Epilepsy

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I'm new here!

Hi, my name is Thedesignshed1. I'm here because I have severe arthritis in my hands and fybromyalgia, I’m suffered from complex PTSD and live with generalised anxiety disorder. I am a single parent and carer for 3 children with disabilities, my oldest is 19 with autism, ocd, type 1 diabetes, and challenging behaviour, my 17 year old has epilepsy and my 15 year old has autism and global developmental delay. I’m exhausted all the time and find it hard to get any relaxation time, life has got easier over the years but I’m getting older and more tired. I’d like to put the fun back into life and feel like I’m living instead of just existing.

#MightyTogether #Anxiety #Fibromyalgia #PTSD

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I'm new here!

Hi, my name is LawfulGoodPaladin. I'm here because I want to learn more about my conditions so I can teach others about them.

#MightyTogether #Depression #Epilepsy

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Happy World CP Day

Today is World CP Day. Cerebral Palsy is a developmental disability that is caused by trauma or a lack of oxygen before or after a baby is born. This can lead to a brain bleed, which can cause issues like muscle spasms, bladder, bowel and mobility issues. Not only that, but CP often comes along with co-existing conditions like Autism, ADHD, epilepsy, intellectual, learning disabilities, and mental health issues. Nevertheless, despite all the issues that we face, most of us can live a normal life and attend school and work with the help of people like caregivers, family members, friends, and services like physical therapy, occupational, speech therapy, and counseling. In fact, I am now 29, volunteer at preschools, do advocacy stuff to help make a difference in the lives of people like us, go to exercise classes at the gym, am a singer songwriter at my church, and am active on the mighty.

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How Has Your Health Changed Your Perspective In A Way Others May Not Understand

If 1000 people with your same condition where in the same room as you , I bet you would be the only one with your perspective on life “

The man at our churches end of summer party responded to me in what felt like a half disgusted , and in another way half impressed form of bewilderment .

He is the type you can tell life had not handed a kind hand to .. and in process he has hardened with the pains he has had to endure
( kind of how the same water that softens a potatoe hardens an egg )

I smiled and said to him

“ Not exactly, I’ve had the opportunity to work along side and get to know many with conditions like mine ,
Or worse .. and the perspective on life with severe illness .. it’s kind of a mixed bag “

And he could just not wrap around his head around how im so happy .. but a 28 year old , with failing health .

I tried to explain how even though im lacking in the physical health department .. I I feel like I can have joy because God has blessed in so many ways .

With a chuckle and a smile he told me he was Jewish 😂❤️.

He could not wrap his head around how I see the world .

And I could not wrap my head around how he sees the world .

Maybe God knew I needed this conversation when it seemed like all I was doing today was marinating in the frustrations of my current situation .

I even came out to our Church cook out knowing I didn’t physically feel good enough to be there , and cursing out the constant drizzle of rain .

But as it rained , 2 rainbows formed

And through my conversation with this man . The rainbows just seemed to get brighter .

As I left the party , feeling a new perspective on how to face my current dilemmas .

I couldn’t help but say a silent prayer to God thanking him for the rain in my life .

So I know just how important rainbows are . 🌈

How has your health changed your perspective in a way others may not understand? #RareDisease #CommonVariableImmuneDeficiency #MastCellActivationDisorder #Epilepsy #LungDisease #MentalHealth #MixedConnectiveTissueDiseaseMCTD #Glaucoma #Gastroparesis #chronicmigraine

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Finding life to hard to cope with

Hi there I’ve been a member quite a few years but never posted on here. I’m 51 this year and all my life I’ve had a condition. I’ve now epilepsy, have daily black outs around 2 bad seizures a week, asthma, lupus I’m currently in a bad flare same with fibromyalgia, I’ve arthritis and really bad sciatica which I honestly think could be a trapped nerve from the pain and I’ve also quite bad long covid and depression I’m also going through the menapause I’m finding it really hard at the moment and could do with some friends x

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This post is for everyone on here!

I don’t know what you are going through but I truly do wish you all a life full of joy, peace, and happiness at all times. May life get better and better for you each day in every way! I hope and pray only positivity comes your way, nothing negative that you don’t want. You deserve to be happy! May you all be well.

#CheckInWithMe #MentalHealth #Disability #Anxiety #ChronicIllness #BPD #BorderlinePersonalityDisorder #Bipolar1 #Bipolar2 #AnorexiaNervosa #Trauma #PTSD #Selfharm #SuicidalThoughts #BipolarDisorder #CheerMeOn #MajorDepressiveDisorder #MightyTogether #SchizoaffectiveDisorder #Schizophrenia #GeneralizedAnxietyDisorder #ADHD #Addiction #SocialAnxiety #Stroke #Autism #AutismSpectrumDisorder #Cancer #SeizureDisorder #Scoliosis #SensoryProcessingDisorder #ComplexPosttraumaticStressDisorder #ThyroidCancer #SocialAnxietyDisorder #SleepApnea #Epilepsy #EatingDisorders #EatingDisorder #SeparationAnxiety #ChronicFatigueSyndrome #ChronicFatigue #Fainting #PanicDisorder #PanicAttack #PanicAttacks #ParkinsonsDisease #ChildLoss #ChronicDailyHeadache #Fibromyalgia #FoodAllergies #FunctionalNeurologicalDisorder #CysticFibrosis #Migraine #MightyPoets #MedicationInducedMovementDisorders #MaleReproductiveCancers #MyCondition #MoreDiseases #MoodDisorders #Misophonia #Mania #MyCondition

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