Epilepsy

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Epilepsy
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    Switching Meds

    My Dr wants to switch me over to Vimpat, apparently Zonisimde is not doing the job anymore and I’m having more seizures. Anyone have any experience with this?
    #Epilepsy

    1 reaction 2 comments
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    I’m new here!

    Hi, my name is allowedtobeangry. I'm here because I am looking to find others that deal with Epilepsy and can relate to what I am feeling and going through on a daily basis. It would also be amazing to learn more about my condition with any helpful tips and tricks people have learned with their condition. I was diagnosed almost 7 years ago myself, and have lots of information I’ve learned over the years I would be beyond willing to share with others as well!

    #MightyTogether

    7 reactions 13 comments
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    Hi

    Have any of you heard of the song dancing after death by Matt maeson? If not you should maybe check it out it makes me think of the disability community as a whole #Epilepsy #CheckInWithMe #MentalHealth #ObsessiveCompulsiveDisorder

    7 reactions 2 comments
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    New Years day

    5 seizures on New Year’s Day..thanks body what great timing. I hope my 2023 improves as that’s not a great start 🙄 #Epilepsy #Anxiety #Depression

    15 reactions 7 comments
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    More diagnoses and 4th time Covid.

    I haven't journaled, haven't been making art, it's been -34F wind chill days of blizzards, the apartment we moved into had bedbugs and we've been fighting them since before Halloween. I legally lost my ability to drive myself and my 3 kids places with the idiopathic cns hypersomnia and epilepsy diagnoses. This time of year is tricky bc of my miscarriage at Christmas a few years ago. Our two bedroom, 850sq ft. apartment feels claustrophobic and the holidays were sandwiched between two of my kid's birthdays. With out of pocket meds, my expenses are bigger than child support. I can't work right now and spend my days in PT and to attend specialists. Basically, I feel like even with progress, I'm barely keeping it together. And then on December 16th, I caught COVID for the 4th time and I still have it. I am so tired and discouraged and I feel stuck. Yesterday, I finally had enough energy to try to draw. My hands haven't been working right in months, after the last round of seizures, so it made me feel pleased to see this little bit of peace on paper. #EhlersDanlosSyndrome #InterstitialCystitis #Fibromyalgia #ComplexPosttraumaticStressDisorder #majordepressive #Vestibulodynia #idiopahiccnshypersomnia #Epilepsy #DishydroticEczema #Miscarriage #COVID19

    24 reactions 5 comments