fibrowarrior

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    Can someone relate

    #Fibromyalgia #FibroFog #fibrowarrior #FMS

    This seems to be the sampling of experiences that we have found. Being new to chronic illness we joined this place and community to learn more and to relate. We are thankful for this community and as of now are in sure how to answer this question. When It began there was debilitating pain weakness and we used a Cain. Now there is less pain (Meds) however weakness and fatigue are the challenges? This is our first year so we have no idea what our illness looks like all we know is we are not able to work not able to keep up and if we try to hard we lay in bed.

    Maybe this sounds familiar to you. For us we cycle 🔃 oh look we are better we can do this then exhaustion and couch. Oh look we are having a good day then couch. Oh look we have had a good few days couch all weekend.

    This is how we now experience life. Can anyone relate?

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    Thursdays are the worst

    Summer break is over and I'm back to work. Since I've started back, I've noticed that my fibro symptoms and flares have been worse on Thursdays than any other days.
    My guess is because we have 4 day school weeks here (off on Mondays) and I push myself too hard on Tuesdays and Wednesdays. I usually end up miserable on Thursday nights and don't do much and rely on my trusty heating pad. Fridays I usually feel better.
    Do you have certain days of the week that are worse for you? #Fibromyalgia #fibrowarrior #fibroflare

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    Recreation

    Alright, so for my birthday (which was Sunday), my husband got me concert tickets, which was the Friday before. I had been looking forward to it for months. My favorite band was playing, 4th out of 4 bands. I contacted the box office, concerned, because the venue was standing room only. Fibro Warrior here, and can’t stand very long and she directed me to ADA seating. Awesome!

    I made it through 2 bands. Even sitting. I got up a couple times to watch the bands perform because I couldn’t see over the crowd but had already walked about 10 minutes from our car to the venue and then waited in line for probably 45 minutes. I was wiped. We left and I cried for about a half hour off and on because I was looking forward to this so much and had to leave because my body just sucks. My husband reassured me it was okay and we would catch them again.

    I’m still learning my limits, but can anyone suggest anything? Fall is my favorite thing. Haunted houses and corn mazes and all that. And my nieces and nephew are visiting this summer and I want to do stuff with them but it makes it so hard. How do you adapt to your illness? #fibrowarrior #Spoonie #SpoonieProblems

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    Fictional characters with Fibromyalgia?? #fibrowarrior #Fibromyalgia #ChronicPain #ChronicIllness #Selfcare #Books #Cantsleep #Reading

    I would love to read a book that features a fictional character who has fibromyalgia. Please comment if you have read any good fictional books whose characters have fibromyalgia.

    I would also love to see a recommendation for a motivational book for people with chronic pain/chronic illnesses. If it's a book specifically about fibromyalgia, please make sure that the author has fibromyalgia themselves before recommending. I know that that sounds nitpicky, but I have heard enough BS for a lifetime 😅

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    Book characters with Fibromyalgia? #fibrowarrior #Fibromyalgia #ChronicPain #Reading #Selfcare #readinglounge

    I know about the book, "Get a Life, Chloe Brown," by Talia Hibbert. However, it is hard to find fictional characters with fibromyalgia to relate to. Does anyone know any other fictional books where fibro is mentioned?

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    Today💗

    If all you do today is take it 15 minutes at a time….you’re doing amazing. 💕

    My reminder to myself…stay centered. Cry if needed. Release it don’t hold it in. #TheMighty #fibrowarrior #Fibromyalgia #winterblues #sad #loveyourself #Loveyourselffirst #thistooshallpass #wegotthis

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    Fighting

    Kept smiling ... But now I'm fighting for my dream 💪🏼💜
    #Fibromyalgia #FibromyalgiaDiagnosis #ChronicPain #fibrowarrior #warrior

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    What CAN you do today?

    Stuck in a 5 day flare. Thoracic Outlet Syndrome affects my entire left side and makes it hard to move. Yesterday, I could barely walk through the mall without stopping and leaning against a wall. It causes such unbearable pain, stiffness and fatigue.

    They say get out of the house when you don’t feel well, it will make you feel better. Sometimes, it's better to rest and stay home. I’m still only able to walk small distances today.

    Days like these are mental days. Where my hands and body don’t work well enough to do much at all.

    Too much time spent in my head day. Watching what others can do.

    Fighting back tears day, and trying to be strong.

    Dreaming day. Dreaming of the day I can be more than this.

    Angry day. Angry that I can’t do what I’m dreaming of.

    These days I need people to distract me, but I’m so in my head it’s hard to pretend I’m ok.

    Yesterday, I was able to look up and take this photo, even though I was stuck in the chair because I could no longer walk through the mall.

    Today, I was able to make this post.

    What CAN you do today?
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    #teetheredcord #ThoracicOutletSyndrome #ChronicIllnessEDS #EhlersDanlosSyndromes #MentalHealth #ChronicPain #ChronicFatigue #RareDisease #Fibromyalgia #Chronicpainsucks #chronicpainlife #chronicpainawareness #chronicpainartist #Hope #Dream #fibrowarrior #ehlersdanlostype3 #EhlersDanlosSyndrome

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    Notes on Being #Fine

    I’m fine and also not fine. I woke up and got out of bed but wanted to stay curled up in its soft warmth forever. I’m better and also not better. My head and body don’t pound like hammers today, but I might have molasses in my blood. My muscles ache. Did I run a marathon in my sleep? Maybe that truck in my nightmare slammed into me. The world is sharp. But I'm strong and also weak. My brain won’t let #Fibromyalgia win, but my body begs for weightlessness, for detachment from earth and ascension into some other realm where pain does not exist. I will shower today, and it will invigorate and exhaust me. I will not do my hair or makeup. I will be half undone today. I am a reluctant entity today. I am not fine. But I will smile because it’s what I do. I am a paradox, and I am fine. #warrior #fibrowarrior #ChronicIllness #OnedayAtaTime

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    Random hello #Fibromyalgia #fibrowarrior

    Hi!

    Just wanted to introduce myself. I've been around The Mighty for a couple years without getting too involved. Figured it was time to talk to people lol. I've got a ton going on health-wise and fibro is getting worse.

    Anyone else get costochondritis so bad that it feels like a heart attack and feels like you can't breathe?