fibrowarrior

#Fibromyalgia #FibroFog #fibrowarrior #FMS

This seems to be the sampling of experiences that we have found. Being new to chronic illness we joined this place and community to learn more and to relate. We are thankful for this community and as of now are in sure how to answer this question. When It began there was debilitating pain weakness and we used a Cain. Now there is less pain (Meds) however weakness and fatigue are the challenges? This is our first year so we have no idea what our illness looks like all we know is we are not able to work not able to keep up and if we try to hard we lay in bed.

Maybe this sounds familiar to you. For us we cycle 🔃 oh look we are better we can do this then exhaustion and couch. Oh look we are having a good day then couch. Oh look we have had a good few days couch all weekend.

This is how we now experience life. Can anyone relate?

Summer break is over and I'm back to work. Since I've started back, I've noticed that my fibro symptoms and flares have been worse on Thursdays than any other days.
My guess is because we have 4 day school weeks here (off on Mondays) and I push myself too hard on Tuesdays and Wednesdays. I usually end up miserable on Thursday nights and don't do much and rely on my trusty heating pad. Fridays I usually feel better.
Do you have certain days of the week that are worse for you? #Fibromyalgia #fibrowarrior #fibroflare

Alright, so for my birthday (which was Sunday), my husband got me concert tickets, which was the Friday before. I had been looking forward to it for months. My favorite band was playing, 4th out of 4 bands. I contacted the box office, concerned, because the venue was standing room only. Fibro Warrior here, and can’t stand very long and she directed me to ADA seating. Awesome!

I made it through 2 bands. Even sitting. I got up a couple times to watch the bands perform because I couldn’t see over the crowd but had already walked about 10 minutes from our car to the venue and then waited in line for probably 45 minutes. I was wiped. We left and I cried for about a half hour off and on because I was looking forward to this so much and had to leave because my body just sucks. My husband reassured me it was okay and we would catch them again.

I’m still learning my limits, but can anyone suggest anything? Fall is my favorite thing. Haunted houses and corn mazes and all that. And my nieces and nephew are visiting this summer and I want to do stuff with them but it makes it so hard. How do you adapt to your illness? #fibrowarrior #Spoonie #SpoonieProblems

I would love to read a book that features a fictional character who has fibromyalgia. Please comment if you have read any good fictional books whose characters have fibromyalgia.

I would also love to see a recommendation for a motivational book for people with chronic pain/chronic illnesses. If it's a book specifically about fibromyalgia, please make sure that the author has fibromyalgia themselves before recommending. I know that that sounds nitpicky, but I have heard enough BS for a lifetime 😅

I know about the book, "Get a Life, Chloe Brown," by Talia Hibbert. However, it is hard to find fictional characters with fibromyalgia to relate to. Does anyone know any other fictional books where fibro is mentioned?