I am so fatigued that I'm basically bedbound. I had a clear endoscopy and colonoscopy. The doctors are saying it's my #IBS but it doesn't feel like my usual. It's like I have a tender slight bulge on my left side.

I've also been having pelvic pain during ovulation and at random times. I'm slightly at the end of my tether lol, so any advice or if people have had any similar or even completely different experiences I'd really, really appreciate it 🤗

#IBD #IBS #ChronicPain #chronicfaitgue