Can someone relate
This seems to be the sampling of experiences that we have found. Being new to chronic illness we joined this place and community to learn more and to relate. We are thankful for this community and as of now are in sure how to answer this question. When It began there was debilitating pain weakness and we used a Cain. Now there is less pain (Meds) however weakness and fatigue are the challenges? This is our first year so we have no idea what our illness looks like all we know is we are not able to work not able to keep up and if we try to hard we lay in bed.
Maybe this sounds familiar to you. For us we cycle 🔃 oh look we are better we can do this then exhaustion and couch. Oh look we are having a good day then couch. Oh look we have had a good few days couch all weekend.
This is how we now experience life. Can anyone relate?