epstein-barr virus

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chatcat761 Cathy Carlile Turner

#chatcat76  I'm so excited...I found myself! Please don't reply to the text in the title as this is my home. I'm so sorry. I bet I'm the first one to make a mistake! The name of my closed group is Let's See the Patient. I'd love for you to join, as I'm getting all my writings together about my Chronic illnesses and I love to help make appointments go better. Soon, when I'm eligible, (I'm new, so I might not be "old" enough yet), I'd love to do "rooms". I'll get my story in asap. But I'm pausing for a flare to end!

Have a good ??? My husband forgot to tell me what day it is.

Cathy

#TBI #Dystonia #CervicalDystonia #Neuropathy #Virus #EpsteinbarrVirus #LymeDisease #CpapMachine #Relationships #DoctorVisit

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This week’s unique bed

<p>This week’s unique bed</p>
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Newbie

Hey everyone! I was diagnosed with #Fibromyalgia in 2012. I just had bloodwork completed with a specialist who found antibodies for #EpsteinbarrVirus and #LymeDisease . I also have a few vitamin deficiencies. I hope that this will help me to understand my symptoms more and help me! If anyone has any resources to share or experiences I would love to connect. Thanks!

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Do you use mobility aids?

<p>Do you use mobility aids?</p>
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Tips and Tricks for keeping the mind active and not letting boredom overcome you while on bed rest .

<p>Tips and Tricks for keeping the mind active and not letting boredom overcome you while on bed rest .</p>
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New #EpsteinbarrVirus diagnosis. Help!

So I've just gotten my #EBV results and the Dr didn't call to explain. I've scoured the internet but hoping my fellow spoonies can give me some insight with your experiences. I don't seem to fit the symptoms for #ChronicEpsteinBarrVirus so not really sure how this plays into my #Fibro issues.

EBV Viral Capsid AG IGM <36 (neg)="" ebv="" viral="" capsid="" ag="" igg="">750 (pos)
EBV Nuclear AG EBNA IGG >600 (pos)

I also have #Fibromyalgia . Tested neg for Lyme. Neg for ANA 7 years ago. Positive for HLA B27.

Secondary, I feel like my 7 year old just isn't right. He has low IGA and IGB #s so he gets sick a lot. He struggles with some fatigue and still needs a 2 hour nap every day on top of a full night's sleep. All bloodwork normal. Should I test him for EBV?

Thanks in advance!

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Moving

<p>Moving</p>
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Anyone else have one or two “Super sleep” days every week because of your #CFS #ME like needing sleep for 15+ consecutive hrs like u have mono again?

#EpsteinbarrVirus #mononucleosis #ChronicFatigueSyndrome #sleepingbeauty

So I’m fairly sure I contracted my chronic fatigue syndrome as a result of the underlying Epstein Barr virus in my system after a bad case of mono when I was 19. I have other symptoms still but my main problematic symptom that gets in the way of me hiding it and appearing to live “normally” is the fact that no matter what my health is like or how stable my weeks are, I still have one or two days each week where my body NEEDS an excess amount of consecutive sleep hours. It feels like my body and mind must be trying to “catch up” with this extended period of hibernation, even though I haven’t done anything exertion all all week nor have I missed sleep each night. just no matter what I always need a day or two each week where I sleep for between 15-18 hrs (with no drugs or sleep meds or anything that would seem to make sense). It’s a very deep sleep that I just don’t wake up from easily, and if I do wake up once I’m half asleep still and I go right back to sleep as if I were just sleeping through a normal full night when I’m reality it’s like an early night and half of the next day followed by another early night and another 12-16 hr. sleep again. Anyone else go through this each week or is this abnormal even for chronic fatigue syndrome?

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After eliminating basically every other possibility, my doctor thinks I might have Epstein Barr. Unfortunately, my insurance won't cover the test for it. I understand it has no cure anyway, so I am trying to find a way to deal with the constant fatigue, and be able to function. There are days when I manage to interact with family and friends or accomplish something, but after that, I pretty well crash and burn. Getting up every morning is a battle, even on good days. What can I do to deal with this?
#ChronicFatigue

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Anna

Disulfiram for #LymeDisease

I just started taking disulfiram as treatment for my Lyme disease plus co infections last Monday. Currently having minimal side effects but I’m wondering if anyone else is trying this treatment and what side effects their experiencing. Also still trying to figure out what foods and products to avoid to prevent digestive issues and major detoxing. #LymeDisease #disulfiram #Bartonella #Babesia #EpsteinbarrVirus #lymediseasetreatment

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