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Crispy, crunchy day (part 1)

God, that wind is bitter, in a yellowy-pinky sort of way. Need to put something warm and woolly on.  Woolly - hmm... that has a nice, kind of grey sound to it.’

Mike walked out the door as a gust of cold wind hit him in the face.

‘That whistling wind was in A flat - you’d have expected it to be in C

sharp!’ he laughed to himself.

‘Oh well, this won’t get the cow milked or the beer barrels down the

cellar’ he said to himself and walked on.

‘This is definitely hot chocolate weather’ he thought as he waltzed on

down the road.

‘Morning, Mrs Wilson!’ he grinned at the approaching woman.

‘Morning Michael!  Cold day!’ she replied.

‘Yes but there’s a tinge of orange in the air’

‘If you say so’.  A look of ‘Oh my God, here we go again, crept across her embarrassed face, which turned slightly away at this, too her, unfathomable remark. Michael continued ‘You can almost taste it, when the wind blasts you in the face’.

‘Can’t argue with that’ Mrs Wilson said in a bemused, rather than amused way.  She looked at him strangely, knowing this was just part of him and his strange family.  His father for instance and the way he referred to all lawnmowers as being ‘Grahams’ - moaning, tough, stubborn and always arguing with you, rather than just cutting the

grass as they were simply meant to do. ‘Nutters, all nutters’ she thought to herself ‘ -but mostly harmless’.

Michael moved off. ‘Well, shopping to do, must dash!  Goodbye Mrs Wilson’.

‘Yes’ she said, then realising she was looking at him strangely, she shook herself free of the self-induced trance and said ‘I must go too’.  Turning her back on him, she walked off as well. ‘Why is it always like talking to the Wooden Tops, when I meet that boy?’ she

muttered to herself with regret, before disappearing down the street.

‘Must remember to get some 92’s in Tescoes’ Michael thought to himself.  ‘I really love that flash of red, which the number 92 brings to mind (92 evoked scarlet in his thoughts, which was a code for peanuts, for no sensible reason he’d ever been able to discern but it

was always 92-scarlet-peanuts as an association in his head).

Great uncle Ernie was funny.  He used to say that Tuesday made him sad - not the day itself but the name. All he had to hear was the name repeated, to feel himself slipping into a bleary eyed state.  Kids at school would take advantage of this to make him burst into tears by chanting 'Tuesday! Tuesday! Tuesday!'

'What's up Smith?' a teacher would innocently ask.

'They've been screaming Tuesday at me again!'

To which the teacher would respond by clipping him round the ear, saying 'Pull yourself together boy!' or a baffled 'What the hell are you on about?' again followed by a clip round the ear, for being cheeky to the teacher.  'I don't know what your game is but I'm not

putting up with this utter dribble - do you understand? See me after school.'

'Yes but-'

'Don't but me or you'll have to stay behind for longer!'

When he was older, he used to say a bit of how's your father, smelled of chestnuts at the crucial moment, for some reason ('Could be to do with Christmas and stuffing!' he always said with a wink).

As a small child, he apparently nearly jumped out of his seat at the table because an orange's bitter taste, made him see a bright, green flash in front of his eyes.

'I've always been wired up strange' he always said, when reminded of this and other incidents, that elicited peculiar responses in him.

Uncle Dick was totally different.  He became a maths teacher.  He said that he was so good at it that numbers jumped up at him.  Colours and geometric shapes, stood out like   3-D versions of the real 2-D things, floating in space before him, like what we'd call holograms I suppose.  He also used to say that sound was a pyramid and that high

pitched notes were at the pinnacle and low, bass sounds were naturally 'at the base.'  He also said that the pyramid was coloured - the bottom being dark and physically heavy.  As you went up it, it got lighter and lighter, going through all the colours of the rainbow (and

then some), until you reached the very top which was bright and 'light,' in both senses of the word.

He also used to say that he could see everything in layers or scales, like music (He even said emotion was the same); you name it - it was all graded by opposing forms of existence, from hard to soft, up to down, inside to out, fast to slow etc.

He further said that males were hard, rigid, spiky, crude and the feminine was marked out by being soft, round and refined. Women were fluid - melted by their own warmth, into one form or worn smooth by time and motion.  Men on the other hand, were rigid crystals -

separated by their cold, hard, incisive attitude to life.  Women were settled - coagulated into a rounded form, like The Earth itself but men were always unsettled and unsettling (up in the air).

It's funny but he was a genius that way because I was useless at maths myself, plus couldn't tell right from left and was always getting lost as a child because I had no sense of direction.

