Not super mom, just a regular mom with a chaotic life. #TuberousSclerosisComplex #SpecialNeeds #SpecialNeedsParenting #InfantileSpasms #Parenting #Epilepsy
Special needs parenting comes with many challenges that vast majority of people don’t necessarily understand. We are out here quietly struggling and pretending to be strong because nobody wants to see us weak.
Once someone hears that your child is different abled, people start to picture a incredible strong women who is a fierce advocate that doesn’t take no for an answer.
While I like to think of myself as such, the reality looks very different. I’m more like a typical hot mess, coffee addicted, messy bun, dropping kids off in pajamas - frankly my house is a mess too and my memory really SUCKS! I would love to say how organized I am, flawless med schedule for my youngest, how I meal prep and everyone is on Keto gluten free whatsoever diet. But... I would lie– Our pancakes come out of a box. TADAAAAHH!! Wellll... Actually, cereal is more of a breakfast choice in my house.
What I am trying to say is, NO, I am not the special needs mom you picture. I cry tons, my mind is packed with worries about break through seizures, forgotten meds, Tuberous sclerosis complex, arrhythmias and the list goes on.
We are humans, we are moms who just want the best for our children. I think majority of mothers do. Bottom line is, we are not super heroes, we are fragile too! If you know a special needs mom, check on her. If you know someone is a special needs mom but you’re not close to her (yet), go talk to her. She will appreciate it. Some of us don’t get a lot of social interaction but we need it more than you can imagine.