Join the Conversation on
202 people
0 stories
9 posts
Explore Our Newsletters
What's New in

Struggling today... #newdiagnosis

Today was a day where I struggled to get up. I didn't want to acknowledge the day just to crawl back in bed. I have a new diagnosis an answer for my symtpoms but now I have a lot of very difficult decisions to make and no one to really talk to that understands.... Endometriosis is my new battle and I will be a  #Endometriosiswarrior Glad I can finally understand why I feel the way I do.


Orilissa 200mg

I have been on Orilissa 200mg twice a day for a little over a month and I’m not sure how to cope with the side effects. I’m 18 and I get hot flashes. They prevent me from performing the best. I find myself sitting down fooling off for a long period of time. I’m tired of explaining to people that I am hot in 30 degree weather. endometriosis #Endometriosis #Endometriosiswarrior #Orilissa

See full photo

I’m with you endo-sisters! 💛

I just wanted to send a quick shoutout to all my endo-sisters on here. I know how hard this disease is to live with and how much it can impact your life.

So whether you’re having a good day or a bad day, just know you’re not alone on any day. You have people out there who truly understand you on the deepest levels and sometimes just knowing you’re not alone can really help.

Stay strong sisters! Sending all of you hugs, strength and comfort to start the week.

💛💛💛 #Endometriosis #Endometriosiswarrior


Tips to beat Endo flares and belly bloating?

I'm on my fourth flare day in a row. At least I think it's a flare. My Endo pain seems to be getting worse since my surgery 5months ago. I was diagnosed with severe Endometriosis and my pains and symptoms have gotten worse since month 3 post op. It's so debilitating!

Does anyone have any tips or tricks to beat Endo flare? Also does peppermint tea actually help reduce endo belly aka bloating? Any other things that help?
#Endometriosis #Endometriosflareup #Endometriosiswarrior


Endometriosis #Endometriosis #Endometriosiswarrior #CheckInWithMe

14 months post laparoscopy surgery, and getting the mirena. The pain has returned, and the pain has been so intense it hurts to sit up straight without releasing a painful grunt or moan. After 2 stressful weeks of doctor appointments, and tests. I have been put on herbal supplements for 1 month to hopefully stop my period all together or if the supplements don’t work I will have to do another laparoscopy surgery.



To whoever’s reading this-
I woke up this morning and got out of bed. #Endometriosis #EndometriosisAwarenessMonth #Endometriosflareup #Endometriosiswarrior #endometrosissucks #ChronicIllness #illness #Invisable
That there is proof that I am not giving in or giving up.
To friends-who I’ve lost or become memories of the past because we haven’t done things, I’m sorry, I am not a free women.
To the people who know not much about me but proceed to judge, your voices will not be heard no more.
To the Men and women -who do not live with a chronic illness yet carry on slating the ones who do, you hurt us.
To endometriosis, you may have my body, you may make me feel like I’ll never have my freedom. You may ruin my “good” days and crush me. You may leave me bloated and bedridden. You may admit me to hospital, you may attempt to take many chances away from me. You may make me cry, or angry or irritated. You may not only attack one part of us but all our organs. You are incurable and you are evil, and you leave us feeling drained and empty.
But, To me- you are strong, you are powerful and you can try take back what body you have left. You can be brave and try your hardest, you can smile past the feeling of being torn apart. And even the days you feel you’re worth so little, you’re here for a reason. This post is for the people who feel constantly alone, YOU are NOT.... Be careful before you assume how someone is on their looks please.



Endometriosis is horrible, Endometriosis is so much more then people think. It effects so much not just physically but mentally too. You feel ashamed, mentally drained and anxious ..anxiety because you’re scared you’ll get in pain whilst you’re out. Endometriosis gives me daily pain. i live in daily pain because of this horrible illness and very little people know what endometriosis is.
Endometriosis is a medical condition that occurs when the lining of the uterus, called the endometrium, grows in other places, such as the fallopian tubes, ovaries or along the pelvis but it can grow in a lot more places like your bowel and bladder, endometriosis can grow everywhere and fast.
some people deal with pain during sex and that’s all they deal with. Some people deal with that and pain when they’re on their period
and then there’s some that deal with pain all the time, the pain isn’t mild, it’s severe pain down your legs, in your hips and back. You’re stomach feels like it’s twisting but also being stabbed. People pass out from the pain, some are sick. Endometriosis needs more awareness. endometriosis is so so so much more then people or doctors know. i’m always in bed crying in pain, doctors like to say it’s normal. it’s not. #Endometriosis #EndometriosisAwarenessMonth #Endometriosiswarrior #endometrosissucks