Auntie Jane was a brilliant artist and the only member of the family to get anywhere, apart from Uncle Dick.  She was a mean piano player too, preferring Blues and Jazz because they inspired her so much, with their dark, opulent colours, she said. 'Oh those rich, velvety, jazzy purples,' she'd croon, when tinkling the ivories.  She unfortunately

suffered from epilepsy.  It was her opinion that the sheer influx of some colours, flooded her brain with so much electrical activity, that she collapsed into what she termed a mental orgasm of riotous shades. Eventually she ended up in a mental asylum because of it.  I used to suffer from migraines for the same reason.  Particular sounds would overwhelm me and the inside of my head would reflect Disney’s 'Fantasia' - flashes of red, yellow, magenta etc.

Cousin Tom used his synaesthesia in a constructive way. 'The Great Tombola!' as he was known.  He could memorise telephone books as a child - not that anybody particularly wanted him to but that was his party trick each Christmas.  He was even better at doing mental arithmetic than Uncle Dick but the latter didn't care too much, saying he knew several Mathematicians who couldn't count their blessings, let alone the change in their pocket.

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Focus on how powerful you are.

There are people in this world who like you, love you, and have judged the heck out of you. People are going to see you the way they wish to. Do not try to interfere with that. But, I want you to have the ability to see you the way you wish to. And I want you to see a beautiful soul who has overcome so much with elegance and resilience .🩷.
-Danny Gautama

#MentalHealth #Epilepsy #Anxiety

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📚 🏊🏻‍♀️ “Breathing Underwater” by Abbey Nash 🏊🏻‍♀️📚

I thoroughly enjoyed this book. Ever since I saw the description, I have wanted to read it. It’s rare that there is a book about a health-challenged protagonist who competes in sports. Especially since the sport was swimming, I was intrigued, and this book did not let me down.

Tess is a teenager who swims competitively at her school. She is one of the top swimmers on her team. However, when her frenemy invites her to a sleepover and Tess has a seizure, her life seems to go downhill. She is diagnosed with epilepsy and eventually begins to learn what is really important in life.

My favorite part about this book is that Tess finds a way to do what she loves—swim—in spite of the obstacles her epilepsy presents. I think that’s a really important message that people with health challenges can still do what they love and achieve their goals, even if it looks different.

I also liked that the novel gives a lot of information about epilepsy without sounding like a textbook. The information is presented through Tess’ experience, which was really interesting. The novel was educational for me because I didn’t know much about epilepsy before I read the book.

The information about epilepsy was also very well-written because the author has epilepsy herself.

Overall, I would recommend this book to anyone who loves swimming; there were a lot of references to the sport included. This was an inspiring read and I’m glad I read it.

Here is the synopsis:

In this slice-of-life, sensitively written novel, a teen girl grapples with a sudden epilepsy diagnosis, all while figuring out a new crush and an uncertain future. Seventeen-year-old Tess Cooper lives by three train hard, study hard, work hard. Swimming is her best chance at a college scholarship. It’s what her parents, her coaches, and even her best friend expect from her—and Tess can always deliver. Until tragedy strikes. Tess has a seizure, and her world suddenly becomes one of doctor visits, missed practices, and a summer job stuck behind a counter—not sitting high in the lifeguard chair like every year before. Instead, her spot goes to new guy Charlie. Sure, his messy hair and laid-back demeanor sends Tess’ heart racing, but this isn’t really the time. She’s got to focus on getting back in the pool—regardless of what her doctor or anyone else says.

📚 Happy reading! 📚

#themightyreaders #Epilepsy

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Back Pain to the Max

Hi. I have a slew of health issues for 30+ years now, including Crohn’s, epilepsy, endometriosis, fibromyalgia, migraines, history of TIA strokes, history of reversible cerebral vasoconstriction syndrome, POTS, along with a new, undiagnosed auto immune disease that they cannot figure out yet.

Recently, I have had a series of bulging discs occur in my spine (currently at 6 with 4 compressed nerves) that they have marked as degenerative disc disease. Upon my neurosurgeon inspecting the MRIs of my spine, he said that it is autoimmune related, degenerative in nature, but that he has no idea what it is, cannot fix or help it, cannot operate on it, and cannot stop the pain.

At this point, the pain is so intense that even with an opioid patch, Norco, and a muscle relaxer, I am still shaking in pain. Does anyone else have anything of this nature? Does anyone have any idea what this might be? I know that my doctor is currently toying with the idea of Stills Disease One of my unknown diseases could be as well as the possibility of mast cell activation syndrome, being present.

Any help is much appreciated! Thank you so much.

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