Colon Cancer

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Colon Cancer
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    Crash

    Part 1 of 2 I was cold. Even with six blankets piled on me, I was shivering and could not get warm.

    I held the EMT’s hand while in the ambulance. I worried that I was being too much trouble and kept apologizing.

    I always apologize.

    I latched on to my wife’s hand once we were together in the ER.

    Her touch. Warm. Safe. Familiar.

    I know her eyes. I observed them. They looked tired. Red around the edges.

    I was a boat filling with water, and she kept me from sinking.

    I was holding on for dear life and not sure if I was going to stay afloat.

    What I didn’t know until much later, was that her worries for me, and the countless other challenges we were facing – financial, parenting, work, and the daily barrage of hate-filled politics and division, had worn her down to the point that she was praying a plane would fall from the sky and crash into us.

    It sounds extreme now, but at the time, she just wanted it all to be over.

    She remembers the moment as if it were yesterday.

    She thought the warm sunshine and the fresh air might help, so she encouraged me to take a short walk. And she needed a break.

    I started out alone, made it as far as a bench across the street from our home, and frantically called her to come sit with me. I couldn’t handle being alone.

    She joined me. Like a young child, I put my head in her lap, and began to cry.

    She remembers hearing a plane flying overhead and longed for it to crash into us.

    “Death would be easier than this.” She thought to herself.

    It was all too much.

    It is too much.

    Cold fluid from a clear bag filled my veins. I began to shiver. More blankets.

    I looked and smelled like a basket of dirty laundry.

    The sounds and sights of the emergency room plowed through my head like a train.

    My arms burned, my heart raced, my vision was foggy.

    And I was trying to come up with a way to tell my daughter that I was dying.

    I told Kristin that I needed her to be in the room when we told our daughter that I was dying. She just looked at me then told me to close my eyes and get some rest.

    That’s her way of telling me to shut the hell up.

    My head was telling me I was dying. My stomach was telling me I was dying. WebMD was telling me I was dying.

    But I wasn’t dying.

    I didn’t have colon cancer – even though I had every indication of cancer based on the bowel movement color-chart on WebMD.

    The echocardiogram showed that my heart was healthy – even though I could feel it beating not only in my chest, but in my ears, and in my toes. Kristin had to hide the three blood pressure monitors we have at home.

    I wasn’t having a stroke, even though I told Kristin that I thought my pupils were different sizes and my arm hurt.

    God bless her.

    I’ve since learned that I was in the throes of a prolonged panic attack, and I did not understand what was going on.

    It had taken control of my body, mind, and soul. And I had allowed it to do so.

    I have always been a worrier. My brain on spin cycle – fixated on the what-ifs. Spinning out of control – especially at night.

    We purchased our home in early 2017. Hurricane Harvey made landfall south of us not all that long after we started to feel settled. Harvey stalled above our community, bringing devastation and destruction to many.

    We did not flood, but three weeks after the storm while I was cooking eggs, I noticed that the eggs kept sliding to the left of the pan. I wondered if the stove needed balancing.

    The stove wasn’t off balance.

    Our kitchen floor had dropped three inches. Cracks formed in our door frames and walls.

    Our home’s foundation was failing due to the saturation of the ground around and under our home.

    If that wasn’t enough, we also discovered that the plumbing under our home was busted due to the sinking of the foundation.

    At night I could hear cracking in our walls and the sound of dripping water.

    I would lay awake – wide-eyed. The moonlight, once comforting and peaceful, jeered at me through the blinds. I tried to close him out, but he always found his way in.

    If I dozed off, I would experience a sudden sensation of falling. It would startle me awake, my heart racing, my breath fast and shallow.

    I knew that our house was going to collapse.

    I guess by keeping watch, I was preparing myself to bear witness to the destruction that I knew was coming.

    I was not sleeping. I was not eating.

    If you aren’t doing those two things, you are in big trouble.

    My foundation had failed me. Literally and figuratively

    Post

    I feel so robbed!

    My son battled colon cancer at 32. After 2 years he was cancer free.
    At 40, he hung himself over the loss of his wife who had left him for his best friend. Now, 3 months later, I found out I have lung cancer. I don't have my son to hold. Words can not describe the pain .

    Post

    I'm new here!

    Hi, my name is 1434. I’m new to The Mighty and look forward to sharing my story.

