fibro fog

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    Brain fog

    In a precedent miniSode to our deep dive into Fibromyalgia we talked about Brain Fog as a symptom of chronic illness and have disabling it can be. Please Go listen and tell us what you think:

    And stay tuned on your favorite listening platform as we release the deep dive into Fibromyalgia this Thursday 3/30-23.

    #BrainFog #FibroFog #ChronicFatigue #Fibromyalgia #ChronicVestibularMigraine #ChronicMigraineSyndrome #Migraine #FMS #MyalgicEncephalomyelitis #CrohnsDisease #Endometriosis #Anxiety #PanicDisorder #ChronicHeadaches #ChronicIllness #ChronicMigraines #ChronicPain #creativecopes #SpinalCordInjury #Whiplash

    11 reactions 3 comments

    I really struggled this week! #FibroFog #Fibromyalgia

    Last week at work I really struggled with pain it was really bad in the afternoon to the point of tears! I have so much to do at work I am getting over whelmed my anxiety is in overdrive! My boss is not approachable about anything. I use to be able to handle anything now I can’t I just don’t understand. I feel useless and I am sure that my boss thinks that I just I am not wanting to do my job. And I will be at work and have a paper in my hand and zone out or forget what I am doing. Everyone is getting frustrated with me and I can’t help it I just feel defeated. I have an appointment scheduled with yet another specialist and can’t get in until august 31st

    14 reactions 8 comments

    I guess this an achievement? #Smallthings #CFS #FibroFog #Fibromyalgia

    I forced myself to get up. Just ow. I'm making a frozen dinner thing. First food today. Drinking a body armour. 🥴 Fibro fog has been bad today. Super confused a lot of the time with bad executive dysfunction. 💫
    I did manage to sit in the living room for a bit today and go outside and say f this because of the wind and cold 🥶 pain managed to re-hit with a double punch and I'm not fully okay but getting food.

    3 reactions

    Toothpaste Follies

    Today I went to get my blood drawn. I take off my hoodie and feel something tubular and squishy in the pocket. So I reach in and what do I find? When I burshed my teeth I put the toothpaste in my pocket afterwords because THAT is where the toothpaste goes, my friend!🤣😂🤪
    #BrainFog #FibroFog #MigraineBrainFog #funny #Humor #lol #CheerMeOn #whoops

    10 reactions

    Help: chronic fatigue, lupus warrior

    I am suffering at the moment. My hydroxychloriquine was stopped in December last year after a 30 day stint in hospital. Recently my pain came full blast in my hips, butt and up and down my spine. I now have fatigue that leaves me anxious and almost breathless. Has anyone experienced this and what did you do? I arm so tired of this, #ChronicFatigue #MyalgicEncephalomyelitis #SystemicLupusErythematosus #Fibromyalgia #FibroFog

    5 reactions 5 comments

    Being honest with myself #BipolarDepression #Fibromyalgia #ChronicFatigue #InterstitialCystitis

    I am agoraphobic. If I do go out it’s with my mom’s home health care worker in a car, or with my mom to help her with her doctors appointments. I have been trying to have phone or video visits with all of my doctors. My whole body hurts. My primary care doctor said that the pain center would treat the pain but not the cause of it. I have a spinal stimulator. So he wants me to go back to the spine center. Now my insurance is saying they won’t pay for Toviaz, my interstitial cystitis med. I’m exhausted all the time but I think raising my Gabapentin would help with my pain though it may add to the exhaustion. I try not to complain but I am lost. So many meds, still so much pain and no energy #ChronicFatigue #FibroFog #Agoraphobia

    4 reactions 2 comments

    Minions (Brain Fog)

    Well every 2 years I change the name of my brain fog… I don’t think I’ll change it this year. But before this name it froggies… and on bad days I would say they are Ribbing everywhere… my Drs. Would say I’m glad you try to laugh through it. Well since I had Covid it has been awful…. It’s like I’m plastered. I’m not sure how to cope with the blank and as a business owner I’m stuck. I don’t even know where to begin to get started but all I know is the pain is so unbearable that I can’t function and the doctors don’t even have a clue as to what to do. #FibroFog #Fibromyalgia #covidlonghauler #ChronicPain

    12 reactions 5 comments
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    My Invisible Illness

    I would like to open up about my invisible illness. I first realized there was something wrong about six years ago when i came to New Zealand in couple of months I got really sick had this persistent pain in my body and I kept getting this shooting pain from my neck to lower back. My pain became more widespread, more frequent, and more intense when I was at university.

    I went to several doctors and specialists had several exams for past 6 years finally I was diagnosed in 2022. The neurologist gave my invisible illness a name Fibromyalgia. I was finally relived they found what actually my illness is however it is a chronic illness which is lifelong and has no cure and also accompanied by chronic fatigue and 100 other symptoms.

    Living with fibromyalgia means living with a chronic pain condition that greatly influences daily life. I feel pain all of the time and this affects my ability to do day-to-day tasks.Every task I choose to do has a trade-off with another. For example, if I choose to cook something, doing the laundry becomes more difficult.

    As soon as i was diagnosed,I was forced to slow down all my activities both in personal and professional life it had gotten so worse that full right side of my body from neck to feet was in so much pain i could barely move, close my fist or hold a cup or grab the spoon to cook or eat.

