Adenomyosis

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Can anyone else relate?

Hey everyone!
This is my first post, I just joined today.
I am reaching out for support as I am feeling very alone in my chronic illness. I have been diagnosed with 15 chronic illnesses; 5 of which are autoimmune diseases. In my journey, I do not feel as though anyone can relate to my experience and people get overwhelmed when I talk about it. I see people’s eye get big and they get uncomfortable or just try to fix my “problems”.
I do not know anyone who has been through what I am going through, or if they are it is not at the extent that I am.
Does anyone have suggestions for this or can anyone help with some support on the matter? I have been feeling very lonely as a result.
Thank you all. ❤️ #ChronicIllness #IntracranialHypertension #exhausted #Loneliness #RheumatoidArthritis #AntiphospholipidSyndrome #Endometriosis #Adenomyosis #PolycysticOvarySyndrome #AlopeciaAreata #Psoriasis #Fibromyalgia #Lupus

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Going through so many health issues and human suffering

So many things I have been through from age of 38 til now and still counting. I feel so stressed and unwell. Miss my kids. Especially my oldest daughter and I wish she could just text me and message me. I am craving some human comfort my spouse can only give so much. He has his own battles. Anyways I had thyroid issues since 21 yrs old. At 38 yrs old total thyroidectomy, 40 a hysterectomy for adenomyosis since I had all my kids plus #PCOS #Adenomyosis #HashimotosThyroiditis , #Anxiety #Depression . My health journey hasn't been easy last year in November I had positive ANA test and high antibodies and it's been ignored. Well this many months later I find out through an upper abdominal sonogram that I have a very bad gallbladder and the pain in upper belly started hurting and also lower belly. Anyways I feel so tortured. Besides bad vertebrae in neck now causing left shoulder pain and issues interrupting my work I do for a living. Anyways I hope in the future my oldest daughter could at least text me. I am having upcoming gallbladder surgery I have a mass in it and also have sludge in my gallbladder. This isn't good my Gastroenterologist has sent me to the specialist to see for surgery. Thank God though saw a orthopedic and need no MRI in shoulder at all. Anyways I do need see the specialist for cervical, thoracic and lumbar vertebrae. Hoping he can give me some relief with neck a shot or something til I can get whatever else done.

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Hi!

I haven't here for very long and in the beginning I didn't think this would be a place I would frequent so I didn't post a I'm new here post. But a few weeks have gone by and I am seeing how beneficial it really is here and find myself checking in on a regular basis. I hope to make some friends and find others who understand. I hope to share good times and bad times and lend a listening ear. Looking forward to getting to know you! #Fibromyalgia #PTSD #Anxiety #ChronicPain #Recovery #Adenomyosis

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Feeling Alone #CysticAdenomyosis #Adenomyosis

Every time I’m laid here in crippling agony, tears streaming down my face, I just want someone to say “I know how you feel”. However with Cystic Adenomyosis I’ve yet to find anyone else with this ugly disease that can say that. I feel alone, in pain and wishing someone else could say those words. Then I realise I’m wishing this ugly disease on someone else, which I’d never dream of. I can’t win.. #CysticAdenomyosis #Adenomyosis

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Period Pains

Have you ever just wanted to yell at your uterus because your period hasn’t started yet but you keep getting period pains? #Endometriosis #PolycysticOvarySyndrome #Adenomyosis

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Ovary Removal

Had my right ovary removed yesterday! While I’m still in a ton of post op pain, I’m not feeling the constant pain I’ve felt for the past 4 years. My doctor also checked for endometriosis and hasn’t seen any new growth, and of course my uterus still shows signs of adenomyosis. #PolycysticOvarySyndrome #Endometriosis #Adenomyosis #Surgery #ovary #ovaryremoval

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