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Really struggling with this .... #MentalHealth #mentalhealthmatters #Anxiety #Depression #Selfcare #ChronicPain #ChronicIllness

I am really struggling with getting used to the NEW me ! The reality if chronic pain & illness & struggling with the fact I am no longer rthe person I was before. I am no longer able to make plans in advance as I really do not know which way I will be when I wake up.Between the constant pain ,the fatigue,anxiety,restlessness,feeling overwhelmed, frustrated and trying to just get through a day it's just impossible. I no longer put pressure on myself for being unable to do this or feel guilty as I have enough going on without constantly putting myself down over things I CANT control.I am struggling at times though feeling frustrated that when I do things even someday just walking around the house or garden a little more I make my pain so much worse and with having this infection now over 3 months someday walking is just unbearable!!

I am struggling but I will keep trying and trying to be kind to myself and proud of myself if all I did was make it through another day 👌😊

#MentalHealth #mentalhealthmatters #Anxiety #Depression #Selfcare #Melanoma #SkinCancer #Insomnia #longcovid #COVID19 #PTSD #Upallnight #CheckInWithMe #ChronicPain #ChronicIllness #InterstitialCystitis #Endo #Positivity #Bekind #Bekindtoyourself #Catheter

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Giving Grace to yourself

When’s the last time you gave yourself a pat on the back? You got up today, you fought through your pain, you drank some water or took your medication. You my friend deserve to give yourself some grace. You know the grace you so freely give to others. Stop depriving yourself of kindness to your own body,mind and soul. What would you say to a friend going through your troubles? Here are my ways of being better towards yourself and your outlook about yourself.
#ChronicIllness #Endo #warrior

uniquelyendo.net

Endometriosis lifestyle

Making the journey through life with endometriosis and chronic illness. Follow me through my journey learning tips and tricks I have learned along the way. Finding real and raw information directly from those who have the real life experiences with endometriosis.
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Just joined the app

Just joined the app to hear and share stories of endometriosis, chronic migraine, vulvodynia and hidradenitis suppurativa. Looking forward to it!

#Endo #endometriosis #chronicmigraine #Vulvodynia #HS #HidradenitisSuppurativa #Migraine #Headache

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Do you or someone you know struggle with endometriosis?

I've been struggling with Endometriosis since I am 13 years old. Please share your story if you can relate!

anchor.fm/thewellnessprojectwithdes/episodes/89--Endometrios...

#Endometriosis #Endo #EndometriosisAwarenessMonth #mentalandphysicalhealth #MentalHealth #podcastepisode #Sharingmystory

89. Endometriosis Awareness by The Wellness Project with Des

Welcome to my podcast, The Wellness Project with Des. On today’s episode, I talk about my own personal struggles with Endometriosis in hopes of spreading awareness.  Join my mailing list and get your free printable 7-day Gratitude Journal: https://www.subscribepage.com/k6p4b2 Become a part of my facebook community: facebook.com/groups/accordingtodes If you liked this episode or have enjoyed any of my past episodes, please leave me a review on iTunes! I would really, really appreciate it! https://podcasts.apple.com/us/podcast/the-wellness-project-with-des/id1477570126?utm_source=newsletter&utm_medium=email&utm_campaign=lets_talk_about_a_taboo_subject&utm_term=2022-01-27 And make sure you share this episode and tag me on social media @the.wellness.project.with.des
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#tired #fedup #painuponpain #EDS #Endo

I'm tired of feeling tired.

I'm tired of feeling fed up

I'm tired of spending all day in bed as I can't do/face anything else

But most of all...

I'm tired of being in excruciating pain due to my endo on top of my Chronic pain due to EDS!

I know there is an end to this but it seems to be so far away as I don't have a date for my op yet, not to mention the fact that that might not even stop the pain!

Also...

I want to get back to work but at the same time I'm terrified that I won't cope when I do!