    Hence i had to make so many changes in my life to gain back strength and mobility slowly back to my body.I had to start taking different medications and therapies with many trials until my doctor found what worked better for me, many meds I was on, messed with my sleeping pattern made me feel nauseous and dizzy whole day and others messed with my stomach lining. I tried to work out because I felt that staying active changing my diet to vegetarian would help me sadly it worsened my symptoms even more. The most challenging aspect of fibro, for me, would be the fatigue, since it prevents me from doing a lot.

    Unfortunately, there are not too many medical experts in New Zealand who have done research to understand what I have, and how it affects my daily life. My husband is my number one supporter and he helps me with my stress which is a trigger to pain, but there are also those who don’t understand or care to, so I just distanced myself from those people. I will continue to remove such people from my life, whether blood related or not, if you are not concerned about my wellbeing then I don’t need to have you in my already small circle.

    In the last six years there has never been a day my body was without pain. I dont even know how it feels to be without pain anymore. I can’t be on meds 24*7 so i try to get as much rest as possible. As the meds have other side effects which causes other health issues.Honestly, i have tried all the pain killers in the world none of those have ever made my pain go even 20% less . There are times when I feel like nothing works and then i started to research and study on this illness myself.

    With my findings and study for months i found out that lifestyle management is the only solution with people who have chromic illness. Since western medicine doesn’t have any cure i studied Ayurveda and gain knowledge around it and observed myself by doing trial and errors with Ayurvedic diet and practising spiritualism as a result to balance and manage my lifestyle Ayurvedic food diet which works for me in subsiding symptoms related to fatigue and stomach lining. Spirituality also really helped me such as meditation and yoga in order to focus on the positivity around me and to push myself to keep fighting with my body in order to live my life to the fullest.

    As far as being open about my illness & symptoms, I hate to complain, because I know it can be annoying to hear someone talk about how much pain they are in daily, so I keep it to a minimum. I hate to hear that it will get better, when I know it’s not going to get better because there is no cure. So, I had kept it to myself. Remember to be kind to people as behind that smile we don’t know who is fighting a battle not everyone likes to open up about their struggles. I have had people commenting on my life about gaining weight or not going out or visiting families and friend. Last six years has been a roller coaster ride for me. I have been faking being okay!

    My biggest battle is the pain I deal with daily, but the biggest is putting on a brave face, getting up and starting my day and trying to keep up with my daily responsibilities either personally or professionally. There was many moment in my life where i would want to scream at the top of my lungs. I just have no control over this illness that has taken over me and i would want to take my life. Then i look around and see I have family who i love dearly, and one look at them, tells me that my life is important and worth fighting for.

    Honestly taking it one day at a time, is how I balance my illness in my personal and professional life, there is no other way. I had always been a high achiever and proceeded to put a lot of pressure on myself in every aspect of my life hence people always say i am lucky whenever i attained my goals whether it was graduating with academic excellence being the top scholar or getting a corporate job at management level or buying a brand new home or travelling around and buying luxury items at early 20s it is not luck it is hard-work sacrifices and most importantly journey of fighting with my own body, health and mind to live life and achieve of my dreams. I just want to say to each one of you if your healthy you are lucky one as Health is Wealth!!

    I would like people to know and understand that this condition is real and it’s depressing- please be supportive. If you find that you can’t be of any help to that person suffering from Fibro, then remove yourself from their lives, and spare them further pain.

    My words of encouragement for others who are living with Fibro are to try to find a doctor who is caring and believes in your pain, and work with them in finding medication that can help you control some of the pain, because right now, there is nothing that take it all away. Continue fighting, and don’t give up, we have people who need us and depend on us, so we must find a way to fight to continue living. And lastly we should all come together and help us spread the word, and know that you are not alone.

    Lastly, this message was not for sympathy it was for awareness in the community which is must needed.
    #Fibromyalgia #ChronicPain #fibromyalgiawarrior #illness #Fibro #healthiswealth #Bekind #ChronicIllness #symptoms #treatment #RheumatoidArthritis #FibroFog #Medicine

    27 reactions 7 comments
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    Fibro Fog

    So yesterday I went on a work trip with a colleague she drove and we talked about a number of things. And there were several times my mind just went blank and I couldn't remember the word I wanted it was so embarrassing. I hate fibro fog and I've only just remembered I have an allergy to Nickel in Jewellery and I was trying to tell her but nope could not remember that it's nickel that brought me out in a horrible allergic reaction 🫣🙈🤦🏼‍♀️fibro fog can do one anyone else got any good stories #Fibromyalgia #fibrowarrior #FibroFog #BrainFog #Forgetful

    16 reactions 8 comments
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    Official Diagnosis #FibromyalgiaDiagnosis #Fibromyalgia #ChronicFatigue

    Hello my Mighty Family! Saturday I got my official diagnosis…after 20 years! I am so grateful I found an amazing rheumatologist who sees patients on a Saturday, and who was willing to spend two hours with me…after looking over the lab results I took in with me, he came into the room and spent the first hour and a half asking me questions, actively listening to my responses, and then sharing that based on everything he was confident in my diagnosis and confident in his treatment plan. Even though I have always known fibromyalgia runs in my family and I have talked to Doctors about it, he was the first to finally acknowledge that, yes…I have a chronic illness, but with his help it will not be what defines me nor will it be the end of my career. Medication management, getting my pain under control with a nerve blocker and a prescribed NSAID (as Advil and Tylenol don’t help and I did not want any opioids) because he said my pain tolerance is way too high, and something to help my sleep. Started treatment and feeling a little better, minus the #FibroFog . Anyone have any suggestions for managing the fibrofog?

    28 reactions 16 comments