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How I got to now with #Fibromyalgia and #FibroFog brain
I searched through all the groups to see which seemed applicable to where I am now. I was diagnosed with FMS 29 years ago, after experiencing - what was being called fibroitis by a mostly “it is real”-denying medical establishment - for many, many years of migraine, overwhelming fatigue, muscle pain, etc.
I read a book about what to pay attention to in your body in mid-life and suggestions of what it may be if you experience these symptoms kind of reference. It’s way easier now to find information, well, and disinformation, am I right?!?! At the time I was having such pain in my neck and shoulders and my back.
I was walking across an outer office, going to my own, when someone whacked me right across my upper back, later described by me: “it was a baseball bat.” But it was not. No one hit me. No one was there. It was the signal : THIS IS ABOUT TO GET VERY REAL. I didn’t know that then, but here, nearly 30 years later, yeah, so very real.
Anyway that book described what I was dealing with, called it by name. You may have fibromyalgia. Eureka!!
So it began - knowing what it is or what some things are - years of learning and suffering. Retiring helped a lot with the pain, because so much stress was lifted away. That was 17 years ago. And medication. Better body mechanics learned. All that goes with it. The fog and fatigue now seem like plagues. Muscle weakness.
I would love to get enough sleep.
If you are still reading this way too long missive, you will be glad to know I’m too foggy and tired to keep going for now. #FibroFog #Fatigue
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