    #MightyTogether

    #Anxiety

    #Depression

    #BipolarDisorder

    #Fibromyalgia

    #PTSD

    #RheumatoidArthritis #sjogren #chronicfatige #suicidal . It's hard to put one's journey of Chronic Illness into a story, but I will try. I started ill at age 5, I had a twin who became unviable in the womb and I carry the person around with me everyday. At age 5 I remember having huge tumors on my left thigh. They tried to freeze them because they bled a lot and finally decided to take them out. Many years later my Mom told me it was a twin and what they pulled from my thigh was a mass of cells, teeth and hair. It left two very large scares and kids always tease me. I had a lot of childhood illness but with antibiotics you could solve everything. Fast forward to 35 I began having intestinal problems, I would have bouts of diarrhea that my body didn't feel until it was to late. I kept telling my Dr's and nothing was done. I finally got a referral to a Gastroenterologist who did a colonoscopy and found several polyps that is were left alone even for a week I would have 1st stage colon cancer, she got them out and followed up till I got Gastroparesis. I went again and she tested it by whatever, and when I was waking up I heard her speaking with my Husband and she told him I did have Gastroparesis and since I could not eat and was in the hospital many times, she had the gall to tell my Husband that I was going to die. Somehow I kept him from killing her right there on the spot, Again a long story short we were in the hospital again and met a Gastroenterologist who would see if he could help me . He got me to the only Dr in town that knew anything about what was happening and he tried to help. It got to the point were the only thing left to do was take out my stomach. So I ended up with no stomach and no desire to eat. Now that I have bored you to death I will just skip over the rest with a get to the rest. I believe I have been Depressed my whole life it got worse as I grew up. At last I met my husband and he helped me get the help I needed so I didn't self medicate any more. I have been with my Psychiatrist for over 25 years and he watches me very carefully and since my last suicide attempt he has my husband disperse my medication, so everything is locked up. I have a small Tribe helping me but as with my Husband I feel like such a burden, he would do anything to help me. My worries are that he is 9 years older than me, he had a sudden heart attack in December and that really scared me because as most know you become a Ghost when you have any kind of Chronic illness. Okay I have bored you long enough and I grateful to find groups like this.

    Post

    Narcissistic mother has cancer

    My mother is a narcissist it’s complicated and a long story but I didn’t know my mother until I was 13 and she was clean and trying to put her life back together after years of drug abuse. I don’t know what made her a narcissist and I’ve tried to be understanding and I’ve given her a thousand chances to have a decent relationship but she is toxic. I have a son of my own now he’s 9 months old and I didn’t speak to her for most of my pregnancy because of an issue she had with my husbands family and quickly after he was born she caused another issue by telling people my husband was abusive when he is not. She has reached out again and said she has been diagnosed with colon cancer and would like a chance to be in my sons life. I haven’t asked many questions and at the advice of my therapist I told my mother I would consider making amends but I needed a few days to think about it. It’s been two weeks and I still haven’t come to a decision and my husband supports my choices but there is just to much and I don’t think her being sick is going to change her behavior… if anyone has any advice or what you would do if you were in my situation I would appreciate it. #narcissist #AbuseSurvivors #BorderlinePersonalityDisorder #Anxiety #

    Post

    Am I Allowed to Feel?

    This is long. So bear with me.

    So a majority of you know my brother in law was diagnosed with Stage IV colon cancer last September. He had four rounds of aggressive chemo, went back to MD Anderson for a scan and the cancer had reduced, so they put him on a less aggressive and intense chemo for the remaining four rounds. After those four he went back to MD Anderson for another scan and the cancer had spread. They ordered eight more rounds of intensive chemo and told him he has about one year if he didn't take well to the chemo, two if he did. He had his first round of the new chemo three weeks ago.

    Since that first round, he has had agonizing abdominal cramps, vomiting and diarrhea. He has not been able to eat or drink. He was in and out of the ERs, including MD Anderson, his last ER finally admitting him where he remained for roughly nine to ten days.

    While at Hillcrest Main in Tulsa, during his time there they constantly had fluid IV going to him because he was so dehydrated. His potassium was super low so they were pushing potassium. He was ordered a feeding tube but he couldn't take the one down the nose and the surgeon said for his type of cancer, the feeding tube surgery had a high fatality plus she did not believe it would help. So they skipped that, did a colonoscopy and a endoscopy. His throat and bowels were swollen. They took a sample during the colonoscopy to test for C-Diff bacteria. The doctor said it looked, smelled, acted, etc like C-Diff but they could not start medications for it until they had a positive lab. They stated it would take 2-3 days to get results.

    Guess what? They DESTROYED the sample. They never tested it! So he has to have ANOTHER colonoscopy done. They next day they told him it wasn't C-Diff and it was just that he was in the final stages of his cancer. How can you go from 2-3 days to get the results to "we got them it's not C-Diff".

    He left the hospital on Friday or Saturday and is home. The plan was to get him to MD Anderson (if it was the cancer, they would have seen it on the scan the week prior when he was there) but he is too weak to make the trip. He has decided to stop chemo and to bring in hospice. He is exhausted and sick of being in pain and just doesn't want to be in pain anymore.