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Has anyone experienced hypermobility after starting visanne? #Endo #Endometriosis #Hypermobility

When I first started Visanne (Dienogest/
progestogen only pill) I pretty mutch immediately was getting Joint Pains and started to be noticeably more flexible. I was hypermobile my whole life but my problems never were as severe as now. I went to the doctors multiple times but every single one of the thinks it can’t be connected to this medication. I switched medications for a while and my symptoms improved a tiny bit. But as soon as I restarted Visanne my issues started to worsen again.

I think the explanation of one of my doctors that „it‘s just in my head“ doesn’t work out because I am „measurably“ more flexible. By that I mean I can touch the floor much easier I‘ve got many new stretchmarks that at just not explainable otherwise ect.

If anyone has ever experienced something similar or has any advice I would be very grateful to hear from you!

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Extra-pelvic endometriosis isn’t rare; endometriosis specialists are

It’s not okay that endometriosis patients are so mistreated and ignored that I am at the point that any medical appt makes me feel extremely scared and anxious. It genuinely fills me with rage at this point. The fact that I’ve been treated like literal garbage by so many doctors for so many years—for over a decade—that seeing someone new makes me this upset is a disgrace. To be vulnerably honest, friends, I really do feel like I’ve been traumatized by this over the years, after having to deal with this many salty doctors’ snide comments, dismissals, and deflection of blame onto me as if I am not sick—instead I’ve been treated like my mind is the problem—all because of their bruised egos that they weren’t skilled enough to help me, or their ignorance due to THEIR lack of knowledge about my illness.

I have seen three doctors this year alone who have refused to even believe me. They offered me nothing more than some iteration of: “no one has that much pain from a period try ibuprofen,” even after seeing my book-length chart & my surgical diagnosis! Before I was diagnosed it was even worse—I spent almost two years (my whole MA) in pain almost every day, physically & mentally, and I had no choice but to cope as best as I could with zero assistance from any of the many, many doctors I went to see during that time. It stopped me from being as social and active in my program as I wanted to be too—and it was all because my doctors were a joke who said I was fine &/or who told me my pain wasn’t even real and that I should see a psychiatrist. They were awful. They made me feel completely hopeless. At my lowest point, I even started to question my own mind and my own bodily experience. They treated me like I was “hysterical” to the point that for a while, I actually felt like I was losing my mind.

The worst part about all of this though is that these doctors, the people who I should have been able to rely on to help me, didn’t just fail to do their jobs—they also made my illness and my pain significantly worse. If I hadn’t been dismissed, derided and put down by doctors for the last decade that it was growing in my body, then my endometriosis wouldn’t even have progressed to its current multi-organ state. Now it’s so painful I can barely function most of the time. How messed up is that?!

Our society teaches us that doctors can be trusted and they always know more than we do—endometriosis patients can confirm that is a LIE. We, the endo warriors, are the true experts when it comes to endometriosis. The majority of OBGYNs and primary care doctors know less than we do, worldwide, and that is a serious problem. #Endo #Endometriosis #endometriosisawareness #MedicalTrauma #MedicalPtsd #ChronicIllness #Misdiagnosis #access #HealthCare #Diagnosis #reproductivejustice

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Trying to think this is funny, but it’s not really … #Endo warrior

Anyone else wish they could invent a wearable diaper shaped heating pad for pain ?
#Endometriosis

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Can’t stop crying and so overwhelmed #fibropain #BipolarDisorder #Endo

I am sitting here waiting for the sun to come out (if it decides to due to our Winter weather!) crying from the endless pain, the dark thoughts and the overwhelming feeling that my life is again spiraling out of control. I just found out there is another cyst on my last ovary and the oh so familiar pain of endo is becoming unbearable. Fighting that with my never ending pain due to fibromyalgia it just never seems to end. I know my state of mind isn’t helping, the last connection I have with my dad who passed away is being sold and there is so much pressure from my family who shows no support and doesn’t believe there is anything wrong with me to be on top of it all. I just am struggling to find reason…purpose, anything to grasp on to. I feel like I want to give up because it’s all too much. No matter how I try to explain the pain, unless you have experienced it, you can’t understand it and there are always the comparisons, oh I am in pain too you know…I constantly feel like saying it’s not a competition!!
Thanks for reading this message, I needed to express myself without judgment or without anyone minimising my pain. Xxoo

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