    I am angry at the hospitals for this. I am upset it feels like he is giving up (I know he isn't, he is tired, his body is tired and he is mentally exhausted from constant battling). My heart breaks that my husband will no longer have his brother, my mother in law will no longer have two sons and my sister in law will no longer have her husband. I feel guilty and that I have no right to be we upset or cry as much as I have the last two days because, I just married into this family. I didn't realize how much I would love having a brother in law and sister in law that would I actively want to participate in their lives.

    I ask that you all pray for my entire family of in-laws and me. We are going to need it. It's going to be a rough time during and for a bit after. I love you all. ❣️

    Post

    I'm new here!

    Hi, my name is Fjtb123. I’m new to The Mighty and look forward to sharing my story. I was diagnosed with Ulcerative Colitis around 39 years ago after having a colonoscopy. I was able to work as a teacher for 30 years with no symptoms. It was like I didn’t even have Colitis. I retired 10 years ago and am now 75.Once I turned 65 my doctor told me I needed Colonoscopies every year because colon cancer triples after 65 for people who have Colitis. My last Colonoscopy was last June. I have another one scheduled for this June. Since my last procedure I am really not doing well. I never have a regular bowel movement, always soft or even diarrhea. I am on Mesalamine suppositories as well as the Mesalamine pills. My problem is more with my bowels than with stomach pain.just yesterday, I had a salad and potato soup at Longhorn with a friend. On my way home, I felt the urge to go and had a terrible accident as soon as I got into the bathroom. Recently, this has happened to me at least 3-5 times. I only eat applesauce and scrambled eggs afterwards. I take Colace off and on due to constipation issues too. I am now staying home lots more as I am afraid I will have a sudden urge to go in a public place and not make it. No one offers me much support, and I feel like I don’t have a normal life dealing with this daily.

    #MightyTogether

    Post
    See full photo

    My third colonoscopy prep

    I have many disabilities if I sit down & think about all of them; single sided deaf, acoustic neuroma (surgery for it made me SSD), chronic vertigo, anxiety, depression, fibromyalgia, eczema, stress, PTSD. That could be all. With having this 3rd colonoscopy, I’m wondering if I might have IBS-C or slow \stomach or something. My SIL & one of her daughters have IBS-D.

    In my first, I got a lecture about doing a complete prep. I did take everything I was supposed to, but my body is just slow. In the second colonoscopy, I got well washed and stuff removed from 3-4 diverticuli. How horrible to see something I ate c ome out. Yuck. This time, I am on a 3 day liquid diet. Broth and apple juice are my most exciting meals. I’m praying for a squeaky clean backside on Friday. I’ve had 2 pre-cancerous polyps removed. My dad died of colon cancer. I take this test very seriously. I’m worried about the insurance charges will be. Has anyone else here had an invasive test one/week for 3 weeks in a row? My fibromyalgia is in superflare. I don’t want or need any sedation. I’m taking Lyrica at 300 mg/day, xanax at 4 mg/day, Effexor xr 150 mg/day, Wellbutrin 300 mg/day, Trazodone to help me sleep. My pain is at 10, well, WAY past a 10. I had one nurse pressing on my lower abdomen while someone pressed my back. It didn’t hurt.

    Has anyone had a major round of events like this? How has it impacted your life? My fingers are too painful to do knitting. I’m trying to really figure it out. How long will recovery be? How much am I getting hurt if I don’t even feel pressure as they are going through my bowels? (Photo from my painful trip to Key West, Florida in early April. Our 2 kids not fighting, standing side by side, looking off our balcony. It was bliss.) #fibrmyalgia #Colonoscopy # pain-levels, #IBS -C #Anxiety , #Depression

    Post

    I can't wrap my mind around this

    I have had tummy issues for most of my life with lactose intolerance and IBS after I was diagnosed with Fibromyalgia. My tummy issues worsened very slowly over last few months that my wife and I decided that I get checked out. Went to see a GI Doctor and he ordered an upper GI and colonoscopy to see what's going on with my gut. I figured he was going to say that I now have Chrons Disease, it's just IBS or worse there's nothing. You could have knocked me over with a feather when he said that I have a 3" x 4" tumor in my Colon and the biopsies confirmation that it's definitely Colon Cancer. Wait Doc what did you say????? I have Cancer ?!?!?!?! Cancer ............ never thought that would be used in the same sentence as my name. Now it's a big rush to get tests done and to get me to a Colorectal Surgeon due to the size of the tumor. I have faith in my doctors, I'm just beside myself. During one of my tests they have found that I'm passing a 6.5mm kidney stone on top of everything else and I just never fully recovered from the Upper GI and colonoscopy. My nausea and trips to the bathroom have gotten worse. I hope I can get some answers soon cause I have more questions than answers now. #cancersucks

    Post

    I’m new here!

    Hi, my name is Duranie86. I’m new to The Mighty and look forward to sharing my story.

    #MightyTogether #Depression #Anxiety #Grief #Fibromyalgia #JuvenileDiabetesType1 #ColonCancer